Disturbing Posts

[Tri-guy]

I, for one, was taken back by the tone and language occurring in some of the recent posts over Christmas.  I have recommended this forum to other people I know with HCV and became embarrassed that I had after coming home from family and friends yesterday night and reading what was going on.

I

[The gaffer]

Riba baby. :) Don't worry, be happy.

[DreamAngel]

Tri-Guy-Thank You for posting this, it is my thoughts exactly also. A few people on here definitely are out of line, I am not sure what that think they are gaining by hurting someones feelings, but they seem to do it over and over again, and terrify new people who do not know "THEIR RULES". Not sure who owns this forum, maybe the ones making the rude comments think they do. I hope that poor girl is alright, as well as all the other people that have been run off and offended in the past. Take Care

[kennedge]

well i'm not gonna make any freinds with this...but

new-sogurn (sp)...you say you are disease free...then what is your problem...you did not even get a gift for your partner who stands by you...what is your excuse...do nothing...poor me i almost died...quit smoking so much dope and maybe you could get up out of the chair and show some thanks for those around you...

sorry

[louisep]

I feel so sad about all this....it really is terrible....what happened to all the compassion that I've felt here?  It's such a difficult time of year for everyone.
I'm not too happy about being told not to respond to people in need of a few comforting words, especially at Christmas time....geez...I've probably been a pain in the a-- myself, with all my questions and all you patient people out there trying to simplify stuff for me...it's hard to think straight and not be impulsive when you hit a crisis in life!  
Please be HAPPY everyone....I need your positive energy to help me get through this.  TX IS NOT GOOD for me right now.
Wishing you all the best
Louise

[ringading]

well well well.....hummm, not sure how this should go...i will say, i haven't "run" anyone "off"...as i have only been here for 3 weeks total.....
now, if you do go back and READ every post from dear catglo, you don't NEED to be terribly intuitive to figure out that there is definatly an alterior motive happening here....re: abortion, and a fairly elaborate way of justifing one....I WILL SAY IT AGAIN.....WE CAN NOT TELL ANYONE TO ABORT...IT IS A PERSONAL DECISION...her questions......several of the SAME have been answered 30 different times kindly, lovingly and then increasingly, impatiently.as clearly, her "delemia" which is NO DELEMIA AT ALL, because most of us have children and ALL are hep free, that were carried with mom being infected...and she has been told this over n over n over..certainly pales in comparpison to what many many people here are experiencing and this was explained to her in 30 ways...it minimises others struggles..you can only tell someone something so many times, so many ways....i felt like my daughter was trying to debate GETTING OUT OF DOING THE FRIKKEN DISHES....OVER AND OVER AND OVER 30 different ways.....until FINALLY the blow up yesterday....now, i will not take back what i said...I WILL HOWEVER acknowledge that i was SLAMMED WITH RIBA RAGE and it was very unsettling, (i had 2 bad dreams about my behaviour here)i definately also acknowledge that my "delivery" was harsh, and apoligise for the foul langage...but i tend to be "foul mouthed" anyway and don't expext that that will change a whole hell of a lot when ever i am that pissed off....so i won't pretend to tell you that i'll never swear again...BIG DEAL like no ones heard/said the words before..shall we tailor this site to be ARTIFICAL for some...finally yes, she is confused and does probably need proffessional help, of a different sort.....but my point remains the same...she got tons of answers, and KNEW the ones that were from erin and STILL persisted, waiting til someone perhaps was stupid enough to tell her what she wanted to hear .....okay, bloods beginning to boil again.....

[OkieJim]

Hey there Merry Christmas,
So sorry to hear your having a rough time. Today the Riba has really been tweeking me also. This is usual until tonight when I do my shot it does seem to calm the riba down for a couple of days. Plenty of water which I haven't done today HAHAHA!!! Oh you know everyone knows what we should do. I hope you get a couple of good days during this holiday season. We all deserve this. TX is just such a wonderful thing when it is working but of course we do have to feel sick sometime.
Love Peace and Happiness.

[Space Coast]

Quit using full of rage as an excuse! ringading your just full of **** like someone else I posted this same thing about! And if the truth hurts, kiss my ass and just don't come back!

[ringading]

ho ho ho ha ha ha....well......our "first fight"!!!!
sounds like yah gotta little RAGE going on yourself baby!
kissing ASS has NEVER appealed to me
cheers

[Tri-guy]

I know how easy it is to go off.  For myself there wasn't a response that hadn't also crossed my mind while reading her posts and/or the posts of other people to don't bother going through previous days comments before asking questions.  

