my viral load when diagnosed in nov 07 was 6,500.000.at week 4 i was undected............i am on 400 mg 2 x day.my mistake.i weigh about 155.......and nygirl , do you mean when the hemoglobin gets down to about 10 ? and thanks everyone else for your response !
It sounds like you've started the infamous anemia that we get so easily. If you can find out what number is next to that one...it would be a place I would start. Most docs don't start you on Procrit until you get down to 10 and by that time you're feeling pretty damn poorly. It's a shame but it's very expensive and has it's own risks so they make us wait.
It takes about two to six weeks to work so, you'd want to find out where you stand immediately so you can get on the drug now if that is the case.
Otherwise do NOT let them do any dose reductions to your meds. That is about the worse thing you can do on treatment. There ARE other options!
Treatment does make us all feel like just sleeping and laying around doing nothing unfortunately. But the hemolytic anemia is another issue completely.
Find out that number right now! Good luck.
sorry.yes i am taking 400 mg 2 x day......my mistake.yes im asking for weekly blood work now and a copy for me. i feel like i have to look after myself.im telling dr office today.thanks, now i dont feel so alone..........good luck to you guys too ! Kathy
The Princess Profile reflects 2 x 400 for 800 mg/day. But it sounds like the effects of anemia; exhaustion, lethargy, headaches and fuzziness. Should see your doc very soon and get that addressed.
Forgot to ask -- did you have any viral load tests yet, and if so, at what week(s) and what were the results.
The description of your side effects sound very common for treatment. Important is what was your pre-treatment hemoglobin and what is it now? Also, if I may ask how much you weigh because 1600 mg/day is kind of on the high side. If I read you correctly, you're taking 800 mg twice a day which would be a total of 8 pills a day if each pill is 200 mg. Your ANC isn't that bad, but as mentioned, your blood should be monitored on a regular basis.
-- Jim
the absolute neut ct will be helpful and when my neuts were going down i was given neupogen and my dose of peg was reduced until a recovery was noted and i was also tested weekly when blood test were showing abnormalities. i would ask your doc about testing you weekly and keep on him or her until you are getting the answers you expect.
the weekness is a part of tx but it is not always the answer for what might be going on. if you feel really bad go to the er and get tx make sure everything is working properly and if there is a question have them get your doc on the phone. maybe he will get the urgency of your concerns realised and start giving you the standard of care he is supposed to be giving you. if you feel like he is leaving you out of the loop then you need to tell him that and if he does not appear to be receptive to that there is always his boss.
hang in there. : O )
p.s. your tx is more important than his golf game!
My hepatologist always looked at my ANC, absolute nutriphil count.
Your symptoms all sound very normal. I had days I couldn't do much more than eat and lay on the bed. Neupogen may give you more energy. Personally I hated the stuff and would avoid it if possible.
It is extremely important that you have a doctor you trust. Good luck