shaking + feel heart beat

[MedoZero]

Hi my friends ,
              Well **** i think every time i have to say this i am Hep.C ok now for like one year i can feel my heart beat i mean even see my body shaking from it ( may be as i am very thin) ... also i feel  inner shaking since 3 monthes i can feel things shake in my body  inside i don't know how i describe it .. My hand sometimes when i do hard sports like left weight and so on it shake like hell that i cant even hold a glass of water.. but after i get rest it gone ...my inner leg shakes ... damn even i feel that my inner eyes shakes. i dont know may be my work time which is 16 hours starting from 10 pm till 2 pm ( yes 10 pm this day till 2 pm tomorrow > then eat and sleep >> may be it is the reason of the inner shaking may be my Hep.C > I dont know what to do ,,, I am afraid i will be like this 4ever then i can't even do love to my girl ( shaking man can't have sex )  so i will not marry ,, :( :(
**** that Hep.C F*Cked Me..........
PLease Advice Your Bro .

[ceanothus]

I just found this newly revived old thread because I noticed Idyllic posted on it. I would really like to encourage you, ImReady1, to spend as much time as possible on this site and at http://hcvadvocate.org/, educating yourself on the stages of liver disease, on standards of care and treatment protocols, on the new drugs and their expected dates for hitting the market, and on the symptoms of advanced liver disease. Be cautious about other sites - some are good, but some are very bad misinformation, usually with some kind of profit motive. If you learn all the basic facts first you will be able to recognize the bs when you see it. Your doctor is right on in wanting you to have a liver biopsy and an abdominal ultrasound. A liver biopsy is the only way to accurately measure how much damage the virus has already done to your liver. It would categorize the damage as stage 1, 2, 3 or 4, with 4 being the most damage and also being the line where cirrhosis begins. Any patient with cirrhosis seriously needs to have an evaluation every six months, including blood tests and an ultrasound to screen for liver cancer. Having Hepatitis C for many years and especially once the disease has progressed to cirrhosis, significantly increases your odds of developing liver cancer. It has no symptoms until it has progressed much too far for any hope, so it is critical to do the scans frequently enough to catch it early. Having cirrhosis also makes the treatment of HCV  likely to effectively eliminate the virus, as the scar tissue in the liver interferes with blood flow in the liver, which means there may be pockets in the liver where the virus can be hidden from the treating drugs. Your doctor is recommending a biopsy because if you are at stage 3 you probably shouldn't wait for treatment and if you are at stage 4 you probably can't wait. Cirrhosis increases the risks of adverse events due to the treatment drugs, and in some cases the tx may push the cirrhotic liver right into decompensation or even into failure. Decompensation is very much something you want to avoid if at all possible, and if it has started already (which may be your situation if you have elevated ammonia levels) you really should be pulling out all the stops in your efforts to keep it from progressing. If it decompensates very far then your only options become either a liver transplant or death. 

Your doctor may have been a little too optimistic (or maybe you just heard it that way) in saying that in one year there will be a one pill cure for HCV. There are many studies underway now and we almost certainly will have a new interferon-free tx on the market within a few years, but I've not heard anyone promise one pill in one year. I just hate to think of you waiting for a new  drug only to find that it takes too long to get to market and your liver might fail in the meantime. Living as healthily as possible is great in that it avoids adding any additional stresses to your liver, but no amount of living healthy (and no supplement either) is going to stop the virus from continuing its assault on your liver. We have at least one member, OrphanedHawk, who was living a perfectly healthy lifestyle with exercise, zero alcohol and a vegetarian diet, and she still ended up with badly decompensated cirrhosis and needed a transplant to survive, and then she still had to follow that transplant with interferon treatment as the virus will otherwise destroy the new liver within about 5 years. She succeeded with all of it and is now free of the virus and living with a healthy liver again, so happy endings do happen, but if she hadn't been doing all the recommended tests and doctor visits, well, who knows how it might have ended.

The reason I'm putting so much effort into trying to persuade you to get that biopsy and ultrasound is because your elevated ammonia levels are a huge warning flag that you may already be experiencing decompensated cirrhosis. I'm afraid you may be running out of time already. Please call your doctor and schedule those tests.

FYI, my own history: I'm a 58 year old female who was given a tainted blood transfusion during back surgery in 1984. I developed an auto-immune arthritis in 1986 and the complete work up for that led to the HCV diagnosis. I had a biopsy around 1989 that showed Stage 1 fibrosis. I had annual scans and blood tests after that, until I had an unrelated major abdominal surgery in 2004 in which they discovered that my liver disease had progressed to stage 4, cirrhosis. I've treated twice without success but am currently nearing the end of my third tx and things are looking much better this time. This time it was triple tx, with Incivek, Ribavirin and interferon. I've just begun week 43 out of 48, and the virus has been UND (undetectable) since week 8. If I didn't have cirrhosis my statistical odds of SVR (sustained viral response) would be about 85%, but because of the cirrhosis they are 64%, but still good enough to support strong hopes. I do hope very hard too, because I don't know if my liver will stay healthy enough to be able to try the next round of drugs once they finally come out. This current triple tx is really awfully hard on me and has really almost eliminated a whole year of my life, as I've been too sick from the tx to do hardly anything (another example of the side effects being worse when the liver is more damaged). Nevertheless, it will be totally worth it if I'm SVR, and might possibly be worth it even without SVR, as it has given my liver a very long break now from the daily assault of the virus, so I might have some general health improvement even if I'm not SVR.

