week of UND + 36 approach to extended tx

[wyntre9]

I'm continuing to weaken and considering cutting TX short; instead of the 72 weeks for slow responders I'm thinking about the study (can't remember the name) that said to add 36 weeks to the date of UND (mine was week 17).

Does anyone know the name of that study and does anyone have feedback about that approach?

wyntre

[wyntre9]

Yup - I'm at week 56.  Ironically, I have felt almost normal for the past 2 days.  If tomorrow is tolerable, guess that means i should do the 200 mile RT Gastro visits on Mondays instead of later in the week.  It drives me nuts how everything in your life revolves around treatment.

Best of luck with your 6 month PCR and be sure to post results.  (gotta be SVR for you).

wyn

[ponyshel]

I wanted to add my 24 week pcr should be in this week...thyroid is not right yet, patience..

[ponyshel]

Hang in there as it gets bad esp. around the 56-??72 ...I was so sick and tired of it also. Try to relax and ride out the bad days. It gets really hard nearing the end but when you are finished hopefully all will look up. Hugs :) shelly

[wyntre9]

Elaine,

you are such a doll to help us all out.  thanks for saying that Nick is incommunicado on shot nights.  i have no one to speak to, anyway, except for the flock, which studiously ignores me on Fridays, so i guess my stress must go through the roof in anticipation - of what, i never know anymore.  For example:  i felt GREAT yesterday, day after peg, and even managed a 20 minute walk in a nearby park and then a sightseeing tour!

guess I'm just a greedy little piggy; wanna feel good ALL day EVERY day!

Glad to hear Nick is on maintenance dose.  From what I've read, that is a good strategy.

MYS,

Oh yes, please post what your friend's Dr. said.  Mine doesn't talk much but he always makes sure i get my meds and contacts me the second my blood levels go into alert.

wyntre

ps - Elaine, now that I know YOU know, i'm gonna haveta try and post a happy thread next week.  *LOL*

BTW - so where is wanda?

[MYS]

Hi, I know someone who was UD at week 12 and her doctor convinced her to do 72 weeks of treatment, she just finished about 3 weeks ago.  He had wanted her to do 84 weeks of treatment, but she thought that was overkill.  I think her doctor had this planned all along - recommending that she extend.  He started her on riba 4 weeks before her first injection, hoping that she'd go UD by week 4.  When she didn't, but tested UD at week 12, I think he knew he was going to suggest that she extend, but didn't tell her until she was very close to finishing the 48 weeks.  
This doctor treats a lot of Hep C patients, and I think he's seen far too many of them who were clear at 12 weeks not reach SVR.  
The percentages of SVR go up dramatically the longer you stay on treatment.  If you'd like, I can ask her what her doctor told her they are.  
MYS

[wyntre9]

Thanks for the kind words.  It sounds like you have been tortured by SX!   Far worse than me.  That's another reason I post this type of thread, I think, to understand how much worse others have it and try to put my measly discomfort level in perspective.

Still, I NEED to express, vent, connect, at least on Fridays when i do the shot!  *LOL*  

Elaine, you picked up on that!  It seems to be the ONLY predictable thing about TX right now.

Amazon, are you scheduled for the 72 week TX?  What is your genotype and VL?

wyntre