Aa
Spreading the virus?
I was mowing the grass the other day and stubbed my toe and it started to bleed are the ants going to give the dreaded virus to the kids on the block? Well the answer of course is no!!
I understand people have sx when there on treatment, but I read a post the other day about not being able to swallow post tx then some one replied that they couldnt swallow two days after there first shot, Is it possible to bring these symptoms on ourselves? Honestly during this tx I never even worried about a thing and never knew of this website until post tx, it seemed the more I read the more worried I got,When I see comments like should I make my funeral arrangements? "I just want crawl into a dark hole" Things like that do not help people that are recently dx and alot of the stats I have read on the majority of the symtoms I see here are rare but it seem 90% of the people have them, Don't get me wrong this site has been very informative in small doses, Too much of a good thing can also be harmful.
I understand people have sx when there on treatment, but I read a post the other day about not being able to swallow post tx then some one replied that they couldnt swallow two days after there first shot, Is it possible to bring these symptoms on ourselves? Honestly during this tx I never even worried about a thing and never knew of this website until post tx, it seemed the more I read the more worried I got,When I see comments like should I make my funeral arrangements? "I just want crawl into a dark hole" Things like that do not help people that are recently dx and alot of the stats I have read on the majority of the symtoms I see here are rare but it seem 90% of the people have them, Don't get me wrong this site has been very informative in small doses, Too much of a good thing can also be harmful.
Like you, I started tx with the only info. privided by my Dr. and the Schering Corp. pamphlets. I deteriorated with side effects week by week. I received no assistance from my doctor's office. I started surfing, found technical/medical information that was incomprhensible to me, and found this forum. I read a few 'threads' and posted a question. These folks SAVED MY LIFE!!!!!! I now see another doctor, am on a different treatment regime, finally feel that this tx won't actually kill me and have come to love a bunch of strangers.
Hey, Jim, I'll use all that EXTRA Riba/peanut butter on our Texas Fire Ants! Let it poisen them - cracked grits (organic, by the way, nygirl) didn't work.
Hey, Jim, I'll use all that EXTRA Riba/peanut butter on our Texas Fire Ants! Let it poisen them - cracked grits (organic, by the way, nygirl) didn't work.
Gee, I sure hope so, but I may be "yelling" at you tomorrow..lol..I'm quite a wuss so I may be doing alot of yelling and crying, at the moment I am building up fears again this evening but I guess I just need to trust in God, and keep reading these posts lol. Thanks all, mkeela
Good luck tommorrow. I was well aware of the "flu like symptoms" and never gave them a second thought. However, no-one mention the trip down cracker-factory lane. That ran over me like a barrel, but with a lot of communication with my doc and a loss of my own stubbornness, I had good medical help and it's turned out OK. NO straightjacket!! But do keep on top of it and have any part of your med team accessible for info and med-changes IF NEEDED. I was more afraid of the mental than the physical cause I know my weak spot but really it's all managable, just have to modify some pre-concieved ideas some times and take care of your brain like you would any other organ in your body. You'll be one of the ones that just slides through and you can come and tell us about it!........D
No, I will be going there for an "educational" film (how to give myself the shots) and the nurse will show me what all to do give me advice etc. then it's up to me...hmm...hopefully I won't "chicken out" mmmmmmm...ch icken. (had to do it) Well, I am one of the lucky ones that can brush my tounge so far..none of my kids can..I hear my oldest son gaging on his toothbrush every morning..just cracks me up..lol. But I will remember all that you have said, and I thank you so much for caring. I am so blessed to have found this site. Prayers and Blessings to you!!!
I remember , I looked back at some old posts and saw you poking your head up there waving.Wow 6 months would be great. Your ALT and AST will come down really fast. My last CBC was ALT 24 and AST 34 but I showed nearly a drop to normal within 3 wks of starting treatment. You'll do fine , and dont laugh about that water too much , your going to find yourself craving it. You know , one of my worst sides has been the dehydration from the Riba.Not only do you get dry mouth , but you get the gunk building up from , wherever it comes from , in your mouth and on your tounge. I'm sorry , I just have never been able to brush my tounge , physically impossible. I gag thinking about it. My point I was trying to make was that I started drinking carbonated water like Perrier and Peligrino. I know that sound pretentious , but the carbonation cuts through that junk and gets the taste out of your mouth. I guatantee , in a couple of short weeks , your going to remember this conversation and your going to know exactly what I was talking about.
