insomnia

[GrandmaA]

Well, here I am again up at 1 a.m. and I haven't even started tx yet.

I went to the support group and met a lady who almost got in the clinical trial at Stanford. But it was too far for her to go also.

I see the doctor on Wed. to talk about tx. But I need my eye exam first and that is not until the 14th. I'm trying to move it up.

My younger son is verbally abusive to me at times. I can't talk about tx. or hep. C without him calling me a hypochondriac. I'm getting very tired of it so I told my GP doctor yesterday. I think he has a lot of anger from his childhood and I can't figure out why. His childhood was 10 times better than mine. He's always pointing blame at me. He doesn't even know I'm going on tx. and he's next of kin. I'm not married. He needs to count his blessings.

Well, I'm going to go try to sleep again. I'm good at napping.
I hope everyone has a good day Sat. and a wonderful holiday weekend.

[GrandmaA]

Thanks for all your kind words and encouragement. I slept much better last night and longer. Just taking things one day at a time is certainly the best way to go.

[GrandOak]

That sounds like a good plan.  All I know is from listening to those who struggled with, or are still struggling with, Hgb in the 7 and 6 ranges, I count myself fortunate that I'm still in the 9 or better range.

I think those of us on, or having gone through, tx can empathize to some degree with your younger son it that sometimes things are said in the midst of personal battles which we latter regret.  Heck, even with out tx, I can recall moments when I wish I could travel back in time and tell myself "Don't do that YOU DUMMIE (as Fred Sanford would've said), cause you're going to regret it."

[GrandmaA]

Thanks for all your kind comments and support. I appreciate it very much. I did go back to sleep for 2 very nice naps. One was full of dreams.

Well, I went over and talked to my son today. He does have some very big issues of his own he is dealing with now and he denies saying he didn't care about me. My hearing is starting to go just in the middle tones where most people speak. I did explain to him what Dr. Cecil said to me in his email. Do I want to live another 20 years or not? If I do I need treatment. He said you better go for it. I can get temporary disability without too much trouble.

I got the B12 shot and feel so much better now.

[GrandOak]

Sorry to hear of your sleeping problems.  I know what it's like as I've been there for over a year now as I first went through detox, then treatment, then diagnosed with HCV, and now 8 1/2 months of tx with no clear end in sight.

I'm also to hear about your youngest son and the additional strain he seems to be causing you by his actions and inability to understand what you are going through.  Glad to hear you oldest is more mature and understanding, it sounds like that helps alot.

[Myown]

I know what you mean about the insomnia, some nights good, some not.For me, I try not to watch the news too late because that always adds to what might be a hard time as far as sleep.

Sorry to hear the way the son has been to you. But, its good to hear your other son sounds very understanding.

Wishing you the best!

[prettydamscared]

Awwwww, what he said to you is so mean.  That had to have hurt your feelings big time. Bobby's right and like my Mom always says, "you can't get water from a dry well".  Try not to have any expectations of support from him during treatment, hard as that is.  You'll just keep banging your head against a brick wall if you do.  It sounds like he has his own issues to deal with.  I'd back off and let him deal with them on his own time and in his own way and remember, the more contact you have with him right now, the more he'll let you down and hurt you.

I know of what I speak. My 24 year old son seems unsupportive too but I know deep down, he does care deeply and is probably scared...he just has no idea how to deal with those feelings, much less convey them to me.  Best of luck to you.

Hugs, Charlotte

[bobbyullc]

sorry about you son. we do the best and leave the rest to GOD  but are not always happy with the results. i think many people do not understand and are too wrapped up in themselves to listen. my wife gets this glazed over look when i mention hep c.
she said ohh when i got the news i was undectable at 12 weeks. wanted a more up response. stay here as we all understand.
bobby
do not count on him for support while on tx.

[GrandmaA]

Hi,
Thanks for your nice comments. I have an older son who I call my "warm and fuzzy" because his behavior is much more positive and predictable. He called last night and we had a good talk. He supports me 100% even though he lives down south. My younger son (who lives nearby) is carrying a lot of anger and I don't know why. He's 30. He loves to blame me for everything. He's very immature.

Yes, I have good friends, a couple are close by. And my Spiritual Science is a God send for me. But you know most people who do not have hep. C don't realize what it is at all. I couldn't even get my GP to give me a B12 shot. I will go back to my old Dr. today. It will just cost me another copay.

I already tried to get my younger son to go to the doctor with me and he refused. He said, "Why should I go with you?" I said the doctor wants to talk to you. He said, "About what?" About hepatitis C. He said, "I don't want to know about that". Then I said about me. He said, "I don't care about you."

I don't know why he is so hostile. But I don't need it. I need my energy to get well. My immune system is strong and I don't need any emotional punches to lower it.

I hope everyone has a good day.

[Lady E]

You poor thing.  I really feel for you and the lack of support you seem to be getting from your family. I'm sure that your insomia is caused by the stress that you are feeling right now. You have SO many things running through your mind..who can sleep? When I have a couple of nights in a row where I can't sleep, I take a couple of Tylenol PM or the new Advil PM.  They seem to work for me and I don't have that cloudy feeling in the morning. (I even did that before I started treatment)
I was thinking, how about if you have your ornery son go with you to your next dr. appt? and if there is a Hep C support group available in your area, take him along with you. Sounds like he is uninformed about the virus & all that goes along with killing the beast. The best way to fight ignorance is to learn about something, and maybe that will help him understand what you're going through.
Good luck my Dear, I hope you can bring him around and make him understand. I also hope you were able to get some much needed rest after your post at 1 a.m. this morning.
(((Warm Hugs))) E

[susan400]

I am so sorry that you don't have the support of your son.  Do you have other family members who will be supportive at this time?  Do you attend a church anywhere?  Do you have any close friends (other than us at this web site) who can visit with you and encourage you?  I hope so.  So, times we hurt the ones we love the most, especially when we're younger.  Later in life people often look back at how they acted and feel badly about their behavior.  I know when I was a teen, I got very rebellious and hurt my family a lot.  When I came to my senses, I had a lot of apologizing and loving to do.  Fortunately, for me, they forgave me.  Well, try to keep on truckin!   Susan