Aa
Transfusionville
Well... I am having severe hemolytic anemia. Today, my hgb got down somewhere in the 7's and I was having a good deal of chest pain and dizziness and nausea so I went into the ER. (I began taking the increased 40k units per week of epogen Friday before last - so I'm two shots into the increased dose). One thing to think about - need to make certain the pegasys isn't causing bone marrow issues before pinning everything on the ribarvirin.
At any rate, I got a call that I have to testify tomorrow in front of the grand jury about my case. I am, of course, terrified. So in the ER they are telling me they can't do anything but transfer me to Huntsville or wait until tomorrow because my hematologist and liver specialist are both in Huntsville and I don't have a local admitting doc and they don't do the transfusions in the ER.
I told them I had to get transfused tonight in order to testify tomorrow. I was really touched. The nurses, who remember me from doing my rape kit, and from being in twice with hemolytic anemia secondary to the hepc treatment as a result of the rape, told the doctor that they would transfuse me IN the ER. They told him they could use it as training and that they wanted me out in time to "testify against the sob." Kind of a small community hospital here and I didn't know that many there had remembered me, so I found it really touching. At any rate, I'm back at home, going to try to catch an hour or two of sleep. I received two units and I feel wonderful, however, after I deal with court I will call my hematologist.
Very concerned about my blood counts. I've had a transfusion once before. With hemolytic anemia, transfusions sometimes just confuse the issue and actually stalemate your production of additional blood even more. It gets really complicated, especially when you have a hemolytic agent, a possible marrow suppressing agent, a pre-existing normocytic anemia, and then a new hemolytic anemia. Plus 1 new blood transfusion. What a mess. I'll have to call and let them get some kind of plan worked out later today. Prob need a bone marrow biopsy to see what's up in there. This is difficult coming on such good news of a UND at 4 weeks because I sure don't want to blow it now!
At any rate, I got a call that I have to testify tomorrow in front of the grand jury about my case. I am, of course, terrified. So in the ER they are telling me they can't do anything but transfer me to Huntsville or wait until tomorrow because my hematologist and liver specialist are both in Huntsville and I don't have a local admitting doc and they don't do the transfusions in the ER.
I told them I had to get transfused tonight in order to testify tomorrow. I was really touched. The nurses, who remember me from doing my rape kit, and from being in twice with hemolytic anemia secondary to the hepc treatment as a result of the rape, told the doctor that they would transfuse me IN the ER. They told him they could use it as training and that they wanted me out in time to "testify against the sob." Kind of a small community hospital here and I didn't know that many there had remembered me, so I found it really touching. At any rate, I'm back at home, going to try to catch an hour or two of sleep. I received two units and I feel wonderful, however, after I deal with court I will call my hematologist.
Very concerned about my blood counts. I've had a transfusion once before. With hemolytic anemia, transfusions sometimes just confuse the issue and actually stalemate your production of additional blood even more. It gets really complicated, especially when you have a hemolytic agent, a possible marrow suppressing agent, a pre-existing normocytic anemia, and then a new hemolytic anemia. Plus 1 new blood transfusion. What a mess. I'll have to call and let them get some kind of plan worked out later today. Prob need a bone marrow biopsy to see what's up in there. This is difficult coming on such good news of a UND at 4 weeks because I sure don't want to blow it now!
visions can really get us going....and the stress of the trial is not helping, but try to have visions of a cell door slamming shut forever so no else has to go through this and practice deep breathing.
they do test for a ton of things now, the blood supply..you have to focus on what could go right cause tomorrow could be better. do you have a ride tomorrow, id not call up, tell the DA and get someone to pick you up and drive you home, tell them about er and they'll send a car, may just be you laying back, but every little bit helps.
they do test for a ton of things now, the blood supply..you have to focus on what could go right cause tomorrow could be better. do you have a ride tomorrow, id not call up, tell the DA and get someone to pick you up and drive you home, tell them about er and they'll send a car, may just be you laying back, but every little bit helps.
and to think earlier today I was gonna get on here complain about my infected jaw bone pain and my heat being out!!! Brr....everything is relative isn't it.
you hang in there, will be in prayer for you tonight.
you hang in there, will be in prayer for you tonight.
"I'm seeing it as the diseased leprous castoffs of a dying hobbit hemaphrodite monkey junkie rotting in my veins" That's almost poetic, I bet you're good at scrabble too.
yes that wass a line worth reading twice.
(wouldn't want to see her comin after me with that imagination!!)
(wouldn't want to see her comin after me with that imagination!!)
and to think earlier today I was gonna get on here complain about my infected jaw bone pain and my heat being out!!!
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Hey, sometimes its the things that seem small that are the most difficult pain wise. I had at some point in the past couple of weeks just this one swollen lymph node kind of under my chin and it hurt so bad every time I moved my head. I get swollen lymph nodes if I have any type of damage in my mouth or if I have any small infection on my face. Last week I had sores or ulcers in my mouth again, hence the swollen lymph node. The nice thing with the lymph nodes though for me is that they are basically draining lymph, these impurities, away from your body. And for me that system seems to work fairly quickly so if I have a swollen lymph node due to an injury above that area, it doesn't last more than a day or two. But anyway, an infected jaw sounds pretty painful to me. I was a real baby weenie once when I cracked one of my molars and every time I opened my mouth the air would hit the exposed nerve. Which means all the time basically because I talk so much. I thought I was going to die. I'm fairly certain I told everyone I was going to die lol
FlGuy, LOL - I forgot I'd written that. That was either a riba or a painkiller induced description I'm pretty sure...
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Hey, sometimes its the things that seem small that are the most difficult pain wise. I had at some point in the past couple of weeks just this one swollen lymph node kind of under my chin and it hurt so bad every time I moved my head. I get swollen lymph nodes if I have any type of damage in my mouth or if I have any small infection on my face. Last week I had sores or ulcers in my mouth again, hence the swollen lymph node. The nice thing with the lymph nodes though for me is that they are basically draining lymph, these impurities, away from your body. And for me that system seems to work fairly quickly so if I have a swollen lymph node due to an injury above that area, it doesn't last more than a day or two. But anyway, an infected jaw sounds pretty painful to me. I was a real baby weenie once when I cracked one of my molars and every time I opened my mouth the air would hit the exposed nerve. Which means all the time basically because I talk so much. I thought I was going to die. I'm fairly certain I told everyone I was going to die lol
FlGuy, LOL - I forgot I'd written that. That was either a riba or a painkiller induced description I'm pretty sure...
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