Aa
Scared
I just started treatment 3 days ago. Last night I felt as if I were drunk and I had awful belly pain. Has anyone ever experienced this side effect? I thought the worst sides would be the first day of my first injection?
Everytime I have treated the sides have been different, I often say it is like having a baby, everyone is different.
First time, I was sick a week then I adjusted, had more emotional problems.
Second time with Peg, I was ok after a few weeks, some bad days, but mostly ok. Did have to go on procrit, a bit tired, but I was also recovering from a major accident, taught my self to walk again and use arm.
Third time, now, infergen, it has been a lot harder physically. Lots more sides.
I think most GENERALLY most people find the first 12 weeks hardest, some the 3 month mark.
Everyone is different, we have different make ups different bodies. react differently and I can say everytime I have reacted differently.
The main thing is to get through it as painlessly as you can.
Best wishes
Deb
First time, I was sick a week then I adjusted, had more emotional problems.
Second time with Peg, I was ok after a few weeks, some bad days, but mostly ok. Did have to go on procrit, a bit tired, but I was also recovering from a major accident, taught my self to walk again and use arm.
Third time, now, infergen, it has been a lot harder physically. Lots more sides.
I think most GENERALLY most people find the first 12 weeks hardest, some the 3 month mark.
Everyone is different, we have different make ups different bodies. react differently and I can say everytime I have reacted differently.
The main thing is to get through it as painlessly as you can.
Best wishes
Deb
NY: I wasn't "not telling the truth" just making an observation that I that I had noted in the past almost four years on this forum.
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I disagree. While the first 12 weeks may be more dramatic in terms of anemia, etc, -- many -- including myself -- have continued to go downhill as the accumulative effect of these drugs wore on our bodies over time. Even after 24 weeks, I think I could have rebounded to "my old self" within a few months had I stopped. But after 54 weeks of these drugs I was pretty broken physically and also mentally in ways I'm still dealing with. Physically, I'm pretty much back to how I felt pre-treatment -- no better, no worse -- but it took me over a year to get back to baseline.
-- Jim
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I disagree. While the first 12 weeks may be more dramatic in terms of anemia, etc, -- many -- including myself -- have continued to go downhill as the accumulative effect of these drugs wore on our bodies over time. Even after 24 weeks, I think I could have rebounded to "my old self" within a few months had I stopped. But after 54 weeks of these drugs I was pretty broken physically and also mentally in ways I'm still dealing with. Physically, I'm pretty much back to how I felt pre-treatment -- no better, no worse -- but it took me over a year to get back to baseline.
-- Jim
"I've always found that people did get better after the first few weeks which is why I said it."
That has not been my experience nor is it for many continuing tx. It all depends....
Drinkin' enough water, rest, eating properly, a/d's, anti anxiety meds, happy home life, overall health, etc....so many variables. I think this would be a good survey...who felt better after a few weeks of tx vs. feeling more ill as tx progresses...
When I was in the clinical trials Intron a and riba bundles 13 years ago...i felt ten times better throughout tx...than i do now. Again, many variables....
That has not been my experience nor is it for many continuing tx. It all depends....
Drinkin' enough water, rest, eating properly, a/d's, anti anxiety meds, happy home life, overall health, etc....so many variables. I think this would be a good survey...who felt better after a few weeks of tx vs. feeling more ill as tx progresses...
When I was in the clinical trials Intron a and riba bundles 13 years ago...i felt ten times better throughout tx...than i do now. Again, many variables....
Ditto me to Cierra. By week 12 I pretty much had my sides straight (taking Ambien, taking Procrit) - while of course it's not applicable for everyone in general I've always found that people did get better after the first few weeks which is why I said it. While although I was trying to be comforting...usually...in most cases...it has seemed that once the tremendous difficulty of dealing with sides disappeared it got much easier to bare and less problems arose.
It's never a pleasant experience in anyones life but generally most people seem to do better after the first few months.
I wasn't "not telling the truth" just making an observation that I that I had noted in the past almost four years on this forum.
It's never a pleasant experience in anyones life but generally most people seem to do better after the first few months.
I wasn't "not telling the truth" just making an observation that I that I had noted in the past almost four years on this forum.
My first 12 weeks were horrible, I had every SX that you could think of.
For some strange reason I now feel better and have a Ton of energy.
Weird.............
Good Luck it ge't better
Cierra
For some strange reason I now feel better and have a Ton of energy.
Weird.............
Good Luck it ge't better
Cierra
It has been a roller coaster ride the entire 8 mos. Sometimes I feel so good I really forget about how really bad i have felt. Today, I had a hard time going to work, I have a fight with myself in my mind almost everyday of a bad week about going to work but some how I make it there. Then when I get there I say I may leave at any given time, but I always stay. I am just sooooo tired of taking all of the shots (5 shots a wk) and going to the doctor and getting the labs etc.
Make sure you drink a lot of water and get plenty of rest. Just take it one day at a time.
Make sure you drink a lot of water and get plenty of rest. Just take it one day at a time.
My first 12 weeks were not so bad..... after that it was downnnnnnnnnnnn hill lol....im 6 months now and its HELL.......but i'm half way there. ; ) Just hang in there.
"As your body starts to acclimate to the meds you will start to feel better and better."
That is a subjective statement. IMO the state of yor health, your age, liver damage and individual body chemistry plays a large part reg. sx of tx. I remember when I started and many told me the same thing...but then I'd read the opposite from other veteran posters and it just confused the heck outta me. I know your purpose is to comfort and that is very important...yet the truth is always best. There is no hard and fast facts regarding how one will deal with this treatment...but as you said, it is doable.
All the best!
y
That is a subjective statement. IMO the state of yor health, your age, liver damage and individual body chemistry plays a large part reg. sx of tx. I remember when I started and many told me the same thing...but then I'd read the opposite from other veteran posters and it just confused the heck outta me. I know your purpose is to comfort and that is very important...yet the truth is always best. There is no hard and fast facts regarding how one will deal with this treatment...but as you said, it is doable.
All the best!
y
"As your body starts to acclimate to the meds you will start to feel better and better."
That is a subjective statement. IMO the state of yor health, your age, liver damage and individual body chemistry plays a large part reg. sx of tx. I remember when I started and many told me the same thing...but then I'd read the opposite from other veteran posters and it just confused the heck outta me. I know your purpose is to comfort and that is very important...yet the truth is always best. There is no hard and fast facts regarding how one will deal with this treatment...but as you said, it is doable.
All the best!
y
That is a subjective statement. IMO the state of yor health, your age, liver damage and individual body chemistry plays a large part reg. sx of tx. I remember when I started and many told me the same thing...but then I'd read the opposite from other veteran posters and it just confused the heck outta me. I know your purpose is to comfort and that is very important...yet the truth is always best. There is no hard and fast facts regarding how one will deal with this treatment...but as you said, it is doable.
All the best!
y
The first few weeks are the hardest. As your body starts to acclimate to the meds you will start to feel better and better. Just take it easy and rest when you can. It's not an easy treatment but you will find that it's doable.
Good luck to you!
Good luck to you!
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