much concerned and need help

[salvo]

I have not been around for a while after failing my last trial in Miami. My liver is all scared and I'm sure much worse then 2009-2010 but now My new doctor has put me on Pegasys proclick (180) the usual Rribavirin 1200 mg a day and the new Incivek 750 mg every 8 hrs. I'm close to 70 years old and I guess this will be my last chance as he put it, so I'm very concerned with the outcome and what to expect during this 3 month although I still might be on the old medicine beyond this 3 months. I'm going on my second week on thursday and I'm not feeling too good. My urine has changed color like I never seen it before and I feel bad all over. I'm also taking pills to get this Amonia out of my system and thats one indicator I'm much worse, because I never suffered with this before. Any in-put would be helpful, and if anybody was and is in the same situation would be helpful. Thanks

[ceanothus]

Oh boy, my heart goes out to you! I'm on week 42 of 48 now, and I feel pretty crummy most of the time, but I still remember weeks 2-3 of Incivek as being the absolute worst. The side effects hit during week 2, and hit like a ton of bricks. Be ready to respond quickly to the sx, as they really do tend to snowball quickly if you watch and wait too long. If you get the nausea enough to feel like vomiting call your doctor ASAP and ask for Zofran. You donor want to throw up your medication! Use a bunch of memory aids to make sure you remember all your meds and take them on time. That is really a challenge! I had multiple safety measures - I kept the pills counted out in different slots of a medication holder and I had an alarm setup on my phone, which I learned to keep in my pocket at all times during the day and on my nightstand when sleeping, then on top of that I also kept a checklist to mark off every dose when I took the pills. The tx does a number on one's memory, and without all those measures I couldn't remember 5 minutes later whether I had taken my pills or not. Read all your food labels carefully for fat content. The quantity of fat required is really critical to the success of the tx, and if you are like me, you will be amazed at how many seemingly high-fat foods really don't have enough fat unless you eat a really huge serving. There are plenty of foods that will provide enough fat in a reasonably small portion, but you do really have to do your research.

Be sure to check in frequently, and especially if you have specific questions or concerns. Good luck!

[salvo]

Thanks for the post and as I said, I was approaching  my second week and all went well. It was so good that I thought I didn't take the shot the proper way so I got worried but to find out I did it right. Beside feeling sick like a dog, at least no flu symptoms this time. I have to go get blood work done tomorrow so I know what going on for the 3rd shot which is on thursday , so I'm keeping my fingers crossed. Some one mentioned about having problems with the rectum, and thats where I'm at now and a rash on my legs, which is very itchy and driving me nuts. Is there anything can be used for one or both? Thanks for any help.

[coeric]

rectum pain - the best things i found were nupercainal and balneol creams. they are sold without a prescription, and i purchased both from amazon.  

rash - the topical prescription ointment that worked best for me was clobetasol,  i also used triamcinolone ointment.  the oral prescription drug that helped me with the itch was hydroxyzine.  finally i was placed on prednisone, after i was pulled off of the incivek at week 10.

blessings
eric

[finishline225]

Wishing you all the best with treatment.  You can track my 2 month success using Pegasys, Ribapak and Incivek treatment.  I was undectable after 2 weeks! Yes, I have flu like symptoms, but surely you'll agree, a very small price to pay.  Hang in there and keep a good attitude.

[salvo]

thanks for the tips on both med. maybe I can get some relief.

[salvo]

Just came back from the doctor,after my second shot and my third shot is tonight, I went from almost 18 million to just 18. Its not the 05 that I used to have with the old shot and riba but that came back any way, and now I feel this just might be the one to help me. My platelets went down from 77 to 65 which i expected worse and my white cells are down too but the doc. said we probably wont need to worry until my fourth shot, so I'm feeling pretty good considering I have a bad rash on my legs and belly. Dont know too much about the rest of the blood work but those few things I know.  Thanks for all the help.