seafood/beach walks and Liver disease/ Vibrio vulnicus

[merryBe]

here's more info on the reason raw seafood/shellfish and even ocean water can be dangerous  to liver patients, especially those with high iron levels.

http://www.ebi.ac.uk/2can/genomes/bacteria/Vibrio_vulnificus.html

[Fl_Gator]

My dad contracted Hep (?) from eating in a seafood restaraunt, he almost died. He didn't have anything wrong with his liver before he ate there. I know my dad almost died...I know this because my mom didn't leave his side (mom is an RN and not one who is sympathic to injury or illness). We weren't allowed to see dad and my mom came home one day shot all of our kids to avoid spred of the virus. This happened in 1994 and dad sustained substantial liver damage.

If you are SVR but still have liver damage and caught what my dad had, I would think you wouldn't make it.

[jmjm530]

Of course check with your doctor per your individual situation, but staying away from the beach sounds a bit extreme and probably unecessary unless you have open wounds and the water is warm.

MerryBee -- has a liver specialist actually warned you against the beach or are you just exprapolating that advice based on your own research?

As to raw seafood, oysters, etc -- does anyone know if someone SVR is any more at risk for serious complications than the general public? Regardless of the answer, probably a good idea not the pack away the raw oysters like I've been doing lately (already gave up Sushi because of the salt content) , so thanks for the reminder.

-- Jim

[Isobella]

You are gracious Merry.  But I must clarify-----I haven't even STARTED to treat yet and already the moods strike!  :-)

Information is powerful medicine. I cannot imagine where I would be today without all the knowledge you and others have given.  Nothing I will learn here can disturb me anymore than my initial diagnosis.  Omgoodness-anything I can learn here is more like a life preservor.  Quoting all that technical stuff makes me sound smart too!!! So, once again thanks for the knowledge......

Wishing ya all the best!!!

Izzy

[merryBe]

LOL...like everyone in here hasn't been in a mood...or ten...
not to worry....I know sometimes it's hard to bring up subject matter....
I'm missing my crab louie along with everyone else.....
so....no fresh crabs made you crabby???  
me too...in fact if I lived beach side (always a dream) I'd be majorly bummed by this thread!  (You'll notice the longer you are in here that everyone goes a little reactionary from time to time....try not to worry about it...we all do, and most will admit it later...or make nice. A lot of this goes with the meds....they tend to make everyone hyper-sensitive to things).  The key as always, is give the grace  you yourself would want to receive...that makes every day a little easier when we remember it.

As to sticking to ones guns...well, I think we all need to speak in our own voice, and I'm inclined to think my delivery system can always use working on, even though none of us will ever be perfecto. Some in here have the gift of hugs....and I envy them that...but as long as we are all trying in our own way to help one another, that's what really matters.

One time I only half jokingly suggested there should be a "deep space nine" area in here..where no newbies could go...so they wouldn't get scared.
But in the end it was shot down because after all, even the innocuous threads often turn into biology lessons..even on the social side it happens...so the only way to stop newbies from discoveries about things like this, occult HCV etc, would be to stop discussing them entirely; which is of course the antithesis of why Medhelp was created.
It's here so we can learn as much and get as much support as possible for our diseases.

Sorry you are having a time with the Riba....it gives "choosing the blue pill" (ala the Matrix movie) a whole new meaning....and trying to kill all those nasty Mr Anderson's is no picnic is it!! Nasty replicator virions..grr...
Anyway, thank you for the encouragement....you hang in there!!
MaryB

[Isobella]

When I originally responded to this thread I was in "a mood" for lack of a better word.  I apologize. You provide good information.  You make yourself clear and stand by your words.  So-imagine my surprise(embarassment) to see this thread come back to life!  

Funny thing is tho, living on the beach-sometimes- if the wind blows a certain way-I will break out in hives!  All is relieved by a cool shower and some benedryl fortunately

But please excuse my earlier mood.  Even before the official brain fog and riba rage of treatment have taken their toll on me, I can prove to be.........um, ........(fill in the word here!)  (please don't say newbie-cuz by the looks of some recent posts I am now an oldie)  :-)

People....please go to the beach and please don't eat any raw food-especially today's tomatoes!

Isobella

[Trinity4]

I understand why we should use caution when eating raw shellfish and yes, we should avoid certain things if they can cause our bodies additional harm but in this country it's too difficult not to be exposed to what is in our public water systems, restaurants, groceries, food processing plants, you name it and we are exposed to it.  If we actually KNEW what we are ingesting and what we come in contact with on a daily basis it would probably cause shear panic. I just try to use common sense and avoid the things I know are bad for me and hope it all works out.  I can't become preoccupied with what could be potentially be bad for me.  So far it's worked and I love sugar, fatty foods, red meat and the greasier the better. Everything in moderation and I think I feel pretty good except for fatigue.  Haven't gained a pound and cholesterol is fine.  So do we really know what the answers are?  
Trinity