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1986676 tn?1329862471

What are some of the more subtle sx of treatment.

Recntly, I haven't had many sx. I'm on week 35 weeks. Now that I have only a few sides I'm uncomfortable.
Are the medications still working? I think they are, but I'm always questioning if they are.
Has anyone else had such an experience?

My biggest problem now is a lack of energy, but with too old parents I care for that might be normal.
Also, my hair has thinned. Not many notice that because I started with a lot.
I will be happy to end this treatment because after 35 weeks I really don't remember how I am suppose to feel.

Next viral load Dec. 5, 2021

Reva

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9 Responses
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223152 tn?1346978371
Reva, well, you have answered a question I asked on another thread which was how you were doing at week 35. It sounds like you have sunk right into a routine where treatment seems like the norm.   I remember those feelings.   Perhaps your parents' condition masks all that you are going through.  I haven't been regular enough here to know what that is, but I can imagine.   Seeing someone else decline must put hepatitis C treatment in perspective.   Still, I presume things are overall rough and I totally understand the anxiety.  February is a reachable goal.

Refresh my memory on why you are doing the 48.  What were your vl tests, and what is your liver condtion (if you don't mind).

frijole
Helpful - 0
1986676 tn?1329862471
Thanks...
I'm just feeling a little sorry for myself today.
It will pass...

Reva
Helpful - 0
Avatar universal
  That must be hard, and I am so sorry your parents health has declined.  
All that Interferon/Riba builds up in our systems, and fatigue is very common, especially so, for the 48 weekers. I have all the admiration in the world, for you, and the others I know, who have managed to deal with a 48 week Tx.  It takes an amazing amount of fortitude to keep going on~ Feb will be here before you know it <3
Helpful - 0
1986676 tn?1329862471
AlI can do is keep going now. I am tired but I will keep going.
I really can't explain how I feel, but I know Feb. can't get here quick
enough.

I still have the back pain, but it has not been as intense. I am however
totally depressed by my parents decline. I had hoped they would remain
strong through tx but that has not been the case.

My family members offer little support. My dads sister told me I needed to see two psychiatrist because I didn't support her involvement in my Dad's treatment. He was very angry with her. He was unreasonable, but I supported him. My mother's two sisters have been in denial with regard
to my mother. They've found every excuse in  the book to avoid discussion
of the situation. This all has been a bit much for an only child.

Thanks for your continued support this has been a journey for all of us.

Reva
Helpful - 0
1986676 tn?1329862471
Thanks, it's good to know I'm not crazy. These meds do such awful things.
My resolve has certainly been challenged these past few weeks.
I appreciate your supportive comments.

I am hanging in there because that's all I can do. Unfortunately, my parents who I care for seem to have their feet stuck to some banana peels. Hopefully, they will make it to Feb.with no serious injury.

Reva
Helpful - 0
766573 tn?1365166466
Hey you have gone through some really rocky periods since day 1. I remember how awful your last few weeks of Incivek were.  Then the crippling pain with Neupogen back in September & back pain in August.  I remember those things since I started Neupogen at that time. I only ended up needing a couple of injections though.

I just mean you have had such extreme side effects that your body has probably made lots of adjustments to be able to function as well as you are now. I think there is an ebb & flow of periods of being OK on these meds and then times they can really take their toll.

I am glad you feeling better and not so physically overwhelmed with side effects. The end is in sight! Just keep'a goin'!
Helpful - 0
1669790 tn?1333662595
Hey Riva, what you're feeling is very normal and very similar to my experience.  Not too many sx makes you wonder, is this a sign that the med aren't having any effect on my body and potentially the end result? Try not to worry.

My hair also went very straight and thinned.  Mine came back to normal shortly after eot.  48 wks is a long haul and you're right, you forget what normal is.  You're getting close, so hang in, won't be too long now.   Good luck on your next VL on Dec 5th.  Let us know.    
Helpful - 0
1986676 tn?1329862471
Please let me know week 4 results. My guess is the end results will be fine.
I didn't have many side effects at 4 weeks, but right after they started
and first twelve weeks were difficult for me.

Don't worry there are some who glide through treatment with little sx.
I think my anxiety is a result of me being very near the end of my 48 week tx. This treatment causes lots of anxiety because it's so "iffy."

Reva

Helpful - 0
3093770 tn?1389739126
Hi Reva
I feel the same and I only finished week 4. I have some headaches and I had for couple of weeks a rash around my knuckles and that disappeared yesterday.

I am almost saying please where are the side effects? I must not be reacting and my body takes it like is nothing....

I guess I will find out today as I am having my app for the 4 weeks results (fingers crossed).

We can only hope for the best (must be something good in the store for us)
Helpful - 0
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