Aa
Back in the Pokey...
I am SO over this. I am back in the hospital again at three months post treatment (since Monday night). Its my third inpatient stay since I completed tx (which I kind of thought was supposed to be the end of the process). I was finally able to get my friend to bring my computer to me tonight so I'm at least able to get online (hey, I was going through tech withdrawal, lol).
I am getting frustrated though. I just feel like I am never going to be well again and I'm three months post treatment. What is up with that? This particular hospitalization is for nausea and wound control for this wound I have on my leg that came up about a month post treatment. Then last night I had a fever of 102.
Truly, I had a better attitude and emotional outlook while I was treating, and although I was exhausted, I feel that in many ways I physically felt better than I do now that I've finished. I am nauseous frequently now and I seem to never feel well. I was able to be ok emotionally during tx because I felt like, ok, I'm doing this for a time limited duration so I can handle it. So more or less I had "control." You know. In my own mind. Which is where it matters. An illusion my body has thoughtlessly shattered here lately (thanks for that) lol
Anyway, I've given up on feeling normal again but am I ever going to feel even half way decent?
I am getting frustrated though. I just feel like I am never going to be well again and I'm three months post treatment. What is up with that? This particular hospitalization is for nausea and wound control for this wound I have on my leg that came up about a month post treatment. Then last night I had a fever of 102.
Truly, I had a better attitude and emotional outlook while I was treating, and although I was exhausted, I feel that in many ways I physically felt better than I do now that I've finished. I am nauseous frequently now and I seem to never feel well. I was able to be ok emotionally during tx because I felt like, ok, I'm doing this for a time limited duration so I can handle it. So more or less I had "control." You know. In my own mind. Which is where it matters. An illusion my body has thoughtlessly shattered here lately (thanks for that) lol
Anyway, I've given up on feeling normal again but am I ever going to feel even half way decent?
I had bad on first tx( peg intron) and it took me five or six months to snap all the way
back, so don't give up yet. we all would like to get well by tuesday but that aint how
the big guy set it up. hang in there.
back, so don't give up yet. we all would like to get well by tuesday but that aint how
the big guy set it up. hang in there.
What an incredible friend!!!
Wait --- here's some papers... Yep --- go nominate her! LOL!
Glad you're feeling better.
Glad you've still got that positive attitude.
You are an inspiration to me.
SUPER DUPER HUGS!
Meki
Wait --- here's some papers... Yep --- go nominate her! LOL!
Glad you're feeling better.
Glad you've still got that positive attitude.
You are an inspiration to me.
SUPER DUPER HUGS!
Meki
Fl Guy -- ha!
Deb - it makes me feel a little better -- well, not better, but at least more normal for this situation -- to know that I'm not alone then. Feel bad you're having such a hard time though.
Tee Vee -- thanks, that's very sweet
Deb - it makes me feel a little better -- well, not better, but at least more normal for this situation -- to know that I'm not alone then. Feel bad you're having such a hard time though.
Tee Vee -- thanks, that's very sweet
I hope that you are feeling better and don't have any more trips to the ER. So sorry that you are having a rough period post tx. Remember this too shall pass...I heard it can take a full six mos to really start to feel better. You are halfway there!
That is fantastic news about your mortgage co. You have received many blessings- don't lose your optimism now. I have always admired you and loved reading your posts/responses/advice/experiences etc.
My prayers are with you.
TV
That is fantastic news about your mortgage co. You have received many blessings- don't lose your optimism now. I have always admired you and loved reading your posts/responses/advice/experiences etc.
My prayers are with you.
TV
This, darling girl, is why I haven't posted as much post as i did when i was treating......it has taken me a long time to get anywhere and I am six months post as of today (had my six months post PCR drawn yesterday). i hate to be the bearer of bad news but it takes a damn long time to get over this **** and i've noticed, esp. for acutes. Improvement is very very slow and i'm still only at about 60 percent with some ongoing sides from tx.....drug-induced lupus and something else not so great. if you look back, say over a period of a month, you'll notice some slow improvement. not week by week but probably month by month.
deb
deb
Sounds like your medical adventures are costing you an ARM and a leg. Earlier this week I undocked my work pc to take it home (I usually don't). It was right after a day of use and that thing was as hot as an August day in an Alabama cotton field. Hope you feel better and try not to be so thin-skinned in the future.
All - you guys are always so great to make me feel better when I'm down. I never would have gotten through the past year without all of you (well, for one thing I'd still be sitting there with my initial hep panel thinking that my 63.1 positive test on my hep panel WAS the actual viral load -- oy, I would have wasted a lot of time delaying treatment by not immediately getting my PCR, never would have figured out the log drops, how to deal with the side effects, all that stuff. I am really grateful to all of you.)
