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viral load drop

In a way the news I got today is very bad. My viral load began at 12,600,000. They checked it recently, aftet 10 shots, it is now at 220,000.

This is iffy. It is a good drop, but not 2 log. (what is log?)
My PA says I am almost there, so close, and would like me to keep on a little longer, maybe 6 more weeks. If my vl were higher she would tell me to stop now. If it were much lower the odds would be very good of me clearing. This VL is kind of borderline.

Now, my life is kind of a mess. My husband works 7 days a week day and night just to keep us solvent. My grandson, who I have custody of, is a wreck, at least part of the time. I am working to get him into a therapeutic school. My daughter is bipolar, and does not understand why I won't co parent with her or give her back her son. My grandsons current school is making all our lives harder. They call me for the way he LOOKS at people now. I am the backbone of my family normally. I make everyone ok. My husband is the breadwinner, I am the one who needs to bring laughter, perspective, calm to everyone else.

And I cannot. I need to lean on others on these meds and there is no one to lean on, not my 11 year old extremely troubled grandson, not my bipolar daughter whose heart is always being broken by me, and not my poor husband who is so exhausted he can barely spell his own name.

How much more can we all take?
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Avatar universal
From what I recall about your history this is wonderful news. Congratulations are in order. My Mom always said to look on the bright side. Mike
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WoW.  stubborn little buggers!   Your persistance is getting to them.
congrats.
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Avatar universal
I'm so sorry with all you've been through.  I can definitely relate to your struggles.  My son has been mentally ill his whole life, he's 22 now.  He's been living in numerous different psych hospitals and is currently in the state hospital.  He's got schizo-affective/bipolar type.  

As far as being alone in your struggles, lean on the Lord!!

I've lived a single life for the majority of my adult life.  I am married but my husband has NEVER lived with me and we are just hanging on in name only.  My husband has decided to live with his mother and take care of her instead of being with his wife.

As far as my hep goes, this is my 5th treatment.  I had some good news on that front, the other day.  After never making it to remission, my last viral load has dropped to 100 copies after 15 months of treatment!  My doctor had already started to wean me off my drugs (I was on high dose+daily shots), so now he wants to continue weaning me off and then recheck my PCR next week.  I want to encourage you to stay on your treatment because if I could drop after 15 mon. then, your doctor needs to give you more time.

Susan400
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Avatar universal
I'm not on tx yet but I can still relate to having everyone depend on you. You tell the schools to back off. It's not your responsibilty to do the school job. Just figure out the prioritys and take care of them in your own time. Major priority is getting yourself well so, please set aside some time just for youself----so you can rest, read, or anything else that YOU enjoy.  Maybe you and your husband can rub each others backs!
Lean on me anytime you like.
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Avatar universal
Sounds to me like you're making it, though maybe not as fast as you had hoped.  I hope you start feeling better soon,  Dave
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Avatar universal
first off, thank you all. Second, how do I find email addresses, I believe there is a way but ???  Indiana, I will mail you if I can find out how. Are you in Indiana? I am in Chicago.

ok, the real deal. I totally trust my doc. He is Dr. Steven Flamm at Northwestern University hospital, and his main focus is Hep C. He is a biggie in this part of the world. My first gastro fired me when I had the retinal hemmorhage 2 years ago, She said I needed someone more specialized then she was, and sent me to Dr. Flamm.

Dr. Flamm does NOT think I am going to die of Hep C. My liver biopsy has NOT worsened in the last 5 years, and my blood work has been good all along. AND the fact that I don't drink is strongly in my favor , for those folks who think maybe they can drink and not risk a lot of damage. In other words, my liver functions well. I do believe in MY case, (not eveyone's) I have a choice about tx.

But I am symptomatic from the hep. That is why I am on tx. I have a LOT of fatigue, leg cramps, and a lot of stomach problems, all of which are probably caused by Hep C. IF I have a good chance of responding, of clearing, I will stay on it for the duration.

I am committed (barring unforseen stuff) to staying on till my next blood work, April 12th. By then I will be at week 14 or 15. Today they put me back up to 800 of riba. I started at 1200, after around 5 weeks I was taken off riba for a week, because of severe mouth sores that would not heal. They put me back on 2 pills aday, then 3, now 4. My lab work is excellent, they tell me. I am still within normal for both red and white blood cells, which I am told is really good at this point? Yes?

My psyche is what is really bothering me. I am like a stranger to myself. Now, I am NOT the most tightly strung person you will ever meet anyway. I did not shoot heroin for 10 years because I had my act together. I shot because I wanted to numb the turmoil in my head. I have worked very hard for 18 years to become a better and more stable person. I CANNOT and WILL NOT go backwords mentally. I am already on the maximum amount of an AD, and I have tried a number of ad's in my life.

People are depending on me.

So, I will see what happens. I will see Dr. Flamm. I will see what he recommends. I will see how I feel.

You guys are wonderful. You are prime rib and lobster, not chopped liver. But you cannot be right here keeping me from going off on the school, or my grandson. or my poor exhausted husband. You cannot be here when I am wondering how many ambien will be an OD.

I love you guys. I plan to keep trying for now. We'll see what happens.

Thnaks again.
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