Tomorrows a big day. Are you doing your first shot at the Dr. office?
Tomorrows a big day. Are you doing your first shot at the Dr. office?
Hi 52, I posted about a week ago about bieng scared..lol, and about chugging the water before tx. I have a very good chance of clearing have to do 6 mo. of Pegasys 180mg 5L once a wk, Ribavirin 200mg 2caps morning and evening (800mg total) :) not bad!! Geno 2b, just over a million VL ( only a million to go!!!)
151 ALT, and I think it was only 110 AST.
151 ALT, and I think it was only 110 AST.
You have come to the right place , all of the insane reality , all of the time. Be very careful though , dont take anyones word for anything and always verify everything with jmjm530(lol)
I dont think I have seen your posts before. What are your stats?
Mark
I dont think I have seen your posts before. What are your stats?
Mark
I am so gratefull for this site, I begin tx tomorrow..(may wait till friday cause of this stupid cold)..but anyway, before I found this place I was scaring myself stupid...now that I have found it, I am more at ease and "accepting" of whatever does come my way. PLEASE don't anybody refrain from posting how you are truly feeling and what you are going through...I need you!!! And I am sure others need you too!!!!
I know that post wasnt meant for me, But I really appreciate your knowledge of the subject.
Got to go dump a bucket of tylenon pm in the font yard.
Later.
Got to go dump a bucket of tylenon pm in the font yard.
Later.
Obviously the ants are very lucky to have you around as many ant professionals withhold "rescue" treatment too long with ant-related anemia which often results in either dose reduction, complete cessation of treatment or most alarming of all, loss of their picnic privileges. BTW I was not referring to you at all in the last post as I understand you're new to this particular topic and I must say your sense of humor is well appreciated here and hope you stick around if that's your fancy.
-- Jim
-- Jim
First of all I can tell my knowledge of this subject does not hold a candle to yours, Please take that as a compliment, I have read many of your post in the past, so keep us informed.
Well the ants are back and they have ordered an oxygen tent due to shortness of breath.
Well the ants are back and they have ordered an oxygen tent due to shortness of breath.
Yes I did have sides!! Have you ever heard the saying "worry yourself sick" in some cases I think it may apply here, not for everyone, sometimes people can read too much info and that info never leaves there mind and may cause alot of the insomnia I read about here, I knew going into treatment there was a solid chance of fever,chills etc.. Maybe my doc did a good thing by not mentioning possible depression, rash, nausea and so on.By the way thanks for the discussion , I was hoping for alot of input on this subject.
Well I have to go my ants just knocked on the door and ordered 3 more gallons of water. Ha Ha
Well I have to go my ants just knocked on the door and ordered 3 more gallons of water. Ha Ha
This comes up from time to time. The assertion that somehow this group is not representative of the hep c population in general and that a greater proportion of those having difficult sides (occasionally called "whiners" LOL) end up here.
Of course everyone has a right to their opinion, but these types of statements are highly speculative as no studies exist. So here's my speculative opinion :)
I think the opposite. I think this discussion group pretty representative of the hep c community as a whole and possibly our experiences are on the light side regarding sides, not the heavy.
First of all, because we're all wired to the internet, I think it fair to say that as a whole we're a relatively educated -- or at least inquisitive lot compared to the general population. To me this means that this group would tend to seek out answers and doctors more than most and therefore probably receive better care than most, and certainly receive more support (at least virtual) than most. How many are out there not on the internet who started treatment, freaked out because of the sides, and then stopped?
Second, many here have stated they were reluctant to post about negative post treatment side effects for fear of scaring off those treating or about to treat. So again, I think a good case can be made for *under reporting* of sides, not over reporting.
Next, people here from time to time simply *disappear*. In many cases it turns out they're just too sick to post or perhaps they simply stopped treatment.
And lastly, keep in mind that many come here BEFORE treating, so they have no treatment sides to start with. So the argument that those who have more problems flock to places like this, just doesn't hold water.
