Aa
Disturbing Posts
I, for one, was taken back by the tone and language occurring in some of the recent posts over Christmas. I have recommended this forum to other people I know with HCV and became embarrassed that I had after coming home from family and friends yesterday night and reading what was going on.
I
I
hey there,SUSAN400, not to be rude, but maybe you missed the apoligy i posted TWICE now...one more detailed than the first, concerning the HARSH INAPPROPRIATE LANGUAGE I USED..when is it enough of saying sorry, think the point has been made AND responsibility accepted for the behaviour.... and there is nothing else to be added here now.....I GET IT....CAN WE ALL SAY ENOUGH NOW.....AND JUST MOVE ON.....LET IT GO....AND STOP BEATING THIS DEAD HORSE!!
think i'll post and post and post til,the thread is DONE
BECAUSE WITH EVERY NEW POST REGARDING THIS...THE "CAT" FIGHT AS YOU SAY.....ONLY GAINS MORE POWER AND NEGITIVE ENERGY....
IT'S OVER!IT SHOULDN'T HAVE HAPPENED, BUT IT DID SADLY, BUT NOW ITS OVER....LET IT BE OVER
think i'll post and post and post til,the thread is DONE
BECAUSE WITH EVERY NEW POST REGARDING THIS...THE "CAT" FIGHT AS YOU SAY.....ONLY GAINS MORE POWER AND NEGITIVE ENERGY....
IT'S OVER!IT SHOULDN'T HAVE HAPPENED, BUT IT DID SADLY, BUT NOW ITS OVER....LET IT BE OVER
DITTO,tomorrow is another day. We will still have heated debates and rudeness, but like I said before " If you let someone ruin even a part of your day,especaially when we don't know how many days we have left,we lose. I choose not to let people upset me(try not to) I had to take a deep breath and ask myself, Is this really worth bad feeling when I work so hard at good ones? Joni
What ever happened to Peace, Love, Joy, Hope, etc. on Christmas Day? I'm not real thrilled with the language that was used on this board. Well, since I don't want to get involved in the "Cat Fight", that's all I have to say. Susan400
Tallblonde-Ditto to what you said. You are absolutely right, if someone can not apologize, then there Heart is in need of repair also. This site is for people who need compassion, when they feel no one else understands. The Name calling-telling people how to spell (the list goes on) and not giving positive emotional feed back when they need it is very selfish of that individual. Kind words can go a long way. Made to feel like your a child asking to many questions when you are an adult hurts very deep. I sure hope people look back at this and are able to change there ways. This has definitely ruined my day, it has given me the worst headache I have ever had since my Tx began.
I thought I could depend on positive feedback from people here, now I am not sure about that anymore.
I thought I could depend on positive feedback from people here, now I am not sure about that anymore.
If you think calling someone a ***** on Christmas Day isn't worthy of an apology, then you and I are from different planets. HCV is the least of your problems. I truly pity you.
Susan
Susan
Upon reading the various comments yesterday, I too was schocked and amazed at the anger and language. I do not post alot, but I do read the site almost daily. I believe that we can receive more information here than we can get from our doctors, so let's not berate each other by using anger and offensive language.We need each other and if the same questions are asked over and over, it is probably the "brain fog" which has set in. As we all know this is a very serious disease which the medical profession is just beginning to understand, and that is why we are having so many different sides, and unanswered questions.I was on peg-intron for 48 weeks and was just told that I am a relapser. I am now appealing my case with my insurance carrier,as I have found a Hep. Specialist in the FL. area, which of course does not happen to be on my plan. I will not give up, and I have found that anger does not help.
I hope that everyone had a good Christmas, and please, let's not show anger and frustration to others on this site. We are carrying enough of this on ourselves and we all really need the support of each other. My wish for you all is that 2004 brings you a year of health, happiness and continued growing love.
Tess Marie
I hope that everyone had a good Christmas, and please, let's not show anger and frustration to others on this site. We are carrying enough of this on ourselves and we all really need the support of each other. My wish for you all is that 2004 brings you a year of health, happiness and continued growing love.
Tess Marie
Well, I'm not sorry. I wish someone sometime had told me I wasn't neurotic or psychotic or menopausal or depressed and I didn't have to almost bleed to death before I was listened to.
I think we did listen and try to figure out what the hell catglo was talking about.
Once it became clear she wasn't reading, researching or absorbing the info and good vibes, I just crossed over into her mind and talked in ways she would listen.
Like the suffering aids babies line posted earlier-what the hell does that have to do w/tx sx's? If I want to hear about the suffering aids babies, I go to Oprah's site and the angel network.
