Yoyu should absolutely, positively not accept a doctor telling you there is nothing you can do. I would run away from this doctor so fast, I would probably jerk the hinges off his office door during my departure. Having this comment made to you or anyone else is like going into a bakery and the baker tells you he can't make a cake!
There are many things that can be done now a days, not just with the disease hepatitis C but other illnesses.
Go find a doctor who will speak with you about what your condition is. Have him or her run the proper testing in order to determine exactly what is going on with you as well as what are the treatments, medications available.
Only then, can you make a decision or a non decision to treat. You have to be the leader of your own journey, even with high price doctors, in order to get the results that are available.
Good luck! Study the facts, get as much information as possible and have your doctor look into all your symptoms.
My viral load has been as high as 6.8 milliom IU/ML and I have read of higher loads here on this forum. Viral load (VL) does not correlate with liver damage and people with high loads can have relatively minor evidence of liver damage whereas people with low loads can have major damage. Unless you are having symptoms of cirrhosis (ascites, varices,encephalopathy,jaundice, high bilirubin etc) the only way to know how your liver really is is by having a liver biopsy. I would advise that you consult a GI or hepatologist regarding your ascites. Draining can greatly reduce your discomfort and though it is a temporary measure it may be something that you would want to do to improve the way you feel. I question whether your bleeding gums are a direct result of hepatitis c though it could be related. I think you are wise in your decision to see a doctor. Instead of guessing about clotting time you should have a test done so you know exactly what your clotting time is. Other tests can also tell a lot about your liver health as well as your overall health. I think one trap we must guard against is attributing every syptom or health problem to hep c. Though they may be related they may have a genesis all their own and may also be candidates for treatment. Your gums, for instance. That's why it's so important to consult with a knowedgeable physician. Things can go untreated and become major problems simply because we assume they are hep c problems. And even if they are related there may be treatments available which could be of benefit. About the 2 threads - many of us have done the same thing. No problem with that until you know the limitations. Good luck and keep us posted. Pursue getting well aggressively. Don't let anyone tell you there's nothing you can do. Be your own advocate. We're all in this together. Mike
Thank you all for your comments. Sorry for hogging two threads, I'll use more wisdom in the future (learning as I go). I'm still learning the terminology, so forgive me for my ignorance. I am dealing with ascites (should I ask that this be drained?), as well as general fatigue, bleeding gums, etc. No apparent trouble with clotting though, as my shaving cuts seem to heal fine. With regard to the hepatitiscfree site, I suppose I was taken by the author's (Lloyd Wright) passion for alternative medicine, being that he, like myself, was disillusioned with the attitude of his traditional doctors. Being told there is nothing I can do, no treatment, etc. is not comforting. For those of you who have tried the alternatives (galen?), did the Thymus lower your viral load? Also, in order to chart my progress with different remedies, what are the numbers I should look for and which abbreviations should I make sure I know. So far, I'm realizing obviously that the viral load is something to monitor, and my platelet count. What else? BTW, I was absolutely hhorrified to learn my viral load was at 2,900,000 being that most I've seen post and discuss their own viral loads seem to be much much smaller. I'm a bit frightened and am trying to learn all I can online. I will search for another physician. Thank you all again.
I am not sure that anyone checked out the article that the hepatitisfree site uses as evidence for their argument an aritle that was written about ten years ago by a respected hepatologist. Dr Davis is the former head of the liver transplant unit at the University of Florida in Gainsville. The aritcle I referenced by him was written about a year and a half ago and starts by stating how much has changed in a short 10 years in treatment and responses to same. He quotes current stats in this article. Hope someone takes the time to read it.
i have lloyd wrights book and tried his products including the expensive thymus frozen liquid. he is making a killing off it but says you "wont get well without it." he is very friendly and bends over backwards to be helpful but if you disagree with him he is not friendly at all. his program is expensive and has no proof of working. some products such as milk thistle may be helpful but one size natural program does not fit all. we are vulnerable when we have a chronic disease and easily taken for a ride. some of us have wasted a lot of money.
Amanda has been taking zadaxin for 5 weeks now. She takes it twice a week (injection). I will let you all know how it works in a few weeks. She is taking this along with daily infergen and all of her blood boosters..
Jodi