Stage 3 Incivek Rash

[DresdenO]

I've noticed its difficult to find good illustrations of a stage 3 - severe Incivek rash. I've developed one in the last two weeks and have posted a couple of photos to illustrate it on my personal journal as well as the one here. I go to the hospital in a couple of hours where I think they'll admit me, to monitor the rash more closely. I finished my twelfth week of Incivek on Monday. The question now is whether the rash can now be brought under control without suspending the interferon/riba for the next twelve weeks and I would welcome input from anyone who has had a similar experience. I understand the Incivek takes about 6 days to clear the body. I began treating aggressively with a heavy steroid cream last night and there has been noticeable improvement. I can provide more details of the dazzling array of medications I'm currently on if anyone is interested. I was UND at 4 weeks and waiting on the 12 week pcr.

[Dee1956]

I am so happy you decided not to go on your trip.  I know when I was in tx I could not have taken going on a trip.  I had this convulsive itching that I could not control, it could go on for hours, can't imagine being on a plane
I am really glad that you are going into hospital.  I have never seen a rash as bad as yours.  While Lookingforwards was bad yours is much more red and I can see weeping of the blisters.
I am so sorry for what you are going through, it will be worth it in the end.
I wish you all the best
Dee

[sicko13]

Hang in there Bro, your trip to Paris will come in time.

[DresdenO]

Just to update, I"ve decided the rash is NOT improving notably and have cancelled the long anticipated Paris weekend, ouch. Day 4 post-Incivik. I'll present myself at the hospital for admission Monday to improve my chances of controlling the rash. The nurse from the clinic called to let me know my 12 week pcr was UND, not-ouch!

The rash is slowly intensifying along my limbs and creeping onto my forehead from my scalp and now the soles of my feet are slightly swollen and squishy, I guess an intensification of symptoms of sorts as well.

Thanks for all the sympathy, kind words, support...it brings me to tears, it is such a great support at this time.  

[Reidmusic]

I feel for you and your rash is one of the worst I've seen in photos. You must have an iron will and determination to have made it this far.

My rash was not as bad as yours (pics on my profile) but it was of concern to my NP and Dr. The NP said she was watching for signs of my face swelling up and the rash spreading to more than 50% of my body. I was on Fluocinonide and Atarax and they both helped.

When I finished Incivek I got an intense itch for about three days before things calmed down and the rash began to get better. In two weeks most of the rash was gone but I still had some itching.

Congratulations on finishing the Incivek and I hope your rash subsides and that you'll be able to continue treatment.

[Dee1956]

Your rash looks really bad to me. I was going to send you a link that Vertex used to have showing mild, moderate and severe rashes, they must have taken it down as my link is now showing that to be for physicians, no pictures. Here is it just in case however I did not see the pictures

http://www.incivek.com/hcp/assess-and-manage-rash

You may want to go back to the dermatologist and have him admit you.
Better to be safe than sorry

I wish you the best.

[sicko13]

OMG, I hope you are improving. I start tx on Friday 2/7. Do any of you  posters get rash like this?