Aa
Aplastic Anemia
My hep/gastro man that referred me to the Univ. of Miami called me last evening to see if I got into a trial. I advised him that I wasnt accepted beacuse I had hepB years ago..which he was aware of. He thought that issue was absurd but understood they wouldnt accept me. I told him I have the Pegasys in the fridge and ready for takoff on Friday. I also told him about my 75mil VL. He was not concerned about that. What he was concerned about was that 6 of his HepC patients came down with Aplastic anemia in the past 12 months.That usually is fatal..but sometimes can be treated.
Now Im terrified to take the Pegasys. He still wants Dr. Jeffers to try to get me in a trial I told him I just went thru this and its not goig to happen. He feels a P.I. is the only way to go...and with all the sx of Pegasys he'd rather see me not go that route. Im betwitched bothered and bewildered. Im going to crawl under a rock now and Im not coming back out. Ive had enough.
Now Im terrified to take the Pegasys. He still wants Dr. Jeffers to try to get me in a trial I told him I just went thru this and its not goig to happen. He feels a P.I. is the only way to go...and with all the sx of Pegasys he'd rather see me not go that route. Im betwitched bothered and bewildered. Im going to crawl under a rock now and Im not coming back out. Ive had enough.
Thanks for your reply. My doc said was due to the Peg and Riba this can happen. Its just ironic that 6 patients of his got this from tx unfortunately. Three out of the 6 did 72 weeks he said.
I know I have never heard of Aplastic before on this forum either or anywhere else pertaining to HCV.
ALot of things happen that we are not made aware of. I was just told this at the wrong time. WIsh he didint tell me. I want to start now. I guess I just have to pull myslef together a little more. Ive been thrown alot of crappola the past few weeks and nothing has gone accordingly.
Im really not overconcerned with my VL.
Just everything ya know??
ALot of things happen that we are not made aware of. I was just told this at the wrong time. WIsh he didint tell me. I want to start now. I guess I just have to pull myslef together a little more. Ive been thrown alot of crappola the past few weeks and nothing has gone accordingly.
Im really not overconcerned with my VL.
Just everything ya know??
Think you should call the doc and specifically ask him what he said, to put your mind at ease. When you read here that people are getting Procrit, it's to battle the anemia that can come from treatment. 6 out of 20 seems like a fairly high rate, but not exorbitant. I had it myself, or more accurately avoided it with a procrit-like drug. It's more the riba that causes anemia. My understanding is (anyone jump in and set me straight) is that red blood cells have a life of a couple-few months in which they do their thing. Riba cause the RBC's to 'pop' into oblivion - and die off at a younger age. Bone marrow cannot keep up with the production of RBC's to replace those which die at a young age. The result - anemia. The remedy - Procrit like stuff which encourages the production fo RBC's to keep up with the death rate.
Call ht the gastro doc and re-ask him about the anemia. There are several types of anemia and maybe he just mis-spoke.
Call ht the gastro doc and re-ask him about the anemia. There are several types of anemia and maybe he just mis-spoke.
I put a call into the office already. He will call me back. APLASTIC sort of sticks in your mind the way SICKLE CELL Does..you know? I know I heard right because we discussed this for over 20 minutes last night. Actually I thought he was surprised as to having 6 patients with this. When he discussd anemia I said well..procrit is given He said yes however this is APLASTIC.
I will post later when I hear from him he's an angel an a very reputable man.
thanks so for replying-bad night
I will post later when I hear from him he's an angel an a very reputable man.
thanks so for replying-bad night
http://en.wikipedia.org/wiki/Aplastic_anemia
In aplastic anemia the bone marrow shuts down. The red blood count, white blood count and platelets drop. It is an autoimmune problem. Now, we know that hep C treatment can, but not often does, cause autoimmune problems. I think this is curious. I don't understand why 6 paitents would get this but I am sure we do not have all the facts. Were they Dr. Jeffers' patients, or your GI's?
You are scaring yourself to death and others, I am sure. Why do you have Pegasys in the fridge if you haven't started treatment and are being considered for a trial? I don't understand. Once you take the shot, the anxiety lays down. Many of us get anemia, but for most of us, it is controllable.
frijole
In aplastic anemia the bone marrow shuts down. The red blood count, white blood count and platelets drop. It is an autoimmune problem. Now, we know that hep C treatment can, but not often does, cause autoimmune problems. I think this is curious. I don't understand why 6 paitents would get this but I am sure we do not have all the facts. Were they Dr. Jeffers' patients, or your GI's?
You are scaring yourself to death and others, I am sure. Why do you have Pegasys in the fridge if you haven't started treatment and are being considered for a trial? I don't understand. Once you take the shot, the anxiety lays down. Many of us get anemia, but for most of us, it is controllable.
frijole
very long story I did not bring all this nonsense on myself just a crazy situaion. Getting it from all ends. My hepatologist called me last evening and asked if I got in a trial I replied No. Starting Peg on Friday, I dont mean to scare anyone to death I just needed to question what was told to me .
I know all about the anemia that we all can get. Thats why I questioned the APLASTIC anemia because I never heard it mentioned here in the forum and my hepatologist that referred me to U of M made me aware of this last nite. So I questioned it. I didint mean to scare anyone. I couldnt possibly tell you the entire scenario it would take too long.
Friole-sorry if I ruffled your feathers-just a ridiculous situation the past few weeks.
I know all about the anemia that we all can get. Thats why I questioned the APLASTIC anemia because I never heard it mentioned here in the forum and my hepatologist that referred me to U of M made me aware of this last nite. So I questioned it. I didint mean to scare anyone. I couldnt possibly tell you the entire scenario it would take too long.
Friole-sorry if I ruffled your feathers-just a ridiculous situation the past few weeks.
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