Aa
whats going on
im a 19 year old female
in feb of 2004 i was told by the emergency room i had either hep a or b then i went back 4 days later because my conditions were worse {jaundice, iching , vomiting, weakness, and fatigue} they then told me all hep test came out negitive and admitted me into the hospital for 8 days with no answer to what was going on. i then was told to follow up with a gi and i did so and have been for the almost 7 months and he has decided to do a liver biopsy since my liver panel test are showing my results to be elevated and haved returned to normal since then i have developed a pain in the left quad muscle in my leg and show signs of quagulated blood i have also lost about 30 pounds and am down to 100pds i would like to know what my doctor is looking for? and what question to ask him to better understand what is going on because i feel really confused
in feb of 2004 i was told by the emergency room i had either hep a or b then i went back 4 days later because my conditions were worse {jaundice, iching , vomiting, weakness, and fatigue} they then told me all hep test came out negitive and admitted me into the hospital for 8 days with no answer to what was going on. i then was told to follow up with a gi and i did so and have been for the almost 7 months and he has decided to do a liver biopsy since my liver panel test are showing my results to be elevated and haved returned to normal since then i have developed a pain in the left quad muscle in my leg and show signs of quagulated blood i have also lost about 30 pounds and am down to 100pds i would like to know what my doctor is looking for? and what question to ask him to better understand what is going on because i feel really confused
Hey !.. How are you?? sent you email... last time I heard from you , you were doing so hot..have been concerned.. ..glad to see you on.. hope it means you're doing better...Carol
We must have been posting at the same time!!!! Why are you up @ 2:40am????? LOL I tried to sleep and I couldn't! I'm going to try again!!!!! Nite all! See ya later today....hhen the sun is up???? YIKES>>>>we don't have hep c...we are VAMPIRES!!!!! LOL love @ prayers, Cindee ;)
It's always great to have someone come in here and tout their own horn non-stop. And then tell us poor peons how we just wouldn't be able to live without their superior wisdom.
Strange thing is though, hundreds upon hundreds of very fine people from here have somehow made it all the way through tx without your precious knowledge.
Thanks for dropping in. Don't let the door slam your ass on the way out.
TnHepGuy
Strange thing is though, hundreds upon hundreds of very fine people from here have somehow made it all the way through tx without your precious knowledge.
Thanks for dropping in. Don't let the door slam your ass on the way out.
TnHepGuy
hahaha.. so do you!!! time??? what is that... my internal sleep clock has been broken and unrepairable for YEARS!!! Vampires??? I used to be one for the Red Cross...haha...as for lack of sleep, besides being a nurse and a mom.., I think in a previous life I was an owl and a wolf... don't remember anything about being a 'bat' though...LOL.. anyway.. as the saying goes.."..they only come out at night!..." sweet dreams all..and may your 'sides' be non-existent!!!
Just to let you all know, I have spent thousands putting people through treatment who couldn't afford it, getting individuals on treatment assistance programs who would otherwise not be able to afford treatment, I volunteer 24 hours of every week to specialized care in HCV. I know a lot of "tricks" to keep side effects at bay. Like drinking 75 ounces of water a day, not smoking or using caffeine, stay away from canned or frozen foods, eat eggs, avacados, broccali, I have tons of very on the edge info... I go to seminars and am in touch. I keep very hands on. I am myself undergoing treatment. Obviously I have some problems, that's why I am on a liver transplant list!!!
I do not waste my time whinning. I help everyone who comes into my agency whether they can pay or not.