I hope you can take this rather long email as the very concerned and caring offering it is intended to be. If it seems preachy, I apologize for that. I'm trying my hardest to just offer up my own hard-won knowledge in the hopes of helping you avoid some of the worst possible outcomes, the same things I'm trying to avoid. I wish you all the best!

[Idyllic]

Sorry no one is responding to your post. The thread is originally five years old and very outdated.
Tx is an abbreviation for the word "treatment"

Here is a link that has all the abbreviations we use:
http://www.medhelp.org/health_pages/Hepatitis/Hepatitis-C-Acronyms-Abbreviations/show/3?cid=64

You might want to re-post and start a new question. There is an orange box on the top right that says, "Ask a Question."

_____________________________
"I'm not wasting the money to do the biopsy, or the "sonogram", I'm waiting on the new pill."

Hepatitis C is a disease. A biopsy reveals the stage of fibrosis you are. There are a few other measures such an an ultrasound. Knowing how advanced the disease is means you can make an informed choice of when to treat. Elevated serum ammonia can be a huge alarm bell - but I am reluctant to paint a possible scenario without more facts about your medical condition.

I read some of the posts about taking BHT for Hepatitis C on the forum you mentioned in your post. I am so sorry you got scammed. 18 months is a long time to believe you are ridding yourself of a virus.
Best of luck to you

[jerialice]

(so nice of you to add so much info for this guy- he sounds like he needs a serious work-up and your symptoms sound a lot like his. my mom had cirrhosis and and took the liquid and you are right about how much that helped....)
and to the poster: do try somehow to get some medical help!

take care

[ImReady1]

I'm wondering what "tx" means. I know it's the abbreviation for my home State, but, it isn't what it is used for in this forum. I've seen it elsewhere too. Will someone explain it to me? Here's my story about "shaking"...I've had Hep C since 1990. Here's the post I just posted in Life Extension Forum's web-site: I had been convinced that BHT would likely destroy Hep C VIrus. It didn't do it for me. Here's the post:


