Aa
Still <25 but not UND
My eight-week results came in (although they were actually 7 weeks and 2 days because they had me come in early to test Hgb) and I'm not UND yet. To recap:
Day 1 1320K
2 wk 940K
4 wk 629K
6 wk <25 (Boceprevir/placebo added at 4 wk)
7.2 wk <25
I'm somewhat bummed that it isn't UND because this takes me off the possibility of the 6 month arm of the trial (at least I think so), and also those are some lovely statistics for those who go UND at 8 wks on the Boceprevir. But, I am still close and at least I'm not going back up!
Still on Procrit. I wish I liked it as much as everybody seems to. It actually makes me feel not so good for a day or two afterwards. Nothing specific, just generally uncomfortable.
Does anyone else find that they are cold all the time and have a hard time getting warm? I'm wondering if it isn't the interferon effect . . .
Day 1 1320K
2 wk 940K
4 wk 629K
6 wk <25 (Boceprevir/placebo added at 4 wk)
7.2 wk <25
I'm somewhat bummed that it isn't UND because this takes me off the possibility of the 6 month arm of the trial (at least I think so), and also those are some lovely statistics for those who go UND at 8 wks on the Boceprevir. But, I am still close and at least I'm not going back up!
Still on Procrit. I wish I liked it as much as everybody seems to. It actually makes me feel not so good for a day or two afterwards. Nothing specific, just generally uncomfortable.
Does anyone else find that they are cold all the time and have a hard time getting warm? I'm wondering if it isn't the interferon effect . . .
I DONT KNOW LOL ! ---I HAVE READ THAT THING 500 TIMES AND STILL DONT GET IT LOL --FOR ME THIS WAS MY ONLY HOPE OF GETTING TREATMENT --I HAVE TO MANY ASSETS FOR STATE HELP AND NOT ENOUGH MONEY FOR INS. --GO FIGURE
MY VOTE IS WE KEEP TAKING WHAT THEY GIVE US AND PRAY FOR THE BEST RESULTS ! SHE DID TELL ME I WAS SAFE TO WEEK 24 OR 28 IF YOU COUNT THE LEAD IN FOR THE SAME MEDS -- I REALLY DONT HAVE A CHOICE SO IM JUST GOING WITH THE FLOW LOL AMY
MY VOTE IS WE KEEP TAKING WHAT THEY GIVE US AND PRAY FOR THE BEST RESULTS ! SHE DID TELL ME I WAS SAFE TO WEEK 24 OR 28 IF YOU COUNT THE LEAD IN FOR THE SAME MEDS -- I REALLY DONT HAVE A CHOICE SO IM JUST GOING WITH THE FLOW LOL AMY
Und or not und, when it comes to the really important stuff i talk to my Hepo, i have found out sometimes the trial nurse is more confused then we are.
I also agree with jim, get copies. Their free and they must give them to you
I also agree with jim, get copies. Their free and they must give them to you
miracle05--I think she was giving you information from the other trial (for non-responders/relapsers). If you have your consent you can read what's on pages 6 to 8 (which is what I posted above). Don't stop posting! :)
For one thing, it doesn't make sense to pull someone off treatment at week 28 because of a result at week 12. Why put them through 16 more weeks of tx? Bill1024 got pulled off of the non-responder/relapser trial because he wasn't clear at 12 weeks and they did it right then.
Bill1028--is there any question they wouldn't roll you over? I don't have the info on the non-responder/relapser trial, but it seemed rather guaranteed from what I could read in my consent (and a selling point when they asked me to be in the trial). Glad you are feeling better. :)
foo--are you really going to quit? you are sooooo close! you must have had a better viral decrease during the first four weeks than I did, because with my results it's so obvious that I'm on the PI. Plus, it's really messing with my digestion. I'm thinking if someone took a look at my stomach it would be all red (inflamed) and blue (boceprevir). And there's an awful taste that I burp up from it (sorry if that's TMI). Maybe they can help you better with the sides??
For one thing, it doesn't make sense to pull someone off treatment at week 28 because of a result at week 12. Why put them through 16 more weeks of tx? Bill1024 got pulled off of the non-responder/relapser trial because he wasn't clear at 12 weeks and they did it right then.
Bill1028--is there any question they wouldn't roll you over? I don't have the info on the non-responder/relapser trial, but it seemed rather guaranteed from what I could read in my consent (and a selling point when they asked me to be in the trial). Glad you are feeling better. :)
foo--are you really going to quit? you are sooooo close! you must have had a better viral decrease during the first four weeks than I did, because with my results it's so obvious that I'm on the PI. Plus, it's really messing with my digestion. I'm thinking if someone took a look at my stomach it would be all red (inflamed) and blue (boceprevir). And there's an awful taste that I burp up from it (sorry if that's TMI). Maybe they can help you better with the sides??
GB: You* may be confused by my nurse's report, but I'm not.
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Never said I was "confused", just unclear, and if anyone after reading this entire thread can point to any clarity, they're a better man or woman than I :)
This isn't directed to any one person -- but do your own research folks, and look over your med teams shoulders, regardless of who you're treating with. Get your copies of all tests and make it a point to learn how to read them. Anyone who has been here for any length of time can tell you that this forum is full of anecdotes of people getting misinformation (and/or misinterpreting that information) from the medical teams, and this includes the trials.
-- Jim
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Never said I was "confused", just unclear, and if anyone after reading this entire thread can point to any clarity, they're a better man or woman than I :)
This isn't directed to any one person -- but do your own research folks, and look over your med teams shoulders, regardless of who you're treating with. Get your copies of all tests and make it a point to learn how to read them. Anyone who has been here for any length of time can tell you that this forum is full of anecdotes of people getting misinformation (and/or misinterpreting that information) from the medical teams, and this includes the trials.
-- Jim
I AM IN THE NAIVE TRIAL --IM ONLY POSTING WHAT I HAVE BEEN TOLD BY MY TX TEAM AS I WAS CONCERNED BECAUSE I REALLY DONT UNDERSTAND IT ALL !
FROM WHAT I WAS TOLD TODAY THEY LOOK AT WEEK 12 BECAUSE THAT IS WEEK 8 ON BOC. ---
MAYBE I SHOULDNT POST BECAUSE I REALLY DONT KNOW-- I ONLY POSTED WHAT MY NP TOLD ME TODAY --I AM SAFE FOR 24WEEKS OF BOC. 28 WEEKS IF YOU COUNT THE LEAD IN
MY HOPE AND PRAYERS GO OUT FOR ALL OF US
FROM WHAT I WAS TOLD TODAY THEY LOOK AT WEEK 12 BECAUSE THAT IS WEEK 8 ON BOC. ---
MAYBE I SHOULDNT POST BECAUSE I REALLY DONT KNOW-- I ONLY POSTED WHAT MY NP TOLD ME TODAY --I AM SAFE FOR 24WEEKS OF BOC. 28 WEEKS IF YOU COUNT THE LEAD IN
MY HOPE AND PRAYERS GO OUT FOR ALL OF US
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