Aa
Treatment for Genotype 1b
I'm so grateful to of found this website, until now I swear I thought I was the only one who had 1b. Almost a yr ago my liver Dr. told me that you have 1b and there is no sense in getting treatment because it is the least receptive. After hearing that I asked him what I should do, he told me to keep an eye on the new research, (via internet) and maybe they will have come up w/new medications or whatever. I have done nothing with my hep, I don't know what to do about it. I know that I'm sick all the time, all I want to do is sleep, I wake up in the morning vomitting or feeling like I want to vomit, I inch all over, and sometimes I feel like I have a low grade tempature, where my bones hurt and ache. Dang, I sound like a big ole baby, but I just stating facts here. I'm scared more than anything, I have a job and it's gotten to the point to where my job is getting sick of me not being there and honestly, who can blame them. I have to work because I have nobody to help me and I also need the insurance. I guess what I'm asking is, what can I do to get more energy? What about treatment for this? What has other 1b's done for treatment? Any kind of advice I sure would appreciate. Thanks
Hi jabm- welcome to the discussion group. You’ll want to go to the top of the page and click on the green ‘post question’ button to start a new thread. You’ve attached to an old one that was started in 2005. Lots of stuff has happened since then.
-Bill
-Bill
Hi,
I am newly diagnosed and am grateful to hear some of your optimism. I had read some posts on another site and the option of tx started sounding like a poor choice. One member commented that they wnted their life back and that they felt so much better before they underwent treatment. I was diagnosed in Nov and am not accepting it well at this point. I feel very depressed have decided to cut back to part time status which make no sense at all on any level except for taking care of my self. I meet with the doctor tomorrow for a follow up and am anxious to hear what his recommendations are, but I am petrified of the treatment. Thanks again for your optimism.
jabm
I am newly diagnosed and am grateful to hear some of your optimism. I had read some posts on another site and the option of tx started sounding like a poor choice. One member commented that they wnted their life back and that they felt so much better before they underwent treatment. I was diagnosed in Nov and am not accepting it well at this point. I feel very depressed have decided to cut back to part time status which make no sense at all on any level except for taking care of my self. I meet with the doctor tomorrow for a follow up and am anxious to hear what his recommendations are, but I am petrified of the treatment. Thanks again for your optimism.
jabm
Hi Kathy,
These older threads at the bottom of the page are rarely seen, so it's best to post at the top of the page, or open a new thread.
The decision to treat or not treat is very personal. There's no one-size-fits-all answer. Jim has a very specific opinion about the matter, but there are others here that would offer completely different advice. It's best not to put too much stock into anyone's comments until you've done a lot of homework on your own.
For what it's worth, I'll tell you about my own decision. I'm a 46-year-old female who was diagnosed two years ago. I'm a genotype 1a, Stage 0-1, Grade 1-2. My VL is extremely low. It came back as a scant 714 IU/mL with my last PCR.
I've decided to postpone treatment until better treatments come along. However, if I was older, or if I had other health problems, or if I had symptoms that reduced my quality of life, or if I had Stage 2 fibrosis -- I wouldn't hesitate to start the current treatment protocol. You and your husband will have to weigh all those things, too.
To answer your question about VL....No, there's generally not a reliable correlation between VL and the degree of liver damage. One poster on this board had a pre-treatment VL of 4,000, yet he had Stage 3 damage. Others have VL's in the millions, and have little or no fibrosis. It's a crazy disease.
If you decide to postpone treatment, I strongly suggest you research vitamins and herbal supplements that can help protect the liver from inflammation and its damaging effect. Stay away from quack "cures" like Colloidal Silver and other things. Check out the archives on this board for discussions about alternative treatments. You'll learn a lot.
Best wishes to you and your hubby. Please join us as the top of the page for more discussion.
Susan
These older threads at the bottom of the page are rarely seen, so it's best to post at the top of the page, or open a new thread.
The decision to treat or not treat is very personal. There's no one-size-fits-all answer. Jim has a very specific opinion about the matter, but there are others here that would offer completely different advice. It's best not to put too much stock into anyone's comments until you've done a lot of homework on your own.
For what it's worth, I'll tell you about my own decision. I'm a 46-year-old female who was diagnosed two years ago. I'm a genotype 1a, Stage 0-1, Grade 1-2. My VL is extremely low. It came back as a scant 714 IU/mL with my last PCR.
I've decided to postpone treatment until better treatments come along. However, if I was older, or if I had other health problems, or if I had symptoms that reduced my quality of life, or if I had Stage 2 fibrosis -- I wouldn't hesitate to start the current treatment protocol. You and your husband will have to weigh all those things, too.
To answer your question about VL....No, there's generally not a reliable correlation between VL and the degree of liver damage. One poster on this board had a pre-treatment VL of 4,000, yet he had Stage 3 damage. Others have VL's in the millions, and have little or no fibrosis. It's a crazy disease.
If you decide to postpone treatment, I strongly suggest you research vitamins and herbal supplements that can help protect the liver from inflammation and its damaging effect. Stay away from quack "cures" like Colloidal Silver and other things. Check out the archives on this board for discussions about alternative treatments. You'll learn a lot.
Best wishes to you and your hubby. Please join us as the top of the page for more discussion.
Susan
Jim,
I saw that you asked for some info from Renee to help her decide whether she should tx or not, and hoped you can help us out too...I know that the bx (husband is being scheduled for that and an ultrasound)is what will be the determinating factor, but this is what I have so far...appreciate any insight you can give...
He's 45 years old, 5' 10", 260 lbs. (too much) and genotype 1b, and I know what that entails. PCR 9,920,000 - 7.00 Log. Does the high viral load suggest the amount of liver damage?
I think the liver function tests (below) with the exception of the ALT are pretty good?
Protein 7.1, Albumin 4.2, Globulin 2.9, Albumin/Globulin Ratio 1.4, Bilirubin Total 0.4, Bilirubin Direct 0.1, Bilirubin
Hemoglobin 17.6, INR 1.0, Platelet Count 258.
Thanks,
Kathy
I saw that you asked for some info from Renee to help her decide whether she should tx or not, and hoped you can help us out too...I know that the bx (husband is being scheduled for that and an ultrasound)is what will be the determinating factor, but this is what I have so far...appreciate any insight you can give...
He's 45 years old, 5' 10", 260 lbs. (too much) and genotype 1b, and I know what that entails. PCR 9,920,000 - 7.00 Log. Does the high viral load suggest the amount of liver damage?
I think the liver function tests (below) with the exception of the ALT are pretty good?
Protein 7.1, Albumin 4.2, Globulin 2.9, Albumin/Globulin Ratio 1.4, Bilirubin Total 0.4, Bilirubin Direct 0.1, Bilirubin
Hemoglobin 17.6, INR 1.0, Platelet Count 258.
Thanks,
Kathy
Thanks but after I posted. the symbols got move, so you don't see the the way it should have looked.
Here is a link to a good cat...and More.
http://www.my-tgif.com/halloweencat.htm
<a href="http://www.my-tgif.com/halloweencat.htm">Happy Halloween</a>
<font size="6" color="#6600CC">Blessings to you ALL</font>
Here is a link to a good cat...and More.
http://www.my-tgif.com/halloweencat.htm
<a href="http://www.my-tgif.com/halloweencat.htm">Happy Halloween</a>
<font size="6" color="#6600CC">Blessings to you ALL</font>
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