SST

[SnoWav]

I see they are running Clinical Trials for SST a herb they use in Japan.I know it will not kill the virus just wondered if anyone has used it.

[GoofyDad]

<a href="http://www.mskcc.org/mskcc/html/2270.cfm?IRBNO=02-073">Here's more</a>.

[friole]

I am so sorry about your husband. We discussesd extensions a time or two - since both he and I were not clear at 12.  I remember treatment kicked his butt and he didn't want to think about it. What is the plan now????/

And how are you - are you?   yOu said you are holding off on the bloodwork?  Is that your 48 week, or is it post a month - can't remember.  Weren't you clear at 12?

I got my 48 week results yesterday -- UND -- sensitivity to 10.  I will do shot #51/56 tonight.  The best of luck to you

Kathy

[Forseegood]

BRAVO, BRAVO, BRAVO.....

[jmjm530]

It's not that the pharm's don't have the money. But what's the motivation to re-test cash cows that are already on the market? My guess is that the drug companies and doctors are just looking the other way, and that no real data will come out until combo treatment is completely replaced by newer drugs, making the whole issue academic. I hope I don't sound ungrateful because it may turn out that combo treatment saved my life -- but it would be nice to know the full story going in, especially for those with more options. It looks like I made it, but should I relapse, I'd first look at any alternative that doesn't include an interferon in it.

-- Jim

[Kalio1]

Sorry to hear your husband relapsed, it is such hard news after enduring tx, I know the feeling! At least he kept the virus suppressed for the time he was txing and that probably did his liver some good.
take care

[Snookmiester]

Well, I finished up tx last September, Sept 21 I believe was my last shot date to be exact. So I'm just about 9 months post tx.
I feel pretty good. Hair never came back to pretx thickness, and brain still not firing on all cylinders, but I'm undetectable. Honestly, I beleieve the meds leave us with "lasting" effects. Just the cost of that undetectable PCR I guess? Would love to see some post tx studies done, but who would fund them? Pharms sure aren't coughing up the doe, nor would you find a willing Dr to stick his neck out on the line.Hell of a position for an idependent researcher though. My energy levels are just about back to my norm, and overall I feel truely "healthy".. But what is healthy, as I was born with HCV so I'm not sure how I'm supposed to feel. One thing I'm sure of though, is post tx brought about severe body aches. That is one side that has lingered, and does not seem to be getting any better. Gonna run this by Schiff in August, as with a few pages of other questions and concerns. Specifiaclly this whole remission vs. cure theory.
But in the meantime, poping my supplments to maintain the healthy recovery of my liver. Hopefully, I can opt for a biopsy here pretty soon. I wanna see what these high cost meds real magic is all about!!!