World Hepatitis Day (?) - today, May 19th

[mike716]

Today is supposedly "World Hepatitis Day", or so it has been proclaimed by the World Hepatitis Alliance (WHA), a supposedly non-governmental organization that claims to represent all hepatitis C infectees worldwide. I want to take this opportunity to state for the record that the WHA does not represent me nor does it speak for me, not the WHA and not any other authoritarian, totalitarian organization in the U.S. or elsewhere.

As a free agent, I have decided that today is NOT "World Hepatitis Day", I am not celebrating it as such, and I recommend that other infectees do likewise. For me every day is hepatitis day, and I don't believe that the world should get off so easily as paying attention, however scant, to hepatitis one day out of the year.

At the same time, I want to denounce the totalitarian tactics of the WHA and its sponsors the pharmaceutical companies (and probably the government, which supports itself with their money). The WHA pretends to represent all hep C infectees and related persons worldwide, so that there will be only one voice, one opinion, and one politics regarding HCV. This is a lie. There are a multiplicity of voices, opinions, and politics regarding HCV, and they should all be heard and given equal attention. If one group speaks for all, that means the silencing of other voices and of dissent. This is the time-worn strategy of government/industry in its war against the public. The first way to fight it is to speak for ourselves.

Enough said.

Mike

[Trish77]

"As for the opposition to Chris. I honestly do not know. I asked my husband who has worked on a few committees with Chris and on the board of NVHR and he has no idea either. Perhaps it's jealousy. Trish, it may seem like there is a lot of oppostiion, but the Medhelp Community is very small. I think you're getting a skewed view"

All this is relatively new to me so I'm really just asking questions in this thread because I want to form my own opinion based on the information that comes out.  It does matter to me because I'm not one to blindly sign onto something with "Hep C" or "HCV" or "Hepatitis" in the title and just ride on the bandwagon.  I want to know that where I put my name and my efforts is something I can align myself with in good conscience.  So trying to understand these things.  

Chris Taylor represents North America which means he represents Canada.  So very interested and curious what he's done with regards to representing Canadian interests as well.  They'd be different in light of the differing healthcare systems.  Some the same, some different.  

I went to this site:  http://hcvets.info/ - it's outside the MedHelp community. A petition going for removal of Chris Taylor.  Have to say, not a great many signatures on that petition if what is shown is all of them and some clearly not aware of the issues. Just all very...curious at this point.

[CoWriter]

"but he doesn't make a good rep, does he? Puhlease."
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Name ONE good thing he has done during his term at tghe WHA.....ONE! And picking up trash after the rally in DC doesn't count....LOL

Co

[Trish77]

Got it, JP .. much appreciated.  Will digest that.

Trish

[JennyPenny2009]

Trish, I answered your questions in a PM. Please look. Thanks.

[HCVet]

you missed the point, in order to receive grants the funding in H.R. 3974 is restried to CDC's NCHHSTP standard element definition to identify patients and provide resources and it's binding under RWCA legal authority that restricts services.

[JennyPenny2009]

There is ABSOLUTELY nothing that restricts funding for HCV to Ryan White funds in 3974. Citation please.