abbreviations for the newbies

[tulsatime]

PCR: polymerase chain reaction (viral count) this test we some  times get at the 4-wk, 12wk and 24wk during treatment to see how or if our viral load has gone down.
DX: diagnosis
TX: treatment
SX: side effects
BX: biopsy
HX: history
VL: viral load
EVR: early viral response
RVR: rapid viral response
SVR: This is what we all want = sustained viral response
AST & ALT: liver enzyme
WBC: white blood count
GGT: gammer glutamil transferase
ANC: absolute neutrophil count

[cajunlady]

It is nice to see you post.  I can just imagine how hard this is on you.  You went through sooooooo much with tx.  I hope you can find another excellent doctor to treat you again.  You will defeat your next battle.  All these relapes scare the hell out of me.  I just don't know what to think.  I know it is mostly geno 2 showing this right now, but who's to say it can not start happening to other geno's.  I only have 10 shots left and I just don't know what I would do if all this was for nothing, that would be devastating to me.  Hope you are able to pull yourself up and smile for awhile.  

Oh Yeah, instead of going to pamper myself on Labor Day Weekend, you will never guess where I went.  My husband was able to NASCAR, IN FIELD tickets, all the food and drinks free, at the California Fontana Speedway.  The first time I have ever been to NASCAR it is such a RUSH.  We took the kids with us, they were in awe.

Cajun
Lanette

[tulsatime]

That doesn't seem fair, you are a great canidate. Maybe they will start on geno 2's later?? I guess that will be something to keep your eyes on. And hopefully open up to you!! Take care, Debi

[Mister beagle bailey]

Thank you. I know you felt the same way I do.  I wish I didn't have thalassemia anemia, that's what holding me back.  I have an appointment with dr schiff in Feb but no other dr will treat me because they say I can't go more then 24 weeks.  It took me awhile to find a dr to treat, that's why I ended up in NY for treatment.
The trials going on for tribavirin is only for geno 1's, can you believe that.  I told them because of my anemia I would be a god subject for the trial but because I'm a 2 it's a no go.

Beagle

[tulsatime]

Hi beagle, yes I did finally get to start again. I am on week 4. I do know how you feel. I was in shock for a while too. I just couldn't get out of the funk. It is almost like a person would go into shock when you lose someone. You go through the day and do the normal things but your mind is not firing on all 4 cylinders. It is almost like you lose a part of yourself.  We are both survivors. You will live to fight another day. And next time I know you will do it. Please have faith. I believe in you! Remember when I thought I would never find a Dr to treat me. I did. And you were always right there to help me!! Take Care and only time can heal, be patient with yourself. Debi

[Mister beagle bailey]

I must be brain dead too.  He does talk about taking another shot at it.  I can't seem to snap out of this mood I'm in, sure wish can do man and fisheress would come back on with their humor. LOL  How are you feeling?  I guess you still didn't fix your home PC yet.  LOL  I wish I never stopped the meds and went longer, but now it's to late and I have to worry about my HGB too.

Beagle

[NYgirl]

BB I don't see that it says he relapsed anywhere...he talks about taking another shot - are you sure that Pauly did?

Did I once again read everything backwards or in Chinese?  I'm so dayum TIRED of being so BRAIN DEAD. It took me so many years after my big accident to actually get OVER the TBI (traumatic brain injury thingie) and to get some sort of short term memory going on.....but now with the IFN I feel like an IDIOT most of the time.

Which is why I've always been a "bottle" blonde...it makes the stupidity work much much better for me ;)

[NYgirl]

I didn't catch the post either.  I am SO SORRY.  After everything it has to be such a heart break!

I hate these posts because I just honestly don't know what so say that could ever HELP at all.  I wish there was something that could be said or done, I really do.

[Mister beagle bailey]

I must have missed the post that you relapsed, and I'm so sorry to hear that.  I guess we live to fight another day.  I hope the new meds are out soon and for me I need the drug Tribavirin, for anti-anemia riba replacement it replaces the riba and doesn't bring down the HGB.  How are you doing?

Beagle

[l-horn]

Damn this is almost as hard as being a Mason, or a rapper.

[Pauly Boy]

And please don't deny the truth, pal!!! The longer I stay on tx the more I become aware of just how much of a effect my psychological and spiritual state of mind has on me while going thru tx. Thank God that I've had this place and these people to drop my stuff on: the real stuff!!!  Nobody ever told me:" Hey, you can't say that type of negative stuff here. As the old saying goes: " Ya gotta go through what you gotta go through!
Regardless of the results at the end of tx, I've learned quite a bit about how fragile my head can be. I would have never believed it. Go figure!!!
Thank you for not trying to whitewash it. You've helped me.
Tomorrow is another day and as long as we're breathin' we got a shot!!!      Pauly

[bobbyullc]

will call you in the morning....smile.
bobbyu

[Mister beagle bailey]

Thanks, I guess it take's time to get over all the bad news.  I'm usually not like tis.  How are you doing?  Did you start tx again?

Beagle

[tulsatime]

Hi lady, hope your sore throat is better. Mine is still lingering. But only at night. Have a good week, Debi

[tulsatime]

I just wanted to say hi, I know you are still dealing, it takes a while, and I want you to know my thoughts are with you, Hugs, Debi

[Mister beagle bailey]

Thanks, I know everyone is here for me but I'm still having a problem dealing with it all.

Beagle

[Mister beagle bailey]

Thank you for the kind words, and I see you have gone through the same as me.  I'm so sorry, Are you treating now?  What meds are you on if treating?  What your future plans?

Beagle

[GrandOak]

RBC - Red blood count
HGB - Hemoglobin
IFN - Interferon shot, most often Pegylated-Interferon
Riba - Ribavirin
Epo - Epogen/Procrit
Neup - Neupogen

[PasoPerson]

I'm sorry you're feeling down, and just wanted you to know that I'll be praying your psyche starts repairing itself.  That would allow your mind to think HAPPY thoughts again.

I never did clear from my first treatment, 2nd treatment a joke as Infergen was working so well, but in week 5 it allowed my seizures to break through the seizure meds.  I was okay for a month or so, then into a major funk for 3 months.  But now I'm better and looking forward to going back in two weeks to my hepatologist.

Soar with the eagles, my friend.

[Mister beagle bailey]

Hi, this old timer is on.  LOL  Have been a bit down this week end.  It's hard to know I relapsed.

Beagle

[cajunlady]

Thanks, for posting the abbreviations of things.  I noticed that not many old timers are on the weekends>  Just did shot 38/48 on Friday.

Cajun

[Lady E]

Same here (sometimes overwhelmed with the abbreviations)
But thank you Deb!! I am finally getting all of my blood tests from the labs, and I'm putting it all together to make sense to myself.  I'll be (finally) posting my stats this week!
(((Healing Hugs))
E

[VanwssaGreeneyes]

From a sometimes very confused newbie  THANKS!!!van