Anyway, that's my speculative opinion :)
-- Jim
Of course everyone has a right to their opinion, but these types of statements are highly speculative as no studies exist. So here's my speculative opinion :)
I think the opposite. I think this discussion group pretty representative of the hep c community as a whole and possibly our experiences are on the light side regarding sides, not the heavy.
First of all, because we're all wired to the internet, I think it fair to say that as a whole we're a relatively educated -- or at least inquisitive lot compared to the general population. To me this means that this group would tend to seek out answers and doctors more than most and therefore probably receive better care than most, and certainly receive more support (at least virtual) than most. How many are out there not on the internet who started treatment, freaked out because of the sides, and then stopped?
Second, many here have stated they were reluctant to post about negative post treatment side effects for fear of scaring off those treating or about to treat. So again, I think a good case can be made for *under reporting* of sides, not over reporting.
Next, people here from time to time simply *disappear*. In many cases it turns out they're just too sick to post or perhaps they simply stopped treatment.
And lastly, keep in mind that many come here BEFORE treating, so they have no treatment sides to start with. So the argument that those who have more problems flock to places like this, just doesn't hold water.
Anyway, that's my speculative opinion :)
-- Jim
By the way do know how hard it was to give those little sons of biscuit eaters a biopsy!!!!
I think anybody that comes here should be able to post about whatever topic concerning HCV that they want. No, it's not all happyflowerkittyland nor should it be. It is reality.
People will take from this forum what they want whether that be positive or negative.
People will take from this forum what they want whether that be positive or negative.
Me too.
Have a nice day and dont take any cr*p off those ants, They knew thejob was dangerous when they took it.
Have a nice day and dont take any cr*p off those ants, They knew thejob was dangerous when they took it.
Jakish,Jakish,Jakish.
First let me say that I have personally been scared ****less from some of the posts I have read here.
Do this for me , search the site for Riba Rash. You will find a post that is titled "Ribaviron side effect of mysterious rash"
dated 03/03/2002. When I was researching tx prior to starting tx , I was looking for any info I could find and this was the very first post I came across about Riba Rash. I definitely here what your saying about needless horror stories.
Remember , these folks here are not making this stuff up. Something is causing these sx and the only way that they are going to know and that we are going to learn is to get it all on the table where we can see it and evaluate it. I guarantee that if someone is giving bad information or causing needless fear and worry in this forum , someone is going to say something about it .
The fear I'm talking about that runs through here like a thread isn't fear of loss of life , its the fear of living and somehow being disabled during treatment and not being able to continue to meet the responsibilities of family , work and planning for the future. Many people here are so beat down by the treatment and have to continue to work through it because they cant afford to loose the insurance that their job affords them. That's scary. Missing work or loosing jobs ,putting bread on the table , maintaining relationships , the stigma of the disease and how they are seen in the eyes of their peers. This is the kind of fear I'm talking about and If you will notice , its the kind of fear that no one talks about but that is always present like the proverbial 800 lb. gorilla in the middle of the room.
Your turn. Hit me :)
First let me say that I have personally been scared ****less from some of the posts I have read here.
Do this for me , search the site for Riba Rash. You will find a post that is titled "Ribaviron side effect of mysterious rash"
dated 03/03/2002. When I was researching tx prior to starting tx , I was looking for any info I could find and this was the very first post I came across about Riba Rash. I definitely here what your saying about needless horror stories.
Remember , these folks here are not making this stuff up. Something is causing these sx and the only way that they are going to know and that we are going to learn is to get it all on the table where we can see it and evaluate it. I guarantee that if someone is giving bad information or causing needless fear and worry in this forum , someone is going to say something about it .
The fear I'm talking about that runs through here like a thread isn't fear of loss of life , its the fear of living and somehow being disabled during treatment and not being able to continue to meet the responsibilities of family , work and planning for the future. Many people here are so beat down by the treatment and have to continue to work through it because they cant afford to loose the insurance that their job affords them. That's scary. Missing work or loosing jobs ,putting bread on the table , maintaining relationships , the stigma of the disease and how they are seen in the eyes of their peers. This is the kind of fear I'm talking about and If you will notice , its the kind of fear that no one talks about but that is always present like the proverbial 800 lb. gorilla in the middle of the room.
