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Avatar universal

What exatly happens to you when your blood count gets too low?

At week 44 now and have to go and have an extra blood test next week because my blood count(?) levels are too low, this is about the third time this has happened during treatment and each time I pick up again by the next blood test but I never did ask what happens if they fall below the lowest 'safe' level. Can anyone tell me what happens please?
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179856 tn?1333547362
"Though I have no other medical conditions. And on top of that I have been lately consuming a lot of alcohol, nine beers wvery other day along with a two glasses of wine, and eating tons of ice."

That in itself sounds like a medical condition to me.  Thinning your blood with alcohol certainly won't help anything. I advise you to get some help to find out what additional circumstances are causing you to have such problems.  If you aren't on treatment and don't have hepC the most likely you will need to go to a forum that discusses blood matters. We don't know too much about that here as this is a HCV forum and most people are or have been patients of that disease.

AA is a great program and there are many many meetings in every town in the country.

Good luck.

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Avatar universal
My husband started the combination therapy for hep c in December and his blood count and platelets are very low.  I think his hemoglobin is around 9 and they want to start him on Procrit.  Is this for his hemoglobin?  He seems to cough constantly, esp. when we go walking.  Is this from low homoglobin too?  I'm hoping the coughing will stop when he starts on Wed. with procrit.  Also I read here that there is a diet he should be following.  His drs. have not said anything about a diet.  Can you share this with me?  Thanks!
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Avatar universal
Yes, procrit will help the low hemoglobin.  The shortness of breath and coughing during exertion are related to the anemia (low hemoglobin).  The procrit should help but it does take a couple of weeks to see any improvement.

As for diet, I don't know of a particular recommended diet.  He should eat healthy food but during treatment many people have problems eating.  He should eat whatever he can tolerate.  Good luck to you both.  This treatment is hard but if he can clear the virus it will be worth it.

jd
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Avatar universal
Thanks for the info!  Good to know.  It's hard to get answers from the drs. sometimes.  

After 12 weeks his counts are still not negative.  They were concerned that he still had a trace in his blood and said it may not go away at this point.  He is continuing his treatment for a while longer with 1 shot a week and if still no negative results he may have to take a shot everyday.  Have you ever heard of anyone getting rid of hcv past the 12 week mark?  We are so worried about this.  It has ruined his liver to the point that he now has cirrohsis.  Can someone live a long life like this?  I'm hoping for some good news for him!
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Avatar universal
Yes, there are people who do not clear by week 12 but go on to acheive SVR.  Many of them extend treatment to 72 weeks.  I am not too knowledgable about extended tx, but there are quite a few on this forum who are and I hope they will chime in.

The daily shot your doctor discussed is probably consensus interferon, which is called Infergen.  A couple of people on the forum are taking Infergen.  It is a particularly difficult course of treatment, but if it helps him clear the virus that will be a good thing.

Keep posting and reading.  This is a great place to get information, or just to vent when you need to.
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Avatar universal
Hi Mpls,

Welcome to the forum. I'm glad to hear your husband will be starting Procrit this Wednsday.

Do you know his platelet count? Mine has gone as low as 50, and my doctor was not concerned.

The thanks are mine for your having found and brought up this very old and valuable thread from 2005. It cheered me up to read some of the comments.

As it turns out, as of last week my own hgb tanked and can I ever feel it. How the heck is your husband walking around with a HGB of 9? I can barely talk (a good thing) and feel shaky. I asked my phlebotomist at the lab this afternoon to carry me home and she was half-tempted, seeing me so wilted. So your husband is amazing.


My hgb stayed at ten or above without procrit for 43 weeks of treatment but now that it's below ten, it's another world. A walk to the bathroom feels like the early days when my HGB dropped suddenly from 16 to 11. I functioned decently for months at my new low number but it's altogether different down here in the 9's.

I have no hesitation in recommending that your husband start procrit this Wednesday but it can take two or four weeks to kick in.

As for diet, that's a hefty topic around here. And I don't know anything about why he'd be coughing due to treatment.
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