Thank you for not knowing a damn thing about me, and not even asking? I wanted to know a serious thing about someone who thought they might look ill, I asked because I ws concerned about they thought, so I could offer feedback...Again, I hear negativity and people who have excuses to stay feeling sick and sorry for themselves. What you believe becomes true. If you think it will happen, it will. Hair loss? Yes, I've experienced it, gave some tips to minimize it. Sleeplessness, yes, me too...been to the insomnia clinic, offered what I'd learned. Sun sensitivity, yeah, every retroviral does that to you....But you folks don't want advice, because you are too busy boo hooing your situation and stuck in your own mud. You can't break out of your own blinders for one moment to listen or try something different. I swear, it's too depressing on this site, too negative, and stress and all that isn't good for the liver. This is the absolute last time I will post. I do have a lot to offer, but I think I'd rather give it to the medically indigent folks who come to my agency and are grateful for the place that offers hope, help and cheer. Not gloom, doom, and people who are unwilling to try or bend to anothers ideas. You think you've been through it and know everything, so good luck to you, but I don't think you learn by being closed minded. I'm sorry I ever got involved here, I thought at first it was a good place to exchange emotions, ideas, hope, but it's not, it's full of rejection and "nay, can't do this, tried that, didn't work, and blah blah blah." My bad. Thought this was a different sort of site. No wonder Docs get fed up with patients like you. I've never come across such a bunch and I work with addicts, HIV+ people, HCV infected people, people a stone throw away from death who are happier, more positive and lead more positive lives than you folks sound as if you do. I'm sad for you. Hope you get some help, you don't have a clue who the person you've just run off is, but you may someday end up in my office, and I'll recognize you from your defeatest attitude.
I do not waste my time whinning. I help everyone who comes into my agency whether they can pay or not.
Thank you for not knowing a damn thing about me, and not even asking? I wanted to know a serious thing about someone who thought they might look ill, I asked because I ws concerned about they thought, so I could offer feedback...Again, I hear negativity and people who have excuses to stay feeling sick and sorry for themselves. What you believe becomes true. If you think it will happen, it will. Hair loss? Yes, I've experienced it, gave some tips to minimize it. Sleeplessness, yes, me too...been to the insomnia clinic, offered what I'd learned. Sun sensitivity, yeah, every retroviral does that to you....But you folks don't want advice, because you are too busy boo hooing your situation and stuck in your own mud. You can't break out of your own blinders for one moment to listen or try something different. I swear, it's too depressing on this site, too negative, and stress and all that isn't good for the liver. This is the absolute last time I will post. I do have a lot to offer, but I think I'd rather give it to the medically indigent folks who come to my agency and are grateful for the place that offers hope, help and cheer. Not gloom, doom, and people who are unwilling to try or bend to anothers ideas. You think you've been through it and know everything, so good luck to you, but I don't think you learn by being closed minded. I'm sorry I ever got involved here, I thought at first it was a good place to exchange emotions, ideas, hope, but it's not, it's full of rejection and "nay, can't do this, tried that, didn't work, and blah blah blah." My bad. Thought this was a different sort of site. No wonder Docs get fed up with patients like you. I've never come across such a bunch and I work with addicts, HIV+ people, HCV infected people, people a stone throw away from death who are happier, more positive and lead more positive lives than you folks sound as if you do. I'm sad for you. Hope you get some help, you don't have a clue who the person you've just run off is, but you may someday end up in my office, and I'll recognize you from your defeatest attitude.
I am fairly new to this site, and have read most of the recent posts.. even went back to read a few previous ones. NOWHERE did I see anyone ask you nor tell you to leave the site!
I think that what happens with typed words, where you acnnot hear the tone and inflections in the voice, things are often taken the wrong way..
When I first read the comments where this seemed to start going downhill, I felt that those who have been on here for quite awhile, were simply tryinng to make the point that.. NO ONE should take anything or everything that is said on here as the gospel and go with it.. There are new folks coming on everyday,, who are very scared, confused and naive about the illness which has them in it's nasty web...
It is WISE for everyone to get all the info they can, and do research.. and take info to their doctors..especially since HepC IS NOT JUST HepC.. since it affects the liver, which in turn affects other organs and body functions, not only at different levels, but also at different rates.. there is NOT ONE set of definites for everyone across the board!! Then, when you factor in other medical conditions that each person may have, it is another game altogether!! The whole body.. the whole patient, has to be considered.. therein is the problem.. too many doctors are treating us like a disease.. and only one illness.. not as individual patients.. PEOPLE, with variations of disease... I was taking certain herbs , for instance, which boost the immune system, however, I have low platelets and a high clotting time.. as it turned out.. one of the herb formulas I was taking, also had a few other herbs in it.. one of which lowers platelets and increases clotting time..Needless to say, I stopped taking it.