Your turn. Hit me :)
I'm sorry , I spaced out the part about you having gone through tx already. Its great that you did it without fear and had I sensed that from your post I wouldn't have tried to make you feel that its ok to be afraid , like I would a new member. Its just that words like "worried" and "crawl into a dark hole" just kind of come out as "afraid". My apologies. I personally havent brought any of the sx I get from treatment "on myself" . Did you not have an sx during your treatment , and did you bring them on yourself?
My bad. sorry, really I wasn't trying to put words in your mouth. Brian Fog has been visting me a lot lately, maybe the 100+ heat with 80 degree dew points we've had lately that has drawn him up from FL. I must have gotten confused by the sx's are rare comment connected with 90% remark being used in the same sentence.
Dang it's frustratin when short term memory isn't what it used to be. My wife always asks "What's the big deal", but then I remind her that being blonde she might not understand. Of course that's right before I wind up taking a short nap and wake up with a goose egg on my head, not remembering how I got it. She says it might be because my short term memory is foggy due to my tx and I shrug it off. But I can't help but wonder why so many of our pans are now rocking when I put them on the burner these days.
Dang it's frustratin when short term memory isn't what it used to be. My wife always asks "What's the big deal", but then I remind her that being blonde she might not understand. Of course that's right before I wind up taking a short nap and wake up with a goose egg on my head, not remembering how I got it. She says it might be because my short term memory is foggy due to my tx and I shrug it off. But I can't help but wonder why so many of our pans are now rocking when I put them on the burner these days.
I went through the treatment too, so if I wasnt afraid that makes me not in touch with reality? The whole point of the post was sometimes people may read too much and start thinking of the sx there going to have before they even start tx.
Jakish
Jakish
Jakish , I know this can be a scary place. That is what makes it so important , but we not all doom sayers , all though it may seem like it at times . Most of us will come through this without being completely ravaged by the tx , all though it doesn't seem like it at times...
This is our reality , good or bad , thats it. Its what we all have to deal with and somehow our spirts rise to the occasion and we meet the disease and tx head on and we battle. Some of us do become overwhelmed by the tx. Our friend Strator is having to rethink his options because his body just cant keep up with the demands of the tx. There doesn't appear to be any rhyme or reason as to who can go through this and who cant . This forum is jam packed full of HCV patients that use this forum as an information pipeline and a way to keep up different sx that other members are experiencing. We are inundated (thats right ,I said inundated) with posts to the point that the reader is overwhelmed by the shear numbers and the stark reality of the treatment. Not too many of the members post just to tell everyone that all is ok , some do , and are a breath of fresh air ,but they seem to get lost behind the outrageous side effects that so many of us have.( one of them is forgetting how to spell.. and not caring)
I wouldn't know what to do or where to start trying to make the forum easier for new patients and members. I't kind of defeats the purpose. There is more reality in one days posting than you could get out of every paper written or "informational" webb site you could ever find.
Your suppose to be afraid. I'm afraid. Anyone that tells you they aren't may not be fully in touch with the same reality we all share.
later...
This is our reality , good or bad , thats it. Its what we all have to deal with and somehow our spirts rise to the occasion and we meet the disease and tx head on and we battle. Some of us do become overwhelmed by the tx. Our friend Strator is having to rethink his options because his body just cant keep up with the demands of the tx. There doesn't appear to be any rhyme or reason as to who can go through this and who cant . This forum is jam packed full of HCV patients that use this forum as an information pipeline and a way to keep up different sx that other members are experiencing. We are inundated (thats right ,I said inundated) with posts to the point that the reader is overwhelmed by the shear numbers and the stark reality of the treatment. Not too many of the members post just to tell everyone that all is ok , some do , and are a breath of fresh air ,but they seem to get lost behind the outrageous side effects that so many of us have.( one of them is forgetting how to spell.. and not caring)
I wouldn't know what to do or where to start trying to make the forum easier for new patients and members. I't kind of defeats the purpose. There is more reality in one days posting than you could get out of every paper written or "informational" webb site you could ever find.
Your suppose to be afraid. I'm afraid. Anyone that tells you they aren't may not be fully in touch with the same reality we all share.
later...
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