In fact, our trip to Africa next fall is involved in a musical project for such kids.
I think we did listen and try to figure out what the hell catglo was talking about.
Once it became clear she wasn't reading, researching or absorbing the info and good vibes, I just crossed over into her mind and talked in ways she would listen.
Like the suffering aids babies line posted earlier-what the hell does that have to do w/tx sx's? If I want to hear about the suffering aids babies, I go to Oprah's site and the angel network.
In fact, our trip to Africa next fall is involved in a musical project for such kids.
Ladies (and I use that term very loosely),
Shame on you both! Please re-read your posts from yesterday tell me that you feel good about how you chose to express yourselves. And on Christmas Day, of all times!
You both owe everyone here an apology (instead of excuses about Riba rage. I hope you each have the integrity to make amends for your deplorable behavior.
Susan
Shame on you both! Please re-read your posts from yesterday tell me that you feel good about how you chose to express yourselves. And on Christmas Day, of all times!
You both owe everyone here an apology (instead of excuses about Riba rage. I hope you each have the integrity to make amends for your deplorable behavior.
Susan
I agree with Kim this is disapointing to me at a time I don't need it. I work in construction and can keep up with the best of them just ask some of my crews. Add riba rage and I can really excell! This is NOT the place to "Let the Dogs Loose"
If I want to hear cursing and anger I have a whole world out there to get it from but please not here. This should be OUR sanctuary. At 5.5 months I'm a little weary and sad and look here to the ONLY people who understand how I feel right now.
One of the things I see on this site is that someone is always worse off than me and it humbles me a lot but still some of these same people have taken the time to incourage or cheer me up and I just want to say thanks to all of you for that it keeps me going when sometimes I want ot quit.
Don't get me wrong I have vented on this site and will do so again as some of you know. Just try to keep it cool.I hope everyone has a better holiday time.
Bill
If I want to hear cursing and anger I have a whole world out there to get it from but please not here. This should be OUR sanctuary. At 5.5 months I'm a little weary and sad and look here to the ONLY people who understand how I feel right now.
One of the things I see on this site is that someone is always worse off than me and it humbles me a lot but still some of these same people have taken the time to incourage or cheer me up and I just want to say thanks to all of you for that it keeps me going when sometimes I want ot quit.
Don't get me wrong I have vented on this site and will do so again as some of you know. Just try to keep it cool.I hope everyone has a better holiday time.
Bill
Well, I use 'cured', b/there is no universally recognized criteria for a 'cure'. I use 'disease free' altho we don't know if the tx is permenenat or temporary or an illusion. I have such permanent and long lasting effects caused by the hep c that I will never recover.
For instance, I had a minor eye injury that the bleeding behind the eye would not stop, I was in 2 hospitals-one 150 miles away-and permanently lost the sight in my right eye. Which is ironic since I was a prof. photo journalist. The tx permanently damaged my left eye so I'm legeally blind. My platelets were non-existant b/no one checked for hep c, altho I once again almost died on the emergency operating table b/c the blood just kept on flowing. Massive infusions of platlets, b/no hep c tests.
In Mexico, I fell down some steps @ the villa and ruptured 3 disc-the bleeding thing again-and didn't walk for 4mo and still no tests-b/it was Mexico and I did have a 'private doc'-US doc who gives 'advice'-very common. So I have the whole back thing now.
My liver failed, so I haven't read yet they can re-comp a de-comp liver, so I assume that's normal now-a decomp liver that can go anytime. The encephalitis seems to not be permanent, as long as I keep ammonia levels down-ie, red meat-b/I still have huge gaps which may or may not resove itself.
As to my partner, we're like Opraph and Steadman-we don't exchange presents-we do something for each other and together. We are laughing today how great it is to have had a great Christmas, w/everyone satisfied and no debt, mess or post holiday let down.
Our gifts to each other are trips, and we have a biggy planned next fall and winter. We are renting a place in Amsterdam for3-5 mo and touring Europe and S Africa, using the flat for a home.
He's on a music quest-incl the homeland, and I'm goin to start documenting this historical musical journey,
Remember, I was suppose to be dead, not seeing 3 more Christmases and planning a major ccommercial project. I was planning my funeral 2 yrs ago.
I don't bring my problems in other areas of my life here. I just want to see if this is a'cure', a false cure, a respite. Also, I like to encourage the very, very sick to still seek treatment and that its doable, even w/no insurance or big bucks.
For instance, I had a minor eye injury that the bleeding behind the eye would not stop, I was in 2 hospitals-one 150 miles away-and permanently lost the sight in my right eye. Which is ironic since I was a prof. photo journalist. The tx permanently damaged my left eye so I'm legeally blind. My platelets were non-existant b/no one checked for hep c, altho I once again almost died on the emergency operating table b/c the blood just kept on flowing. Massive infusions of platlets, b/no hep c tests.
