Having a bad week!

[gizmoesgirl]

I had my second shot on Monday and I have felt awful since, I couldn't even stay awake on Monday! I woke up this morning after about 3 hours of sleep and my mouth is so sore, I have kankers or something in my mouth and my gums are killing me.  They bleed when I brushed my teeth.  Is this normal?  On top of all this I am trying to remain strong and take care of my family (10yr old daughter, my husband, and a 12 week old puppy)  but I feel like I am pushing and pushing myself to do things.  I don't want to let my famly down.  I really need to find a job because financially all these Dr visits and Labs are draining our savings and my husband is STRESSING over it.  I just don't know how Im going to be able to work but I have to because it is not fair for my husband to be stressed because of me.  Oh yeah then there is my ex (my daughters father) who is fighting for custody.  He had nothing to do with her when we lived in NH five minutes from him but now that we are 3000 miles across the country he wants her.  The courts already said I could take her here with me and that the custody would remain as it has since she was born.  However, he had a Gaurdian ad litem appointed and is still fighting it.  Now i have to go back to NH in January to fight him so more!!!!  He is NOT taking my child!!!!!!   Im just not sure how much more stress I can handle before I snap but I am trying my hardest to stay strong and not ask for to much help!  

Ok now that I unloaded alittle Im going to appologize, I know we all have our issues and mine are probably small compared to others but I had to get it out.  Im sorry!!!!  

Thank you all for listening!

[cajunldy]

I posted on your other thread.  BIOTENE, and you do not need a prescription.  WONDERFUL stuff for mouth sores.
Good Luck

cajun

[callmedorothy]

Hi...i was having the same sore mouth problem. I started using the CVS gentle mouth wash. it helped immediately.  I was also getting sores in the corners of my mouth. my doctor prescired Ketoconazole. It cleared up in two days.  the magic mouthwash i am sure is better..but the over the counter brand did the trick for me.

[palpatations]

Magic mouthwash is a script, it is made up of a few antibiodics. You need a  pharmacy that is still an apothocary and has a mortal and pesal. Actually I'm teasing here, there's no compounds to beat down it's all liquids. Call around your pharmacies to see who would make it before you get a script. There around. Good luck!  Have you tried any drug assist programs (Roche), medicaid, and or SS. Sounds like you might be a candidate for some of these programs.

[wyntre9]

I haven't needed the mouth wash so i can't remember the official name, but I know it's a presecription med.  If you do an archive search on 'Magic Mouthwash" you may find it.

Otherwise, I know for sure that Debnevada uses it so maybe you can contact her either through her forum email or flag her in a post.

wyn

[susan400]

I just wanted to throw my support in for you, too!  I know it's very hard and those extra stresses outside of your treatment are hard to cope w/while you're in the midst of the TX drugs.  I know it's hard on your current husband, but, doesn't he see that it's hard on you?  I agree Foreseegood, get your advocate (lawyer, etc.) to fight this in court for you!  Can you get any supportive meds from your Hep C doctor?  I know that lot's of people need to take antidepressant's, pain meds, or sleep medications during this treatment time.  Don't feel like you're weak or anything, if you need something to help your through it.  I don't know about the mouth wash but, maybe the pharmacist would be able to tell you.  My basic problems during treatment were nausea and muscle/bone pain, most than anything else.  I did have some depression and mood swings as well.  I found, for me, that walking was very helpful.  I didn't feel like it, 100% of the time, but it made it a part of my daily routine to at least force myself onto my treadmill for 10 min to 1/2 hr daily, or take a short walk around my parking lot.  It helped my mood and it helped my body aches.  And prayer....it works wonders for me!  I hope that any of this will be helpful.  Also, you can always get support here at Medhelp.

Susan

[gizmoesgirl]

Thank you so much for your support i truely appreciate it!  Wyntre where do i get that mouth wash stuff?

[Forseegood]

I agree with wyntre, unload all you want...only my puny advice, but you've decided to do this treatment, and I'm pretty sure you told your family that you'd be kinda "out of it" for the remainder of this treatment...

they are going to have to understand this...A lot of people will tell you, yeah, no problem, we'll get along by ourselves a little bit when you have to treat, but when it gets to the peddle to the medal, suddenly they have a big problem with it. It's a learning process for them too, and they will get by if you can't be there 100% like you usually are.

I think we women especially, do so much caretaking for others, that we feel supremely guilty when we can't do this perfect job that we feel is ours to do...and we take on as our fault, every mess up, etc..that happens in our own little worlds...But I think you need to be a little selfish now of all times...because as they say, you can't take care of anybody else until you take care of yourself first...I always use that airplane metaphor...if you have a child on your lap, they still want you to take the ventilator first, and get it together for yourself, so you can help your child...

If you're out of commission with this disease (I have no idea what your stats are) you can't help your family out in the long run, like you want to do...so you've made a commitment to this treatment, make it easy on yourself, as easy as you can make it, anything else won't do...if youre husband, or job, or whatever, suffers a little bit because of you having to do treatment, they'll be alright in the long run, just inconvenienced now....what's really important now is your treatment and getting through this.

You'll all be much better for your having done this. We all gotta go through a little hardship now and then, this is their turn now. Please realize I'm telling you all this, cause I really need to hear this myself, cause I know this intellectually, but getting it internally is a really hard thing for me to do, I caretake a great deal. As far as your ex-husband, get your attorney (or probono advocate, whomever) to see if they can get you continuances galore, or whatever they can do....because you're undergoing chemotherapy right now, see what you can do to accomplish this...there are people out there who get this stuff postponed or continued cause they find out how to work the system, not let it work you, if its at all possible. If he sees there's too much of a fight, maybe he'll back off for now, who knows. Best of luck with this, please take care of yourself. Only my opinions, and that's all they are.

[wyntre9]

So sorry for all the other problems on top of the TX.

The first month was rough for me, too, but then the past 12 months have been hard, as well.  if it's any consolation, you do get used to the SX to a certain extent and it's the rare person who doesn't experience any.

Be careful with your teeth, gums and mouth.  They can become sore during TX.  A lot of people on forum use something called 'Magic Mouth Wash" for sores  and cankers in the mouth.  I can't remember the official name.

You really don't need any additional stress in your life on top of TX but you have to do what you have to do.   Just be aware that if you push yourself too much SX can end up being worse.

Don't worry about unloading.  That's what this side of the board is for.

Good luck with your daughter.

Wyntre