I don't have a problem when people are told, in no uncertain term, not to waste comment threads or not to post ad's or unrelated questions.  What bothers me is when responses back to people take on a personal and almost abusive tone.

O.k. off the soapbox.  I

[Space Coast]

I have a problem when people on this board are "are told, in no uncertain term, not to waste comment threads" why don't people just trying asking them!

[GreatBird]

This board doesn't belong to any one of us. Although it is called "Ask the Doctor" there is no doctor, and although we are allowed a limited number of questions, these slots are used by folks (new and old) not always for questions. It has become a support forum and those who continue to come here have managed to do that even with this awkward structure. New people don't know this unless they lurk for some time before jumping in. Not everyone does that.

Most of the people who come here are in some great state of anxiety or another and one of the most important things that they can take away from here is knowledge and kindness.

But compassion does not seem to be dispensed equally on this board, nor has it ever in the almost year and a half I've been here. We could all try a bit harder to be compassionate. We don't have to all get along, but it sure would be nice if we did. If a response will only serve to inflame then what is the good of it?

I appreciate all the good folks here who come day after day for support and to support others. I don't post often, but I read often and I care so much about how all of you are doing.

Pax.  

[jonihs]

I am a really mellow person, not even very much riba rage, but you really can't help becoming impatient w/ a person who asks the same question over and over, looking for differtent answers. If I run into the wall a couple times, I move over until I find a door. She was given several sites for looking into her questions. Even I got irritated and that's not like me. We need to not only be patient w/ newbies, but w/ each other, also.    Joni

[Eyedeas]

While I too can get upset at reposts and those who don't seem to get the help they are asking for, I am very disappointed with those who turn this into an excuse to let the Riba Rage dogs loose.  Now I'm sure my disapointment doesn't mean much to anyone, it is simply my disapointment.  

Swearing and attacking at the level I saw is uncalled for.  Tell them to go away until they are willing to listen if it bothers you, or simply ignore the posts.  I'll rage at the snake oil salesmen who come into our support group, but no one who comes here looking for help should be abused.  catglo, I'm sorry you are so upset and I am sorry in part for the reception you receved here.  When you ask for help, you need to be willing to accept it, even if it's not what you wanted or needed to hear.

To all my friends, remember that if you attack someone here you may drive off a dozen others who lurkred and were offended.  Think before you post and then think again.

Kim

[GwithHepC]

Louisep:

I hope tx gets better for you.  I'm sending some positive energy your way.  Have a GREAT holiday and New Year!!!!!

Ringading:

I have read you post a few times now that all the people on this board with hepatitis C have children and none of their children have been infected; this is simply not true.  My 12-year-old daughter is infected; she acquired the infection from me while I was pregnant with her or through childbirth.  Transmission to children does occur; but it is very rare (about 5%.)  So while it is something that one should not be overly concerned about, it does happen.

Everyone:

I hope everyone had a great Christmas.

G

[GwithHepC]

Just reread my post; I said "...all the people on this board with hepatitis C have children."  I meant to reference those that do have children.  Didn't mean to imply all people on this board are parents.  I hope I didn't scare anyone :)

G

[louisep]

Thanks Okiejim.  Sorry to hear you're not doing too good either.  Yesterday was a long, long day, wasn't it?  Kinda glad it's nearly over....it's hard work tryin to keep that smile on your face for family & friends.  Hope you're feeling better soon.
Gwithhepc, got that energy back, thankyou so much!
Hope we're all doing ok here???  You guys all mean so much to me.
Best wishes to everyone
Louise

[catglo]

