Aa
auto immune hepititus
i have been diagnosed with aih for over a year now. was chronic but is now stable. was wonderin how common breast cancer is with medication. am on azathioprine and prednisolone. was also wonderin how people with this cope with bad days. feel like i could smash house up. neva do but horrible feelin.
hi!
thanks for the info. I am new to forums .I only just found out what a "thread" is. how do you start one?
the website called projectsinknowledge is new to me. I will check that one out.
I agree that the forum is more interesting with all forms of hepatitus and not just hep C. I find that we are similar in some ways and I also find it interesting anyway. I never realized that hep C had to do a series of shots for instance. how many shots in all ?? does that CURE hep c ?
You already know, I am sure, that AIH is not curable but is controlable. it's the tiredness that gets me ! I can't do much before I am totally exhausted. is it the same for hep C ?
are we allowed to give our e-mail address on this site ? just wondering.
Hope the day is great for you! I feel rested and wonderful today !!!
shirl
thanks for the info. I am new to forums .I only just found out what a "thread" is. how do you start one?
the website called projectsinknowledge is new to me. I will check that one out.
I agree that the forum is more interesting with all forms of hepatitus and not just hep C. I find that we are similar in some ways and I also find it interesting anyway. I never realized that hep C had to do a series of shots for instance. how many shots in all ?? does that CURE hep c ?
You already know, I am sure, that AIH is not curable but is controlable. it's the tiredness that gets me ! I can't do much before I am totally exhausted. is it the same for hep C ?
are we allowed to give our e-mail address on this site ? just wondering.
Hope the day is great for you! I feel rested and wonderful today !!!
shirl
hey Honey! you stumbled on the AIH bottom feeders! but there are a couple of threads below that are not full yet, so we can share with our friends here.
AIH folks; as you can see, some other folks like to socialize at the quiet bottom, it is nice and private. Your thread will fill up soon at 50, so move up or down to any that have few comments so that you can keep going for a while!
if any of you do not know this site: projectsinknowledge.com, please visit it for great information. If you have not seen this one: http://www.autoimmunehepatitis.co.uk/main.htm, you can check it out. But MH has the best format that I have seen, and more people. I would suggest that, since MH now has almost unlimited questions slots, that one of you open a daily or weekly thread just for AIH conversation and chattting. I strongly suggest that you guys secure a slot. All hepatitis should be represented, not just hep c. If you had one or two threads, and people were googling AIH, they could very well end up here and join you guys. I really hope that this forum becomes more balanced with other hepatitis represented. There seem to be a large AIH community in need of online socialization and information groups. Ok, sorry if I overstepped anything, but think about it, at least? Don't let the hep c group hoard the forum! ;-) or the bottom feeders!
AIH folks; as you can see, some other folks like to socialize at the quiet bottom, it is nice and private. Your thread will fill up soon at 50, so move up or down to any that have few comments so that you can keep going for a while!
if any of you do not know this site: projectsinknowledge.com, please visit it for great information. If you have not seen this one: http://www.autoimmunehepatitis.co.uk/main.htm, you can check it out. But MH has the best format that I have seen, and more people. I would suggest that, since MH now has almost unlimited questions slots, that one of you open a daily or weekly thread just for AIH conversation and chattting. I strongly suggest that you guys secure a slot. All hepatitis should be represented, not just hep c. If you had one or two threads, and people were googling AIH, they could very well end up here and join you guys. I really hope that this forum becomes more balanced with other hepatitis represented. There seem to be a large AIH community in need of online socialization and information groups. Ok, sorry if I overstepped anything, but think about it, at least? Don't let the hep c group hoard the forum! ;-) or the bottom feeders!
hi u two. sos havent been talkin. Had to come back from campin a day early had really bad back pain. have been back a week now and it is slowly gettin betta. do either of you get this? I too get really tired very quickly. I think this is one of the things that gets me down as i used to be really energetic now thats ancient history. As for the camping trip, yes the weather was cold and windy but we are used to that so that was cool. air bed went down as well but all in all it was fun. planning next holiday to disney in paris. been to florida 10 years ago now cant get insurance to fly to the usa,or to get life cover. my life cover ran out one month before diagnosis now cant find anyone to cover me do either of you know any companies? hope you are both o.k and feelin well . glad your hubby is O.k shirl and feelin beta. Teaching painting sounds fun. Do either of you suffer from constipation? sorry just thought of that question!! am at specialist on thurs this week, boy have i got sum questions for him. I too am gona ask for my labs and my biopsy results. i have the pleasure if another biopsy in april next year and have to have one every two years. what fun!!! luv to you both. lynn.