  I've been tested again, after 3 months of BHT. (about 18 months since last CBC test, and viral load test) ALL of my former tests are just the same as my current ones. BHT did nothing for me. I visited a doctor, he found that my "Ammonia" level is too high. He put me on a liquid form of some kind of laxative. I've been taking it for over a month now. The ammonia, apparently, was effecting my nervous system. I had pretty serious "tremors and shakes" for a long time. After googling about high ammonia levels, I found this info about the symptoms of ammonia in your blood:
Memory loss, especially short-term memory, occurs commonly as we age.
Additionally, patients with hepatitis C virus infection (HCV) sometimes
complain of memory problems.  Two HCV-related reasons for this are
brain fog and hepatic encephalopathy (HE).  Brain fog is a non-medical
term commonly used to describe a feeling of fogginess that some people
who have HCV seem to experience.  You won’t find the term in a medical
reference book yet many HCV patients report having brain fog.  The
glossary on the Hepatitis C Support Project’s web site defines brain fog
as “mild mental confusion, memory loss, and/or lack of concentration and
alertness.”  At this point we don’t know what causes brain fog, but we do
know that people can still function and have meaningful lives in spite of it.
We do understand what causes hepatic encephalopathy. In advanced liver
disease the liver cannot properly metabolize and detoxify everything that passes
through it, so toxic substances can accumulate in the blood. Ammonia is the
most common of these, although other substances can also build up.  Ammonia
is toxic to the brain and central nervous system, and too much ammonia in the
blood can lead to impaired brain function, including changes in behavior and
consciousness.  There are successful treatments for HE, so anyone with these
symptoms needs to be under medical care.
Note: people with moderate to severe he should not drive and need
support in order to get help and manage their lives until treatment
restores their ability to think more clearly.
Do not panic if you become forgetful.  Panic will only make things worse.  It is
normal to forget how to add, but abnormal to be confused about the concept
of numbers.  It is alright to forget where you put your keys; forgetting what
your keys do is cause for concern.  There are many treatable conditions that
can cause cognitive impairment, so it is important to obtain a good medical
evaluation before jumping to conclusions.
SO, I'm saddened that the BHT didn't stop the virus, but, happy to find out about the ammonia level. After studying the symptoms, I found many that I can relate to. I'm a carpenter, and I've noticed for a long time, that I have trouble keeping 3 or 4 measurements in my head, and I can remember saying about 10 times over the past year, to my employees: " Man, I guess I'm just getting sloppy. I hardly ever make mistakes, and I'm doing it over and over".....I have had trouble holding things in my hands, for instance. I remember dropping things many times, like a glass of tea or something. I am aware of my feelings of the "overwhelming" things I have around my property. After 35 years of remodeling, house repair, construction, I have  a LOT of things around here. I can look at it, and many many times I've said: "Man, I just don't know where to start" concerning organizing my things. I have about 5 different places on the property that I have things stored, and, if I need something,  I have to start at the first one, and check ALL of the places. I have no memory or organization skills anymore. AND several years ago, I was the best in the world at keeping my thoughts straight, keeping things where I can go to them instantly. I've just been "overwhelmed" by the projects facing me.  It is the high ammonia in my blood that has been affecting me. I didn't have a clue until seeing this doctor. OH yeah, the doc wants me to have a liver biopsy to see if I can make it another year without the "Interferon," and other things they give for Hep C now. The option is, according to him, "Wait till next year, they are releasing a drug; ONE PILL, ONE CURE FOR HEP C".....Now, that sounds fantastic, and almost unbelievable, but, this doctor had no  reason to lie to me. HE actually wants me to get on the interferon. I told him NO, I'm not wasting the money to do the biopsy, or the "sonogram", I'm waiting on the new pill. He seemed a little put out with me over it, but, I do not want the drugs in me. TOO many side effects. PLUS, the new pill is supposed to have no side effects!!!!! SO, that's my story. The doc said there is no way for me to find out about the drug, it isn't that far along to find it on google. SO, I'm waiting. I'm eating healthy, and waiting. I have eliminated almost everything that hurts  the liver, and, now, with the new laxative the doc gave me, I feel better, My shakes are almost completely gone. Not quite all the way, but, when I get plenty of rest, I am much more steady. I hope this post helps someone. Maybe you have some of the symptoms of a high ammonia level, and were, like me, unaware of the cause. If it gets high enough, you can go into a coma, and actually die from it. Of course, your blood is supposed to be pure, and we're cursed with the Hep C virus first, and most likely the high ammonia level as well. The liver is supposed to remove the toxins, but, isn't doing a good job; I've had this disease since 1990, after getting blood in practically a third world country. I was in the USVI, St Croix, in a "salvation army" tent hospital after Hurricane Hugo blew the regular hospital away in 1989. SO, I have serious cirrhosis of the liver. This is the cause of the high ammonia in my blood.
Blessings to all!!! May we all be healed!!! (while still on Earth!)  

[FaithforHealing]

If as ladybug said, you are not able to get medical help for fear of the HCV being discovered, you are in a tough situation. Obviously you need to see a doctor and have a work up, but you won't do that. I don't think anyone can dx you without labs. Did you consider your problem is not HCV, but something far more serious, or maybe requires you to start tx asap like MS? You have to figure out how to get to a doctor.

[nicktutty]

Dude it is simply a minor misalignment in your back putting pressure on a nerve and because you can now feel your heart etc you will start to have anxiety like symptoms which will snowball. Just go see a chiropracter, they see that exact thing all the time

[working dog]

repeated strenuous physical exersise can make body parts shake...if i use a heavy nail guns pulling around hoses for a week or two every day my arm and hand shake when i try to drink something....this can last for a long time ...months sometimes.....your problem may come from c5 or 6 in your neck....maybe bone spurs or inflamation around nerves...good luck......billy

[sfbaygirl]

Working 16 hours a day could make anyone shake like this! Sounds like you need more rest and relaxation. I wouldn't go as far as saying you will NEVER do this or that b/c of the HEP C. Things change all the time. Get some rest and see if that helps.

[madbrad]

Man al I can think of is my own experience...The only time I shook like your describing is when my Hemo got down to below 8.8 and down to 7.2...

     And what is happening there is that your Red Blood Count is so low your body s starving for Oxygen.....The one thing you haven't stated is if your on Tx or not....??

[nygirl7]

Yeah I don't think this has anything to do with Hep either.  

Are you experiencing panic attacks of any sort since finding out about the Hep? Maybe that could be something to look at.

[ladybug52]

Med, I know you don't always get a chance to post so I will answer for you.
He's not on tx. He is working in another country, not his own. If they find out he has hep c he will be deported. He comes here to ask questions because he doesn't want to lose his job or be deported.

[dperry10]

could be low blood sugar, that inner shaky feeling that is.  Thats how I feel if my blood sugar is too low,  Especially if working that many hours and not eating.

[jboyhk]

Anxiety alone can cause muscle tremors throughout your body.

Tremors could be caused by 1000 things but I don't think HepC is one of them.

Go to dr if you really find out. The internet is the last place to check for something so broad a condition.

[ladybug52]

Have you had blood work drawn lately? The shaking could be any number of other things, I won't even attempt to name them. Get some routine labs, they don't have to test for hep c  unless you think your elevated enzymes might alert them.
good luck,
Bug