auto immune hepititus

[hatter]

i have been diagnosed with aih for over a year now. was chronic but is now stable. was wonderin how common breast cancer is with medication. am on azathioprine and prednisolone. was also wonderin how people with this cope with bad days. feel like i could smash house up. neva do but horrible feelin.

[Maari]

Sorry to hear you had a bad day.  Hope you have a better one today. Take care of yourself.

[Maari]

Hope today is better for you.  Just wanted to let you know, I'll be on vacation until the 14th.  If I don't respond that is why.  Take care
Maari

[SSM]

Just to let you know I also have AIH. I am not used to writing on forums. I started 40 mil of prednisone in oct. 2005 and am down to 5 since yesterday. I also take 50 mil of azathioprine. I have had no bad side effects other  than a 30 pound weight gain and red cheeks. some sweating . nothing really bad. i don't like having the disease but it's mine -- I have to live with it so I try to do the best that I can and that's all that I can do. I have a great Dr. he told me " do what I tell you to do  and do not try to change treatment yourself and I will do my best to get you feeling well again. "  I feel pretty good so i guess it's working! i am 67  -- female . no other meds. i will try to touch base here occasionally.

[hatter]

hi. i am 40 years old. 4 great kids and have been diagnosed with chronic aih since april 05. have good days and bad, more bad at the minute but hey there you go am alive. i too have never been on a forum before and its nice to have people to talk to that have same disease. where are you from, england or usa or europe? At minute am fed up of the sight of hospitals again but needs must. hope you keep feelin o.k. lynn.

[hatter]

has anyone suffered blood clotting with aih. have found rash and local gp thinks its blood that has come to surface . so have to go for tests to chec. just wondered if anyone else knew anything. also gettin bad bruises but that could be to do with pred medication.thanks. lynn.

[SSM]

hi Lynn
I have not heard about the blood clotting. hopefully that has cleared up for you. I was told I have had AIH for a long time but I never knew it. by the time I went to the DR. I was quite sick. I feel pretty good right now and I am fortunate that I never had bad days. I keep a positive attitude and I do think that helps. I went on 40 prednisone in Oct. of last year . at that time my ALT and AST were in the 1500's. they started down  and after several months of lowering the prednisone he added 50 of Azathioprine ( Imuran).  at this time I am on 5 of prednisone and still 50 of Azathioprine. I will be happy to be off prednisone altogether so I can start losing this 30 pounds that i've gained !!!  i find being tired is my worst complaint --- I do get tired easily.    I am from vermont USA .I have four children, 11 grand children and 2 great grand children !!!!!
stay positive --- you will get better --- it does take time.
SSM