In Mexico, I fell down some steps @ the villa and ruptured 3 disc-the bleeding thing again-and didn't walk for 4mo and still no tests-b/it was Mexico and I did have a 'private doc'-US doc who gives 'advice'-very common. So I have the whole back thing now.
My liver failed, so I haven't read yet they can re-comp a de-comp liver, so I assume that's normal now-a decomp liver that can go anytime. The encephalitis seems to not be permanent, as long as I keep ammonia levels down-ie, red meat-b/I still have huge gaps which may or may not resove itself.
As to my partner, we're like Opraph and Steadman-we don't exchange presents-we do something for each other and together. We are laughing today how great it is to have had a great Christmas, w/everyone satisfied and no debt, mess or post holiday let down.
Our gifts to each other are trips, and we have a biggy planned next fall and winter. We are renting a place in Amsterdam for3-5 mo and touring Europe and S Africa, using the flat for a home.
He's on a music quest-incl the homeland, and I'm goin to start documenting this historical musical journey,
Remember, I was suppose to be dead, not seeing 3 more Christmases and planning a major ccommercial project. I was planning my funeral 2 yrs ago.
I don't bring my problems in other areas of my life here. I just want to see if this is a'cure', a false cure, a respite. Also, I like to encourage the very, very sick to still seek treatment and that its doable, even w/no insurance or big bucks.
I'm sorry you were treated so shabbily over the past couple of days. You had legitimate questions about ambiguous and hard to interpret test results in the course of your pregnancy. Though you received some sound information and support, you were also the target of unjustifiable mean-spiritdness. It's a holiday, many people are away, and unfortunately, you probably came away with a very negative view of this board. Sad.
On the plus side you last post suggests you've come to a good understanding of the situation for you and your baby. HBV and HCV have different maternal transmission risks : for HCV it's about 3-7% <a href="http://hepatology2.aasldjournals.org/scripts/om.dll/serve?action=searchDB&searchDBfor=art&artType=fullfree&id=ajhep036s106#head4">see</a>), for HBV this can, in fact, be up to 90% ( <a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10921375&dopt=Abstract">see</a>). So knowing whether you are an active carrier of HBV is important. Testing negative for presence of the virus (negative surface and core antigen) but positive for antibody (surface or core antibody) suggests past infection. Since you only test positive for one of the antibodies either the surface antibodies have lapsed or they were never made. Having a direct, sensitive, test for HBV RNA seems a good way to confirm the virus is not active.
The HCV riba test, is and older and less reliable test for active presence of the virus ( I believe GIPA mentioned a while back that her office no longer uses that test). The two anti-hcv tests trump the single positive c22 antigen result (<a href="http://www.labcorp.com/datasets/labcorp/html/chapter/mono/hc001100.htm">see</a>). If there's any doubt, following up with an HCV RNA test would be worthwhile, but here it really doesn't seem worthwhile. All the best to you. If you have further questions please post!
On the plus side you last post suggests you've come to a good understanding of the situation for you and your baby. HBV and HCV have different maternal transmission risks : for HCV it's about 3-7% <a href="http://hepatology2.aasldjournals.org/scripts/om.dll/serve?action=searchDB&searchDBfor=art&artType=fullfree&id=ajhep036s106#head4">see</a>), for HBV this can, in fact, be up to 90% ( <a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10921375&dopt=Abstract">see</a>). So knowing whether you are an active carrier of HBV is important. Testing negative for presence of the virus (negative surface and core antigen) but positive for antibody (surface or core antibody) suggests past infection. Since you only test positive for one of the antibodies either the surface antibodies have lapsed or they were never made. Having a direct, sensitive, test for HBV RNA seems a good way to confirm the virus is not active.
The HCV riba test, is and older and less reliable test for active presence of the virus ( I believe GIPA mentioned a while back that her office no longer uses that test). The two anti-hcv tests trump the single positive c22 antigen result (<a href="http://www.labcorp.com/datasets/labcorp/html/chapter/mono/hc001100.htm">see</a>). If there's any doubt, following up with an HCV RNA test would be worthwhile, but here it really doesn't seem worthwhile. All the best to you. If you have further questions please post!
Have an Answer?
You are reading content posted in the Hepatitis C Community
Learn about this treatable virus.
Getting tested for this viral infection.
3 key steps to getting on treatment.
4 steps to getting on therapy.
What you need to know about Hep C drugs.
How the drugs might affect you.
These tips may up your chances of a cure.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