Fl Guy -- The working theory now is that when I finished treatment my skin was so fragile that the foot on my laptop burned a hole in my thigh. Which makes total sense to me because it LOOKED like a burn and it hurts like a burn and it is shaped exactly like one of the feet on my laptop except larger. And it is very exact and even in shape.
They said that apparently when your skin gets so dried out by the treatment drugs it becomes more fragile and is more prone to laptop burns (not really sure what the tech is behind that though - would be interested to know how the dryness facilitates that) - and I theorize that since I was taking ms contin back then for the pain in my joints and bones, it could have dulled my nerve endings and caused me not to notice as much. I still sit with my laptop all the time and I've never had the problem again, but my skin quality has improved too. Also, I had such bad anemia, I frequently fell asleep with my laptop - sometimes that happens now but not nearly as often as it used to since my blood count is very stable now. I also had iron overload at that time, which may have changed my skin quality as well. Anyway, it is looking a little better today I think? and they are going to refer me to an outpatient wound center for it now.
Feeling a lot better today so that's great. the doctor just came in and told me he put some ativan in my iv last night to help my nausea and apparently it worked (also explains why I got such good sleep last night, lol). AND he told me I get to go home today, yay!!!
I think I just wanted to believe that after I finished treating I could pick right up with my life again and forget I'd ever had hepc. I'm disappointed that it didn't work out that way and I'm emotionally having a little bit of difficulty dealing with it. Really, I ought to just be grateful that I'm SVR and I need to just quit whining about it.
I did get one bit of really good news yesterday evening. My best friend, who I am going to nominate for sainthood if I can find the paperwork, has been talking to my mortgage company, and I knew they had been working something out on my house payments, but the upshot of everything is that they are lowering mortgage payment two points for the next three years (and I had an ARM, so they are being pretty cool about this) and they put seven months of payments on the back of my loan [January through July], making my next payment due in August). I have enough business still working out of my home to make that work out well so I feel grateful to both them and to her for working this out for me.
Fl Guy -- The working theory now is that when I finished treatment my skin was so fragile that the foot on my laptop burned a hole in my thigh. Which makes total sense to me because it LOOKED like a burn and it hurts like a burn and it is shaped exactly like one of the feet on my laptop except larger. And it is very exact and even in shape.
They said that apparently when your skin gets so dried out by the treatment drugs it becomes more fragile and is more prone to laptop burns (not really sure what the tech is behind that though - would be interested to know how the dryness facilitates that) - and I theorize that since I was taking ms contin back then for the pain in my joints and bones, it could have dulled my nerve endings and caused me not to notice as much. I still sit with my laptop all the time and I've never had the problem again, but my skin quality has improved too. Also, I had such bad anemia, I frequently fell asleep with my laptop - sometimes that happens now but not nearly as often as it used to since my blood count is very stable now. I also had iron overload at that time, which may have changed my skin quality as well. Anyway, it is looking a little better today I think? and they are going to refer me to an outpatient wound center for it now.
Feeling a lot better today so that's great. the doctor just came in and told me he put some ativan in my iv last night to help my nausea and apparently it worked (also explains why I got such good sleep last night, lol). AND he told me I get to go home today, yay!!!
I think I just wanted to believe that after I finished treating I could pick right up with my life again and forget I'd ever had hepc. I'm disappointed that it didn't work out that way and I'm emotionally having a little bit of difficulty dealing with it. Really, I ought to just be grateful that I'm SVR and I need to just quit whining about it.
I did get one bit of really good news yesterday evening. My best friend, who I am going to nominate for sainthood if I can find the paperwork, has been talking to my mortgage company, and I knew they had been working something out on my house payments, but the upshot of everything is that they are lowering mortgage payment two points for the next three years (and I had an ARM, so they are being pretty cool about this) and they put seven months of payments on the back of my loan [January through July], making my next payment due in August). I have enough business still working out of my home to make that work out well so I feel grateful to both them and to her for working this out for me.
Hope you feel better. But, a hospital is no place to be to get well. What's with that wound?
You are in my prayers! I'm so sorry that you have to go through so much, it is terrible. I admire you for keeping your sense of humor in all this. Get well!
Hugs, Marcia
Hugs, Marcia
I'm so sorry your back in hospital...boy, you have really had a rough time. My thoughts and prayers are with you for a speedy recovery and NO more hospital stays.
Ann
Ann
Sorry you're having to go through this. Have you been tracking your blood counts the last three months? WBC, neuts, TSH, and so on? I don't recall your other health issues off hand (except that there are a few including severe anemia) but if you have CBCs and CMPs handy, you could post them and see if anything looks familiar to anyone.
Take care of yourself.
Take care of yourself.
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