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Side effects on incivik tx?
How soon after you started did the side effects hit? When did they peak? Hubby started shot Friday night and pills Saturday am. He's forgetting everything, exhausted, achy and feverish. Will they worsen or taper off... Stay the same? Any feedback would be greatly appreciated!
Use a soft tooth brush. One of the side effects of Interferon is bleeding and
bruising. I had increased gum bleeding during treatment. Something I hadn't
had before treatment. This went away after treatment and my teeth are fine.
Best to You
bruising. I had increased gum bleeding during treatment. Something I hadn't
had before treatment. This went away after treatment and my teeth are fine.
Best to You
PL: All of those side effects have gone away since I finished Tx. except for a few lingering skin issues. I still have some hip and knee issues but I had those before Tx.
One thing I forgot to mention in that post was the gum issues. I developed receding gums during the last couple of months of Tx. They have since improved and I will probably NOT need a gum graft. But be sure your husband takes very good care of his teeth. People on Interferon can have teeth and gum issues.
One thing I forgot to mention in that post was the gum issues. I developed receding gums during the last couple of months of Tx. They have since improved and I will probably NOT need a gum graft. But be sure your husband takes very good care of his teeth. People on Interferon can have teeth and gum issues.
I started the pills (Riba and Incivek) on a Mon. am and took my first injection on Mon. pm. I started feeling spaced out and a little light headed not too long after I took the pills. That feeling lasted only 2-3 days. I think my body just had to adapt. With the injection, I felt like I had the flu for a couple of days, although I never got fever, chills, or pain with the injections. I mostly just felt completely dragged out, exhausted, had aches, and over all did not feel well.
The flu like symptoms lessened as the week wore on and my best days were Sunday and Monday (before I took the shot in the eve).
My sickest/worst feeling time was while I was on Incivek. After I got off Incivek I did feel better.
For me, the medications were cumulative. The longer I was on them, the sicker I got. At least until I was off Incivek.
However, many of the side effects come and go. I always felt worse the first couple of days after the injection. In addition, I would have some side effect for a day or two, or maybe a week, and then it would disappear and never come back. Some would come and go and then come again and go again.
The consistent side effects for me were the fatigue, exhaustion, light headedness, dry mouth, aches, mental fog/brain fog. The brain fog was really bad and that is a problem for many of us. I could not remember 5 minutes after I took the pills if I had taken them or not. I had alarms and notes all over the place. I went to pick up the cat at the vet, paid the bill, walked out and forgot the cat. People have tried to open their garage doors with their TV remotes or tried to make phone calls on their TV remotes. We try to make coffee with no coffee in the filter. I forgot how to turn on the windshield wipers, the cruise control, and the lights (in the car). I missed my turn-off twice and had to turn around and keep going back three times before finally getting it right. I could not calculate figures. The brain is not functioning properly and not all neurons are connecting properly. There is a thread some place of all of the things we have done. The mental/brain fog lasts as long as the Interferon is being taken and then even longer until it gets out of the body.
Some things people just have to adapt to and learn to live with while on treatment. People have to slow down and take it easy. They need to write notes and set alarms. They need to avoid doing things that they know they cannot do. Some people quit driving. I did not plan anything while I was on treatment except for doc appts., labs, and a monthly concert (for which I had season tickets). I had no company and did not want any company. I was way too tired to go anywhere or do anything in the eve.
Some side effects need immediate attention or they can very rapidly snow ball out of control:
Rash
Depression
Nausea/vomiting
Anal/rectal issues
Anemia (below 10 or especially a sudden drop in Hemoglobin)
Severe Neutropenia (very low absolute neutrophils)
These side effects can all be treated with prescription drugs.
Rash (Steroid creams, ointments, hydroxyzine, etc.)
Depression (Antidepressants)
Nausea/vomiting (Zofran or another anti-emetic)
Anal/rectal issues (post about this if he gets them)
Anemia (below 10 or especially a sudden drop in Hemoglobin) (Procrit)
Severe Neutropenia (very low absolute neutrophils) (Neupogent)
Here is a post that I wrote when I attained SVR. In it I listed all of my side effects (that I could remember, LOL). It gives you an idea of the array of side effects (although I listed only what I had, and other people had other side effects as well). Like I said, they come and go. Most don't last the entire treatment time.
http://www.medhelp.org/posts/Hepatitis-Social/The-Prize--SVR--plus-side-effect-note/show/1903447#post_8868273
The flu like symptoms lessened as the week wore on and my best days were Sunday and Monday (before I took the shot in the eve).
