burning tounge

[joeal74]

Hello I sure miss janishep c site . Im glad I found this . I did treatment in 2004 been clear ever since . I was a 2b so very fortunate My lab even showed not to bad had to kind of tell the VA that the way I was feeling at that time that I needed a biopsy which they finally did . I was grade 4 and stage 3 did my 6 months of interferon . wasnt to bad lots of sores in mouth and shivers . never actually had a burning tounge though .  Now it is jan .2012 .In 2010 found out had brain tumor astrocytoma right temporal lobe . took it out and finished chemo and rad. may 2010 . I have though since been on lots of meds and have aquired the burning tounge like freezer burn 24 hrs a day and much saliva build up . liver funcions are fine but they were masked at the time of my biopsy which is the true way to know about the liver condition .  I would have thought the burning tounge was from chemo and radiation would subside by now but seems to be getting worse . Just wonder if anyone with damaged liver had same I know that during treatment may be the case . I have a healthy mouth and tounge went to my dentist no sores or anything . It could be my brain signaling saliva glands . but i wonder sometimes if it be liver problems . I also before the cancer could not and cannot now handle any type of colgne or soap or perfume smells . feels like ive drank the bottle all day  . Docs just keep trying diffrent meds . Im starting to feel like a lab rat ...   I have alot going on like my doc said . also have been on coumidin for 2 yrs had pulmonary embolism while on cancer tretment . oh well i guess the main ? is has anyone ever had burning tounge  while living with liver issues . At least when i had sores in mouth during treatment interferon magic mouthwash did take care of that . By the way my tumomr in the brain has nothing to do with the hep c treatment I and docs talked and for many years I sprayed lots of pesticides and diesel fuel on pants and stuff growing up . But who really knows how you get cancer . just wanted to make that known .I wish all that come to this site the best  .  hope this all I typed makes any sense .  

[joeal74]

Thanks for your suggestions . Im checking site out and going to try some biotene  Doc says may be b2 deffiency so were taking that .. We will see what happens in a few days . thanks again

[suezeeque]

Treatment caused my tongue to feel like it was on fire 24/7.  It started with my tongue turning bright red, then I had a white film down the center.  Even toothpaste caused it to burn.

The doctor took cultures but came back with nothing.

I started to use Biotene toothpaste (I was quite skeptical at first and with a price tag of $14, I put off buying it for a while) and an enzyme lozenge that sticks to the roof of my mouth at night.  No more tongue on fire.

It's been a few weeks now that I can actually speak normally and my tongue isn't on fire all day. I haven't tried to eat any spicy foods yet...  I love spicy food and can't wait to dig into some jerk chicken.  But I haven't tried yet, afraid of setting my tongue on fire again!

Sorry to hear that you've had such a rough go of it and I hope you can get that tongue under control.  It suc#s.

[JasmineT]

Oops brain fog. Here it is http://www.colgate.com/app/CP/US/EN/OC/Information/Articles/Oral-and-Dental-Health-Basics/Medical-Conditions/Dry-Mouth/article/Burning-mouth-syndrome.cvsp

[JasmineT]

Hi Joeal, congratulations on achieving svr and I am sorry to hear of your other struggles.  When I first saw your post I throughout you may have thrush and were probably treating.  Not the case though I see.  I am guessing this may not be a common factor for liver disease since others have not chimed in.  My damage is not yet severe and I am afraid I have no insights.  Since no one else knowledgable hs chimed in I thought I would dig up an article I bumped across when looking for info on thrush.  I t may have no bearing at all on your symptoms and root cause but maybe it will help you with questions to ask your doctor.

Best wishes and hope you are feeling better soon.