This is a comment not a question... First and foremost, I think there are people on this post that may have some personal issues to be worked out amongst themselves. I am not looking of advice about having an abortion because that is the last thing i would do under normal circumstances. However, it is a matter of bringing a child in this world to suffer from a disease that could be fatal. I did my research mothers with hep c have a low chance of passing it to the fetus or child at birth. But, mothers infected with hep b have a 90% chance and usually the all of those babies will be chronically infected and develop liver damage, in other words their immune system is not strong enough to fight it off like an adult. And my questions are concerning two different hepatitis B and C so it is not asking the same question. Unfortunately both of those tests were not conclusive. I was able to make it to my regular doctor today and she informed me that because i was tested repeatedly for hep c antibody not to worry about the riba test being indeterminate. She said i dont have hep C. And she believes, not 100% sure though, that the isolated hep b core antibody with everything else negative suggests the same thing GI-PA posted. So, I have no "alterior motive" just concerned about this situation and if i could pass it on to an innocent child. The neonatal care center at hospitals are full of SUFFERING babies slowing dieing from hiv and other terminal diseases that was passed on by their mothers and if i had a motive it would be to prevent that from happening!!! I will not be visiting this site no longer not even for comments. Infact, I will terminate the membership and erase the site effective immediately. I am appauled by the insenitivity of some on this site. Again i wish everyone a healthy and long life. GOD BLESS!!

[GwithHepC]

catglo:

I hope you read this before you go.  Good luck with your pregnancy if that is what you choose; I hope you have a beautiful and healthy baby.  

G

[jonihs]

Anyone who is offended by the language that was on here, shouldn't read it. We all have the same disease, but different problems. Riba rage is something we don't understand or can't predict.I see you expect us to understand people that irritate us, so maybe you should do the same.   Joni

[Tallblonde]

You're missing my point.  Language isn't my primary concern here.  It's about treating people with a reasonable degree of respect.  I'm irritated with you right now, so is it okay for me to call you a *****?  Of course not.  What kind of forum would this be if that was considered acceptable behavior?  You're defending the indefensible.  

Susan

[cuteus]

It is so refreshing to see that there are so many posts of people who don't try to justify insensitivity with their illness, tx or menopausal condition, also (not yet included) with having hot latin blood.  I could use all of them, but what is the point? Justification only.
Like Dh bill said, this site acts as a sanctuary to most of us, and those who wish to be controversial could consider building their own website: ragers or venters.com.  WE NEED HOPE not hate.

I also get annoyed with people that post questions on subjects answered just the day before, but some of us have been trying to search prior questions in this forum and  can't seem to access them.  I keep getting years old questions when clicking on archives, nothing in the current year.  For those of us who do try to research a question before posting, how do we go back in the forum (say Jan or Feb?)

[terriri]

Hi all. Wow! This is the time of year for high emotion & there sure is a lot of that going on here. I hope those of you who were upset by others actions--- don

[Space Coast]

You freakin people and your stupid reba rage, get a frickin life! I've been doing 1200 daily of the **** for 9 months and yes it makes me crazy, but grow the f up would you!!!!!!!

[ringading]

okay everyone....once and for all....i think whats happening here is things have spirlled WAY outta control..and maybe those responding here are doing so only seeing a small peice of the on going  conversations with catglo..if you re-read ALL the posts from beginning with "catglo" you will clearly see, i,  as well as many others new-sojorn included, responded very lovingly several times over........yes susan, i agree with you and when i woke today, after 2 terrible dreams about my loss of control, and cutting words i felt ashamed of myself...sadly, guess the huge lesson here for me is not to so quickly push that POST COMMENT botton, when i am motivated by any kind of impatience or anger, (riba or otherwise)....it can be hurtful and a BIG MISTAKE, sadly, once pushed, we can't retrieve it, even though within moments we wish we could, take it back...it is there to hurt, and for all the world to see..LESSON LEARNED!...now, if you read my post this morning, i clearly acknowledge responsibility for my words and do admit my delivery was very harsh an DO apolise for the laungage...there also were some very other horrible things said here that have NOT been acknowledged...by space coast, telling me to "kiss his ass, and don't come back"....and kennedges horrible words to new-sojourn as well..we are all accountable for our words, sometimes they come out faster than the good judgement that should guide them....etc etc. i do humbly apoligise for my impatience and very poor taste and judgement...and thank you eyedeas...how beautifully simple., i could have choosen to just NOT RESPOND...i didn't...and clearly have injured feelings...i can't erase what has happened...(and i STILL FEEL similar as i did about WHAT i said...but...HOW I SAID IT WAS HORRIBLE....for that i am truely sorry...i should know better..catglo, i apoligise, these are powerful drugs and althugh it can not be considered an excuse for poor behaviour, there are other things at play here that you can't understand as you are not infected with this and are not being treated with these horrible drugs that can at times do strange things to our better judgement...if you RE-READ the posts, you will CLEARLY SEE that you really are not in ANY danger, NOR is your child!!.PEACE!
ringading....kimmy