Aa
Relapsed
Hi everyone! Haven't been around for awhile. Between the fire move in and out and being in the hospital twice for internal bleeding, I haven't been here much. Hope you are all doing well. I found out today that I replapsed. My viral load is 6.5, which I think is high? I am NOT ready to do this again. The ischemic colitis could have been caused by the interferon, which I stopped at 47 weeks, although I planned on going to 72 weeks due to my not clearing at week 12. I am not sure what to do now. My energy is pretty low, but I got out of the hospital 2 weeks ago. I am depressed now, of course. I really want to dump my dumb a$$ dr and get the Gish group, but haven[t sent in the appeal to there rejecting from my ins. I know if I were to do this tx again I would double dose, and do everything full speed, but I really am not ready to get back into it again. I have been so sick since tx that I can hardly go a couple of weeks without something happening. Not sure all of this is related to the hep C or tx. I had the fibroscan which showed stage 1 or 2. I am 55 and I just don't know what to do. Anyone have some suggestions? I have been away long enough to forget some stuff and know new things are up and coming. Are there vertex trials for relapsers? Apprieciate any comments and HI to all my friends from the past and HI to all you newcomers!
LInda
LInda
So sorry to hear this. We're in the same relapse boat. I was supposed to be that geno -2 -0 damage shoe in, but its a cr@p shoot no matter how you look at it. I hope you start to feel better real soon. This disease stinks for sure. You have had a tough ride and you are so strong. I'm a little baby next to most of you guys - even had the 24 week baby course so I have no right complaining. I had a very easy time on tx so though it's crumby to relapse, I shouldn't feel sorry for myself when I see what alot of you guys have gone through.
I know John must be really bummed out. My husband looked like he was going to cry everytime he looked at me when this first happened. I was getting the feeling I wasn't going to svr so I was preparing myself mentally, my husband was 'so positive' I was going to svr, so it was harder on him than it was on me. Then when the relapse happened, I actually felt it. I don't know if you experienced that, but I had night sweats so bad and not just at night, during the day too. I also had alot of numbness in my lips, tongue and hands.Now my tongue just has slight numbness and my hands aren't bothering anywhere near the way they were and the sweating hasn't happened at all for at least a week or so.
I don't know where I will go from here. I'm hoping I don't have cryo. If I don't have cryo, I will probably not treat again and just keep an eye on my liver. Hopefully the fibroscan will be available in the near future. I hope you feel better real soon.
In my prayers.....
I know John must be really bummed out. My husband looked like he was going to cry everytime he looked at me when this first happened. I was getting the feeling I wasn't going to svr so I was preparing myself mentally, my husband was 'so positive' I was going to svr, so it was harder on him than it was on me. Then when the relapse happened, I actually felt it. I don't know if you experienced that, but I had night sweats so bad and not just at night, during the day too. I also had alot of numbness in my lips, tongue and hands.Now my tongue just has slight numbness and my hands aren't bothering anywhere near the way they were and the sweating hasn't happened at all for at least a week or so.
I don't know where I will go from here. I'm hoping I don't have cryo. If I don't have cryo, I will probably not treat again and just keep an eye on my liver. Hopefully the fibroscan will be available in the near future. I hope you feel better real soon.
In my prayers.....
Sorry bay girl to hear this!! Haven't browsed thru for a few and I didn't know. Hope the best for ya.
You can send me a personal message on this forum with your email address. I just left you a message with my email address too.
All of you helped me so much! I know I have forgotten a few, but I could have never made it through tx without the help from this forum. Thanks to you all for your posts!
Terrylee, Andiamo, jmjm530, child24angel, pretty poisonNoMORE, GrandmaA, , Goldyn, Goofydad, Forseegood, Ladybug52, dancegirl54, Dperry10, FloridaMouse, Mikesimion, Flguy, Zaaaa, Orhanedhawk, Psp-n Me, purplecat, ponshel, debbevadam vtbtre9, ladywhy, Whastri, I-horn, Ocean Liver, beamishboy, Katerikea, CIRQDUSOLIEL, Tallahassee, BayAreaWoman, Sunspot, Nygir7, CRAZYCANUCK, Tonybuck, Fishdoc, Valtod, Mremeet, Frijole, and whoever else I forgot,
Thank you all so much for your well wishes on my relapse. I can tell you that you guys and girls have made it so I am not so down as I was and with the support from all of you I feel loved and part of our community. As we all know, it is hard for our family and friends to understand what we go though. The support I have recieved here is invaluable and I apprieciate it so much! I know I couldn't have made it through this without all your support and caring. Newcomers, please take note that this is the BEST rescue drug before, during and after tx. The support from these people and many others. Thanks so much!