What everyone has said is that we need to take charge of our health.. be informed and aware.. This site is for sharing information, stories, encouragement,laughter... it is for building each other up so we can all get thru this..
Those close to us who aren't sick, get tired of us being sick all the time.they feel helpless because they can't make us better... they want us back to our old selves... so people come on here to share with others who KNOW what they are going thru..That is NOT whining and being negative... That is SMART, and self preservation.
Most people I know find it hard to believe I am sick at all, because I "don't look sick"..so they aren't terribly helpful, and don't GET IT that cannot just "snap out of it".. I have seen so much love and friendship and encouragement on here.. There really is no room for egos getting in the way... coz we are ALL in the same leaky boat.. trying as hard as we can to plug up all the holes and stay afloat..til we one day have smooth sailing again!!
Sometimes perhaps the words come out in print differently than they were meant.. We all NEED all the info we can get, but we have to remember, that with this dragon,and all it's little mutated dragons, the game is ever changing.
I hope you will think things over, and contribute valuable information when you have it..what works for one doesn't work for all.. but if one person benefits from the info.. that is a very good thing.. one piece of info leads to another and another...
Well... THIS is just what I think and feel about the situation.. I wouldn't dare try to speak for anyone else..
Do what you must.. but it would be a shame not to share any and all info that is available..just because of words on a computer screen.... Sorry so long,, folks..
I am tired... sweet dreams!!!
I think that what happens with typed words, where you acnnot hear the tone and inflections in the voice, things are often taken the wrong way..
When I first read the comments where this seemed to start going downhill, I felt that those who have been on here for quite awhile, were simply tryinng to make the point that.. NO ONE should take anything or everything that is said on here as the gospel and go with it.. There are new folks coming on everyday,, who are very scared, confused and naive about the illness which has them in it's nasty web...
It is WISE for everyone to get all the info they can, and do research.. and take info to their doctors..especially since HepC IS NOT JUST HepC.. since it affects the liver, which in turn affects other organs and body functions, not only at different levels, but also at different rates.. there is NOT ONE set of definites for everyone across the board!! Then, when you factor in other medical conditions that each person may have, it is another game altogether!! The whole body.. the whole patient, has to be considered.. therein is the problem.. too many doctors are treating us like a disease.. and only one illness.. not as individual patients.. PEOPLE, with variations of disease... I was taking certain herbs , for instance, which boost the immune system, however, I have low platelets and a high clotting time.. as it turned out.. one of the herb formulas I was taking, also had a few other herbs in it.. one of which lowers platelets and increases clotting time..Needless to say, I stopped taking it.
What everyone has said is that we need to take charge of our health.. be informed and aware.. This site is for sharing information, stories, encouragement,laughter... it is for building each other up so we can all get thru this..
Those close to us who aren't sick, get tired of us being sick all the time.they feel helpless because they can't make us better... they want us back to our old selves... so people come on here to share with others who KNOW what they are going thru..That is NOT whining and being negative... That is SMART, and self preservation.
Most people I know find it hard to believe I am sick at all, because I "don't look sick"..so they aren't terribly helpful, and don't GET IT that cannot just "snap out of it".. I have seen so much love and friendship and encouragement on here.. There really is no room for egos getting in the way... coz we are ALL in the same leaky boat.. trying as hard as we can to plug up all the holes and stay afloat..til we one day have smooth sailing again!!
Sometimes perhaps the words come out in print differently than they were meant.. We all NEED all the info we can get, but we have to remember, that with this dragon,and all it's little mutated dragons, the game is ever changing.
I hope you will think things over, and contribute valuable information when you have it..what works for one doesn't work for all.. but if one person benefits from the info.. that is a very good thing.. one piece of info leads to another and another...
Well... THIS is just what I think and feel about the situation.. I wouldn't dare try to speak for anyone else..
Do what you must.. but it would be a shame not to share any and all info that is available..just because of words on a computer screen.... Sorry so long,, folks..
I am tired... sweet dreams!!!
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