Side Effects

[Shell1229]

Hi guys:
Well...after lots of soul searching I finally decided to try to "beat this beast" and took tx#3 on Friday.  I take the shot at work at noon figuring that by the time work is over If I am going to feel crummy I will have th week-end.  Tx#1 was a little tough chills, fever, sweating but nothing unbearable - Lasted about 10 hours.  So, I expected the same thing with the next tx - Lo and behold.....nothing - This tx#3 I took on Friday, again no sides just a little tired - Can I be doing the injection wrong? Or should I just be greatful that my body is cutting me a break? - I am taking the Pegasus alot with the 5 pills of Ribavirin. - Just went for labs (CBC) on Thursday - Any comments on your experiences would be helpful. I pray for us all...

[susan400]

I take my riba at 8:30 in the morning(3) and then, the 2nd dose at 4:15 in the afternoon.  I don't like taking them too late because it messes up my sleep.

As far as weight loss and hair loss goes, I've lost 20 lbs. and had some hair loss at about the 5 mon. point, but it's slowed down considerably. The biggest hair loss only lastest for like 6 weeks.  

By the way, I'm not on Pegasys, it did not work for me.  I'm on Peg-Intron plus daily regular Intron-A.

Susan400

[moonbaby]

I am glad you decided to treat. I am coming up on shot #6 Wed. I decided to do the injection mid-week so maybe I will be close to some degree of normalcy by the weekend when the kids are home. School, football, and cheerleading keep them busy the last half of the week while I am feeling so crummy. I had sx similar to yours with the 1st shot. Seemed like sx were easing up a little until last Wed.(5th shot). A few hours after the injection I started looking for my gun and shells, which my husband promptly hid (which really ticked me off). I am still trying to explain to him and the docs that I was merely thinking of protecting myself and kids. This tx leaves you feeling so vulnerable and this is not an emotion that I am accustomed to. The doc made me take this stupid test with questions like....1) Do you think you are as good as or better than most people? 2) Do you go out in public?.....yadiyadiya...hell no I don't like to leave the house, much less go out in public for these small-minded idiots with their small town games to gawk at.
Had to choose from answers like never, some of the time, all of the time. The nurse flipped smooth out, said they didn't like anyone to score over 18 (out of 60) and I scored 40. They wanted to put me on AD ASAP, even gave me some samples so I could start right then. I just agreed, came home and the samples are still sitting on my dresser. I just feel like this whole disease process and tx is a mind f***. I read somewhere on this forum that sometimes the sides decrease after shot #6? So, I am going to try it without the AD's. Besides, I can't think of a question on that test that I wouldn't have answered differently before I started tx! Sorry for the long post. Thanks for allowing me a place to vent.

Love and Light,
Moonbaby

[Sioux]

I lost about 1/3 of my already thin hair, I started using Nioxin Hair products, and after about 4 weeks I had little sprouts comming back in. YAHOO !! I also have lost about 30 lbs. Which is good for me, I was about 50+ lbs over weight. I'm on week 28.

[dee40]

hello I was wondering if anyone has had any hairloss or weightloss?

[doll face]

I was told to take the pills twice a day. 2 in the morning and 3 at night.As I think back, my doctor and the paper work I got both say not to take all at once and to not double up if I miss a dose. I would definatly check with your doctor on this.I am just about to do shot 15.( Do mine on Sunday night) Thank your lucky stars for easy sides. Mine are starting to get a little worse it seems as time goes on (might just be my imagination)I am still grateful though, it is still easier this time than the first time on tx. I was on pegintron then and it kicked my butt.Best of luck to you and everyone. Kim

[layla]

I didn't have any sides for almost my first 2 months. I'm on my 8th month of pegasyst and my sides are most often mild. Like it was mentioned it seems like just when they act up and I wonder how I will take it the get better.
D40- Welcome to the forum. Hope the biopsy goes well. Make sure to bring a book. It was boring laying there for hours. Personally I would have my biopsy done by a radiologist and ultrasound guided. I had a bad experience but when it was done right it was a breeze.  LL