Love to all!
Linda
Terrylee, Andiamo, jmjm530, child24angel, pretty poisonNoMORE, GrandmaA, , Goldyn, Goofydad, Forseegood, Ladybug52, dancegirl54, Dperry10, FloridaMouse, Mikesimion, Flguy, Zaaaa, Orhanedhawk, Psp-n Me, purplecat, ponshel, debbevadam vtbtre9, ladywhy, Whastri, I-horn, Ocean Liver, beamishboy, Katerikea, CIRQDUSOLIEL, Tallahassee, BayAreaWoman, Sunspot, Nygir7, CRAZYCANUCK, Tonybuck, Fishdoc, Valtod, Mremeet, Frijole, and whoever else I forgot,
Thank you all so much for your well wishes on my relapse. I can tell you that you guys and girls have made it so I am not so down as I was and with the support from all of you I feel loved and part of our community. As we all know, it is hard for our family and friends to understand what we go though. The support I have recieved here is invaluable and I apprieciate it so much! I know I couldn't have made it through this without all your support and caring. Newcomers, please take note that this is the BEST rescue drug before, during and after tx. The support from these people and many others. Thanks so much!
Love to all!
Linda
Fishdoc!!! I was thinking about you lately woman!!! How are you??? I hope you have cleared and are doing well. You made this board so fun and happy, I miss you and glad you responded. Yeah, what a drag I relapsed. I did sort of expect it after the hospitalization, but sure was hoping for SVR anyway! Don't be a stranger, do you have my email? Still on the other board? I was so sick post tx, I could hardly lift my head....starting to feel better. Hope you are doing well. I think of you often...
Love, Linda
Valtod
Of course I remember our shared experiences on tx. What a trip it was, huh? So sorry to hear of your post tx sides now. I went through hell for six mos. post, I can only imagine going the 72. Luckily, many of the sx have gone after the six mos post. I know what you mean about not doing tx at all. I have felt the same way at times. Especially since I didn't achieve SVR. I didn't expect to really, since I couldn't continue. Since you did, I think you have a much better chance than I did.In some ways it seemed that the sx after tx were worse for me than tx. I suffered a lot for quite a while afterwards, with NO reward. You going the full 72 weeks have such a better chance of clearing than I did! Those awful sx mostly go away....it may take awhile and hopefully none will be permanent. Going that distance you will most likely get that SVR and that was our goal, huh? I really feel your pain and can tell you I went through hell and back, but at least yesterday and today, I feel pretty good and am off the fentanyal patches and feel better, not great, but better. God, there are so many times I wish I had never done tx, but I know that it helped my liver. I try to stay positive about it, as awful as it was and is relapsing. Not sure I will ever do tx again, but I am not ruling it out.. I wish the best for you and hope you keep me posted on how you are doing in the aftermath of the toxins and torture it was and is, post tx seemed almost harder than tx. Do you have my email?
Love to you! Linda
PS. Please newbies, don't take this as a message to not treat. I am glad I did, even though I relapsed. My liver benefited from my tx.
Love, Linda
Valtod
Of course I remember our shared experiences on tx. What a trip it was, huh? So sorry to hear of your post tx sides now. I went through hell for six mos. post, I can only imagine going the 72. Luckily, many of the sx have gone after the six mos post. I know what you mean about not doing tx at all. I have felt the same way at times. Especially since I didn't achieve SVR. I didn't expect to really, since I couldn't continue. Since you did, I think you have a much better chance than I did.In some ways it seemed that the sx after tx were worse for me than tx. I suffered a lot for quite a while afterwards, with NO reward. You going the full 72 weeks have such a better chance of clearing than I did! Those awful sx mostly go away....it may take awhile and hopefully none will be permanent. Going that distance you will most likely get that SVR and that was our goal, huh? I really feel your pain and can tell you I went through hell and back, but at least yesterday and today, I feel pretty good and am off the fentanyal patches and feel better, not great, but better. God, there are so many times I wish I had never done tx, but I know that it helped my liver. I try to stay positive about it, as awful as it was and is relapsing. Not sure I will ever do tx again, but I am not ruling it out.. I wish the best for you and hope you keep me posted on how you are doing in the aftermath of the toxins and torture it was and is, post tx seemed almost harder than tx. Do you have my email?
Love to you! Linda
PS. Please newbies, don't take this as a message to not treat. I am glad I did, even though I relapsed. My liver benefited from my tx.
just so sorry to hear your dealing w/ so much, as you have seen, so I'll only reaterate, many people had soooo many different sides that extended, and they were sure they'd never go away, my friend Ina for example, and many more, but eventually they did clear up...I wish this for you....
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