I am a ICU/Med-Surg nurse and I have always prefered patient care. I was on Lithium but my levels were too high and Zprexia put me in heart failure. I am now on Trileptal. My dr. did put me on procrit but I did not respond. I asked about being put back on Peg and Co-Peg but he stated the risks were too high and Roche did not reccomend it. My doctor is the 2nd top doctor in the city I live and is head of the gastroenteroloy dept. at the med school. I am on the liver transplant list but will have to be on my death bed to get one. Thank you all for reading my post. I thought some of these problems were in my head.
I am doing my last shot on Saturday, a couple of questions? first am I supposed to keep taking the Riba? I was pretty sure they told me you keep taking that you one week after, secondly can anyone tell me what to expect after stopping tx? How soon before I start to feel better. I feel like I have been living the movie groundhog day for the last six months
TIA
Depression and suicidal tendencies are a documented side effect of the tx(treatment). So much so that many doctors require a psych evaluation before starting tx. Many folks are put on AD's just as a precaution before starting. Too many in my opinion, but that is a seperate issue.
Funny that this question should come up today. Just today I heard Paul Harvey on the radio saying that the FDA here is now gonna require that the makers of the AD drugs put a warning in their literature stating that the AD's themselves can cause suicidal tendencies! I thought that was pretty startiling since that is why some folks take them.
I have seen some really depressed people come through here. Some are taken off of tx for that reason. Also there are LOTS of different AD's. Some folks have to try several different ones before they find the one that works. It can take months to find the right one and the right doses.
Riba Rage is something many of us fight too. That is depression related in that it comes from the chemical imbalance in our brains caused by the Ribavirin. It is an amazing thing to go through for the first time. We can go from calm and tired to a Raging Maniac in just a few seconds. You know its happening but are powerless to stop it once it starts. It is short lived but it can be scarey to go through. It's usually over some really trivial thing too. Just like a light switch.....BAM.
So, you are not alone with the crazy thoughts and anger on tx. It's good that you have some psych docs though if you actually thought about suicide or murder. I never got THAT mad. I did kill several phones and cut down a tree that got "in my way", but I never came close to hurtin anyone else. I sure would have liked to see those Flying Turkeys though. I did imagine that a Badger and a Woodpecker here were plotting against me though. I spent many happy hours planning thei demise and avoiding their plots. I used to post about them a LOT.
Here is a good link to a site that lists clinical trials that are comming up...... http://www.centerwatch.com/patient/studies/area7.html
Took your guns away eh? Get yourself a rubber-tipped dart gun and start shootin your hubbies picture on the wall. Its fun to do and you will laugh every time you see it with all those darts stuck on his face. Hahahahahahahaha
Taks care.............
Please see my comment on the mouth sores thread
Since I'm now going past 48 weeks (this week would have been my last, sniff) I called and they sent me another starter kit since most of the stuff is gone. Call 'em again. Mine came in a couple days.
giddy check the link beathepc posted above. the pts did not have detectable cryoglobulins, so who knows what is really at work here. I am so glad for that info, I was tired of the rheumatologists tellling me I had no "classical" arthritis, I know I'm special but...lol...now I know it was not in my head.
catherine, I am so sorry tx was so hard on you. I found my dark moods and sadness enhanced during my anemia. After tx with Procrit, life is again manageable. Too bad your dr did not treat your anemia promptly, some drs prefer to stop tx instead.
good luck in your new try. I am managing w/o ads, with the help of this forum as support. some severe cases will need stronger intervention. engage the help of your relatives in keeping an eye on your behavior, since you might not notice.
best of luck