Hi,
Great site. I registered myself. I hope i can join the SVR group in another 23 weeks.
great site - it really helps keep track of who the members of this little community are.. I'm M, 49 and a 1(unable to subtype) on week 34. Thanks!
Your site looks great and I am sure will be a big help to everyone. I am sorry I did not input correctly. I am 1b 12/48
ral
Your site is the beginning of something wonderful. You are wonderful :) ..Thanks for adding me to the site. When i get more info from the GI the end of NOV you can post it.....I now know i have mild fibrous, and im immuned to Hep B.....waiting for the blood tests....Thanks again......Deb
Thanks for adding me in! I am 47 and was genotype 3a.
yes, you are correct, the 6 mo post tx thing is the true SVR so I may have to clarify that on there. It is an unofficial site, not scientificly true and accurate, it is purely hearsay, what folks tell me is what I post. And I am sure there are nonresponders who dont post they didnt make it, for their personal reasons. It is my own journal/diary kind of thing to keep track of my fellow Heppers/Warriors. I do want to keep it as credible as possible, so, thanks for your ideas!
Raheem here, add me as a male in your website....100% beefcake!
I am female, 1a,1b, 54 and am on week 42 of 48.
Galen - Congradulations on being done. That's awesome!
Barb
Yep, you are right, its 60/60........sorry MY brain fog thought it was when you first were undetected. I was at week 24. Well DUH to me!....My first week-end with NO shot! I would do a dance but I would have to rest afterwards, LOL......
Someone should do a site maybe on whats it like each week after completing tx? So the others on tx will know what maybe to expect? Like when your normal self will return? My doctor told me that the jury is still out on long-term effects of Interferon, so we should maybe band together and let each other know how and what we are still feeling or not feeling? Just a thought for this brain-fog person.
I am going out of town tomorrow for a week with my hubby and when I get back I will post how my first week off tx was like. Sure would like to know how Galen's first week goes as well :) Anyone else complete tx recently? I'm wondering if there is any 'de-tox' from tx? Thanks to all of you for being here! Even tho I am hopefully finished...I intend on staying!
Im on there already! Thanks - I am 46 and was (!) 1b
OHC,
You said in a post above "I put SVR after the newly finished folks, cuz like mofosr said SVRATT (SVR at this time) Being able to finish and have an undetected status is a big happy flag to be waving".
Yes, finishing tx with an undetected status is definitely something to be happy about. However, your site is misleading people in to thinking that there are so many SVR's when in fact they will not be SVR until they remain undetected for 6 months post tx. Waiting 6 months post tx to claim SVR is the standard throughout the medical community.
To give your site credibility, you may want to consider not posting SVR until these folks have waited 6 months and remain undetected.
just for updates I'm 50 and a 1b
Kim
<a href="http://www.geocities.com/auggieaz">Clicking here</a> will get you to OHC's site.
I have tried everything to get the new web site to come up,Maybe some one could email me the page or a link
***@****
Thank you brenda,
Hi all,
I've been reading posts on this site for about 2 months or so and really have not posted anything. All of you have been such an insperation to me I am f/44 on wk 27/48 geno 1a Peg-Intron and Rebetol combo started out with viral count of 10 million Liver damage 3-2. It was less than 5 or undectable at 12 weeks!!! Had gallbladder out at week 17. I was sooo sick from the 1st shot until recovery from gallbladder surgery. I was on a/d before starting tx. Had to change it 4 times since, My sides have been really tough. Wanted to quit twice (around week 24) But reading all of your posts and with a very supporting family, I'm gonna make it through. Thank you to all of you!!!
Don't feel bad ral I did the same thing, but I figured it out- ta da~
Don't feel bad ral I did the same thing, but I figured it out- ta da~
I hate it when someone does the double post!!!
Hi There, Great site!
f /48 /1B/ 24/60
**completed 60 wks tx as of today 09/26/03 !! and still undetected!
Hey Galen, just wanted to say congratulations on finishing the BIG # 48, you need to mount that #48 vial and syringe on a board and hang it up somewhere. Good luck and stick around, you have alot of knowledge on this subject, and you can still help out alot of people here, good luck and thank's for all the info and help you have given me-- HD
Nice website there. I forgot to give you my genotype (duh). Its 1b, which is a good part of why I'm not treating yet. I would have filled out the form, but I wasn't sure if that would add me as a duplicate (and one of me is enough I say!).
60 weeks, lordy lordy, you should get a GOLD STAR for that. -- Good Luck-- HD
I can't seem to bring it up. What am I doing wrong? brainfog?