Why Those Not on Tx Need Support - One Perspective

[GwithHepC]

<B><A href="http://dictionary.reference.com/search?q=support">DEFINITION OF SUPPORT</a></b>



<B>WHY THOSE NOT ON TX NEED SUPPORT:</b>

It was recently asked in another thread what sort of support would someone who is "happy, healthy, asymptomatic and content in their decission (to not treat)" need?  I am not trying to be sarcastic, but what right does anyone have to ask this question of another with a chronic illness?   Why should anyone with Hepatitis C, or any chronic illness, have to justify their need for support?

<B>MY ANSWER (as one not on tx):</b> They shouldn't!  Anyone who has a chronic illness needs support for a multitude of reasons.  

Speaking for myself, I have a need to share in the experiences, feelings and thoughts of others infected with a similar illness, whether treating or not.  Having a chronic illness is an emotional burden.  It is not something that can or should be forgotten or taken lightly, even in the absence of symptoms. Just because someone thinks it is the right decision for them to wait does not mean the waiting in and of itself is not stressful.  Obviously I have determined the benefits of waiting at the moment outweigh the benefits of treating, but I still need support while I wait, and so I suspect, do others who have made a similar decision.

(CONTINUED BELOW)

[cuteus]

We all know who posted the addressed question in this thread, so I will get right to it. It was posted motivated by a regular complain that this forum is tx oriented and those not in tx don't feel part of the group. That was it.
Lately, I've noticed that everytime I type "those with hcv symtoms OR not in tx", it is interpreted to be only the latter.  The first part is completely ignored.  
That statement it is NOT to imply that those not on TX need to justify, ad nauseaum, to those on tx.  I for one have read every reason. We have made our decissions.
We should ALL post the reasons for our choices when a new person is inquiring about to tx or not, because it presents issues they might not have considered yet.
You do not need  to justify your choice and no one is asking you to.  These are choices for which we are accepting possible consequences,(those on or not on TX ).
When I make that statement, please do not TRANSLATE to meaning; only those on TX can post here.
It is only those not in tx, that choose to post with snippy remarks which will trigger an emotional response, and That is their only "contribution" that I find an issue with. NOTHING else.  I will continue to have an issue with that, and it has nothing to do with their choice not to tx.

Gwithhepc; you have made a grueling decission for you and your daughter, and you have enlightened me as to what needs are been filled for you here.  That is a welcome contribution.
I can't recall if you ever made snippy, flaming remarks so I have no issue with you personally. Your point is clearly expressed without the added "fire feeding" comments.  

You do realize that there is a limitation for those not on tx OR hcv symptoms, in forums like this. I don't know if it is good or bad, but again, it is kind of hard for us to offer:"I am glad you have no aches and are feeling so healthy today" support when we feel like ****....I know you understand.

Hey you and I are neighbors, if you want, you and your 13yr old and I and my 14yr old can meet and see "Moving Out" or something.
Just a thought.

Be well

[oldhippiechick67]

Thanks!  Its www.geocities.com/auggieaz

[grouchyOldGuy]

Hi everybody, yeah lots of good stuff on here and real cool people too! Misery loves company in a real good way on here and what a great way to communicate with each other ..man I love it and all you heppers sound so much like me on any given day that it's a pleasure to be able to be a part of it. Support is all good regardless of why and on here it's about HCV and making the best of a bad situation! But actually getting to do it with people that know what it's like is a major bonus.....way better than a doctor that has never had the disease, or family that don't want you to have it! So many thanks and stay strong and keep hangin in there.....laters

[oldhippiechick67]

Still waiting for someone to answer my life insurance question, do I tell um or just hope for the best?  I posted up above about it.  All the bickering going on I am afraid no one will see it.

[honey1616]

You will be covered because you already had insurance and then found out you had hep c so that won't be a problem.  Don't go for the lower rate right now though because the meds will show up...Just leave everything as is until you are off the meds..

[totemman]

Thank you for your eloquent story. I also have decided not to treat, your words are refreshing.

totemman