My sickest/worst feeling time was while I was on Incivek. After I got off Incivek I did feel better.
For me, the medications were cumulative. The longer I was on them, the sicker I got. At least until I was off Incivek.
However, many of the side effects come and go. I always felt worse the first couple of days after the injection. In addition, I would have some side effect for a day or two, or maybe a week, and then it would disappear and never come back. Some would come and go and then come again and go again.
The consistent side effects for me were the fatigue, exhaustion, light headedness, dry mouth, aches, mental fog/brain fog. The brain fog was really bad and that is a problem for many of us. I could not remember 5 minutes after I took the pills if I had taken them or not. I had alarms and notes all over the place. I went to pick up the cat at the vet, paid the bill, walked out and forgot the cat. People have tried to open their garage doors with their TV remotes or tried to make phone calls on their TV remotes. We try to make coffee with no coffee in the filter. I forgot how to turn on the windshield wipers, the cruise control, and the lights (in the car). I missed my turn-off twice and had to turn around and keep going back three times before finally getting it right. I could not calculate figures. The brain is not functioning properly and not all neurons are connecting properly. There is a thread some place of all of the things we have done. The mental/brain fog lasts as long as the Interferon is being taken and then even longer until it gets out of the body.
Some things people just have to adapt to and learn to live with while on treatment. People have to slow down and take it easy. They need to write notes and set alarms. They need to avoid doing things that they know they cannot do. Some people quit driving. I did not plan anything while I was on treatment except for doc appts., labs, and a monthly concert (for which I had season tickets). I had no company and did not want any company. I was way too tired to go anywhere or do anything in the eve.
Some side effects need immediate attention or they can very rapidly snow ball out of control:
Rash
Depression
Nausea/vomiting
Anal/rectal issues
Anemia (below 10 or especially a sudden drop in Hemoglobin)
Severe Neutropenia (very low absolute neutrophils)
These side effects can all be treated with prescription drugs.
Rash (Steroid creams, ointments, hydroxyzine, etc.)
Depression (Antidepressants)
Nausea/vomiting (Zofran or another anti-emetic)
Anal/rectal issues (post about this if he gets them)
Anemia (below 10 or especially a sudden drop in Hemoglobin) (Procrit)
Severe Neutropenia (very low absolute neutrophils) (Neupogent)
Here is a post that I wrote when I attained SVR. In it I listed all of my side effects (that I could remember, LOL). It gives you an idea of the array of side effects (although I listed only what I had, and other people had other side effects as well). Like I said, they come and go. Most don't last the entire treatment time.
http://www.medhelp.org/posts/Hepatitis-Social/The-Prize--SVR--plus-side-effect-note/show/1903447#post_8868273
The side effects of Incivek vary from person to person. I would take the weekly shot of interferon + ribiviran and incivek all at the same time. Felt fine
the next morning, the next evening and then not so fine the morning after.
After that, for a few days I felt like I had the flu. As the weeks went on - my
flu symptoms were less with every weekly shot. Your in the beginning of treatment and a wait and see position of how this will effect your husband.
I was asking the same questions as you in the beginning. I wanted someone to tell me what was going to happen next. I know how you feel. Hang in there. You should have a better idea in a few days. Keep posting your question. It's very important to be connected to people that can give you
support.
the next morning, the next evening and then not so fine the morning after.
After that, for a few days I felt like I had the flu. As the weeks went on - my
flu symptoms were less with every weekly shot. Your in the beginning of treatment and a wait and see position of how this will effect your husband.
I was asking the same questions as you in the beginning. I wanted someone to tell me what was going to happen next. I know how you feel. Hang in there. You should have a better idea in a few days. Keep posting your question. It's very important to be connected to people that can give you
support.
I took my shots on Friday night and thought the worst side effects would be over by Monday so I could work. For most of treatment, Saturday was a pretty good day and by Monday I was feeling it. Of course everyone is different, but it can help to watch for trends so you can plan how and when he will have his "down in the bed" days.
I'm glad he has you. He will have those days that you describe. For me, by the time Friday rolled around again, I was feeling better. I hope this helps. I'm sure you will hear from others. xo Karen:)
I'm glad he has you. He will have those days that you describe. For me, by the time Friday rolled around again, I was feeling better. I hope this helps. I'm sure you will hear from others. xo Karen:)
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