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Avatar universal

( ( ( ( ( ( ( ROLL CALL ) ) ) ) ) ) )

WOULD IT BE OKAY IF EVERYONE HERE JOINED IN ON A "ROLL-CALL"!    I MEAN SOMETHING SIMPLE,  JUST A LITTLE ABOUT YOURSELF AND HOW YOUR DOING:        -example-

I'M STONEWALL611, GENO 2b,  GRADE 3-4   HOPE TO START TX LATE DECEMBER 2009 OR EARLY JANUARY 2010.     FEELING VERY ANXIOUS,  WORRIED,  HOPEFUL.  GUESS THOSE ARE GENERIC REACTIONS TO FINDING ONESELF IN THESE SUCH TROUBLED TIMES.   I DO BELIEVE THAT FROM THE MOMENT I WAS DIAGNOSED AND  CAME TO GRIPS WITH MY MEDICAL SITUATION AS A REALITY.    THEN ACTIVELY PURSUING MEDICAL INSURANCE COVERAGE AND ENLISTING SPECIALSTS,  TOO BE THE MOST DIFFICULT TIME OF MY LIFE TO DATE.  AND YET,  I FEEL CONFIDENT THAT I WILL BE OKAY.   GOD WILLING.

PLEASE BE THE VERY NEXT PERSON TO ADD TO THIS ROLL CALL!!   IT FEELS GOOD AND MAKES OTHERS FEEL GOOD TOO!!     "COME  ON  IN,  THE  WATER  IS  FINE"

28 Responses
220090 tn?1379167187
You have good taste in music.
Avatar universal
   Geno 1a
   Stage 4 grade 3
Probably had this 30 years. Was misdianosed for 3 years when my platelets got low in 2003....Went to hemotologist and dianosed with ITP an auto immune disorder. I went to a new Primary Care Dr in 2006 who properly dianosed me with Hep c.I have cirrhosis and have been evaluated for a transplant if needed. I txed once with pegassys and riba for 48 weeks and relapsed. I am in a boceprevir trial now.
             I get along alright.....
476246 tn?1418870914
Infected ca 25 years with geno 3a
DX March 2008
treated 32 weeks
stage 0-1, ca 3 months post tx
SVR

412873 tn?1329174455
Infected about 30 years
Diagnosed Jan 2008
Geno 1a
1/0
Tx'd 48 weeks in a Vertex trial
RVR
Still UND at 5 months post
Going for my 6 month post PCR on the 17th...hoping and praying for SVR

Tx wasn't fun.  But I'd do it again in a heartbeat.
751342 tn?1534360021
Infected between 1980-1988
Diagnosed in 2003
Geno 1a
1/1
Tx ed 28 weeks in SCH900518 Trial (quit at week 28 not week 52 due to sides)
Still detectable at week 16 ?? not exactly sure but I did not get good results on SOC. I got option to do Rollover Arm (I was in Control Arm - SOC in the beginning) because I did not make 2 log drop at week 12 but did make > 1 log drop. Completed the full 12 weeks of additional 2 study drugs.
Relapsed at 4 week EOT (VL 81, 000)
Viral load at 12 weeks EOT 105,000
Won't do it again unless I have to, unless they come up with a no interferon option. ( I think this may happen). Still having side effects but nothing unbearable (ears ringing). For the most part life is good post Tx!
374652 tn?1494811435
genotype 1 (not sure a or b) probably in 1971, discovered infection 2yrs ago around Xmas.  biopsy 2/2007 stage 1 grade 1 no insurance waiting....
will redo labs for blood work after the new year just to see.  (not that I really want to)
registered at local center for study, no word yet.  Sad to hear there wont be anymore PI trials.  waiting... for health care.
60 yrs old,, waiting and putting one foot in front of the other amazed every day when I wake up.  
May all being be free from suffering.
M4now
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