Hi Lynn Glad you are back from your vacation. Wet and damp, had alot of camping trips like that over the years. I don't know much about travel insurance. That is something we in the USA just do not get. But from the site in the uk, several people got policies from Freedom insurance http://www.freedominsure.co.uk They said they were turned down by other companies, but got resonable prices. Check out the insurance details under the forum at autoimmunehepatitis.co.uk
I have had back pain also, it's better now that the rheumatologist has me on some pain meds. I don't know what is causing it, maybe oesteopenia or arthritis? Ask questions of your dr. I keep a journal of symptoms and question, because sometimes it is easy to forget all the thing I wanted to talk about. I take the journal with me. Constipation, no but I eat lots of vegetables and drink water. Keep informed about your health, it is good for you to have an active role in your own care.
Let us know how it goes with your Dr.
M
I have had back pain also, it's better now that the rheumatologist has me on some pain meds. I don't know what is causing it, maybe oesteopenia or arthritis? Ask questions of your dr. I keep a journal of symptoms and question, because sometimes it is easy to forget all the thing I wanted to talk about. I take the journal with me. Constipation, no but I eat lots of vegetables and drink water. Keep informed about your health, it is good for you to have an active role in your own care.
Let us know how it goes with your Dr.
M
Hi Shirl
Yes, I have gotten one really bad cold. I needed antibiotics. It came on suddenly, almost like fine one hour, really sick the next. My Dr said is was OK to use Dayquil or Nyquil liqidcaps, because they have no alcohol. I also get allergy related asthma, so I use my inhalor at the first sign. I just had the one bad cold so far.
I have purel hand sanitizer in my purse, I wipe down grocery cart handles before I use them. Wash my hands often, and I will stay away if I know that people are sick. So far this has seemed to work for me. No Dr has mentioned needing to go back on pred because of an illness. Since you are traveling it might be good to have a script just in case. Our Dr will do this for my daughter and my self. He knows I will not use it unless necessary.
It is good to talk about this stuff with your Dr. Hope you get goodnews about your labs.
Take care
M
Yes, I have gotten one really bad cold. I needed antibiotics. It came on suddenly, almost like fine one hour, really sick the next. My Dr said is was OK to use Dayquil or Nyquil liqidcaps, because they have no alcohol. I also get allergy related asthma, so I use my inhalor at the first sign. I just had the one bad cold so far.
I have purel hand sanitizer in my purse, I wipe down grocery cart handles before I use them. Wash my hands often, and I will stay away if I know that people are sick. So far this has seemed to work for me. No Dr has mentioned needing to go back on pred because of an illness. Since you are traveling it might be good to have a script just in case. Our Dr will do this for my daughter and my self. He knows I will not use it unless necessary.
It is good to talk about this stuff with your Dr. Hope you get goodnews about your labs.
Take care
M
hi Maari
it is raining here. yes- our weather this summer has been crazy too. lots of rain in the beginning and then it turned really hot and got up to almost 100 degrees. not like typical vermont weather . it feels like Fall now and I love it.
my students are from age 12 and up. have even had quite a few in their 80s and they do well too. it's a fun career.
I am anxious to call my Dr. tomorrow to see if I can lower my pred or get off altogether.]
I have a question. --- since you were diagonosed--- what do you do if you catch a bad cold or flu? do you have to call your Dr. and does he put you back on pred ??? I am nervous about that since we will be traveling a lot and around a lot of people. . I plan to ask my Dr about it when I see him in oct but I'm just wondering what you do ?
wonder if Lynn is still camping! where are you lynn?? hopefully all is well and you had a great time?
will let you know if I get off pred. ( that noise you hear will be me CHEERING!!!!! ) :-)
Enjoy your day and I will enjoy our rainy one!
Shirl.
it is raining here. yes- our weather this summer has been crazy too. lots of rain in the beginning and then it turned really hot and got up to almost 100 degrees. not like typical vermont weather . it feels like Fall now and I love it.
my students are from age 12 and up. have even had quite a few in their 80s and they do well too. it's a fun career.
I am anxious to call my Dr. tomorrow to see if I can lower my pred or get off altogether.]
I have a question. --- since you were diagonosed--- what do you do if you catch a bad cold or flu? do you have to call your Dr. and does he put you back on pred ??? I am nervous about that since we will be traveling a lot and around a lot of people. . I plan to ask my Dr about it when I see him in oct but I'm just wondering what you do ?
wonder if Lynn is still camping! where are you lynn?? hopefully all is well and you had a great time?
will let you know if I get off pred. ( that noise you hear will be me CHEERING!!!!! ) :-)
Enjoy your day and I will enjoy our rainy one!
Shirl.
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