Aa
Bad news/ good news
Mamma always quoted, "if you can't say something nice, say nothing at all". I've been sooo frustrated and snively that I thought it best that I just stay in my room and absorb my brain with TV peoples problems. TV people don't know that I'm aware of their pain and suffering, nor rejoicing in their happiness. BTW, How 'bout that Chris Phelps?? 8 for 8.
If anyone feels strong enough to hear my saga, I'll post it in my journal. The Readers Digest version is; due to Anemia and heat + exhaustion, I passed in a hallway @ the Hosp.(en route to do some BTs @ the out pt. lab.). That was 7-11. Now, when I see "sparklers", I just sit down and wait for them to go away.
One of the labs sent my Blood to another lab,for dx, (they lost my blood). That was on 6-10 (4 wk. determining EVR RVR status, Non responsive). My labs for 7-11 showed everything BUT my VL, (HCV RNA Quant./Qual.). SOOOOO, BT's again on 7-31 showed VL @ 336,000IU/mL (down from 4,100,000 baseline). I thought this was good news. Turns out, I'm considered a non-responder. I start next week with DAILY shots of Infergen, (instead of peginterferon) once per week. So, instead of being @ Shot 15 tomorrow, I'll be back @ week O, with 52 weeks to go- next week when I get my new meds. The Rebetol remains the same. This will go on for 90 days, ("If you,(I), can tolerate it") after which it will continue as long as I tolerate it. Don't ask me, 'if not, then what'? I'd had all the bad news I could tolerate for one day, so, I did't ask!!! Three hundred and sixty-five shots to go, (or more, and that's "IF" I can tolerate it).
This is one of those times that: "No news, is good news", doesn't apply. I've changed my mind about the journal entry, (that's enough whining for this week). Ya think????
So, I'm gunna go catch up with 'How You doin'??????? BTW, Daughter-in law, Kelly and 6 week old Katie, are both thriving. And that, my friends, is the good news !!!!!!!
If anyone feels strong enough to hear my saga, I'll post it in my journal. The Readers Digest version is; due to Anemia and heat + exhaustion, I passed in a hallway @ the Hosp.(en route to do some BTs @ the out pt. lab.). That was 7-11. Now, when I see "sparklers", I just sit down and wait for them to go away.
One of the labs sent my Blood to another lab,for dx, (they lost my blood). That was on 6-10 (4 wk. determining EVR RVR status, Non responsive). My labs for 7-11 showed everything BUT my VL, (HCV RNA Quant./Qual.). SOOOOO, BT's again on 7-31 showed VL @ 336,000IU/mL (down from 4,100,000 baseline). I thought this was good news. Turns out, I'm considered a non-responder. I start next week with DAILY shots of Infergen, (instead of peginterferon) once per week. So, instead of being @ Shot 15 tomorrow, I'll be back @ week O, with 52 weeks to go- next week when I get my new meds. The Rebetol remains the same. This will go on for 90 days, ("If you,(I), can tolerate it") after which it will continue as long as I tolerate it. Don't ask me, 'if not, then what'? I'd had all the bad news I could tolerate for one day, so, I did't ask!!! Three hundred and sixty-five shots to go, (or more, and that's "IF" I can tolerate it).
This is one of those times that: "No news, is good news", doesn't apply. I've changed my mind about the journal entry, (that's enough whining for this week). Ya think????
So, I'm gunna go catch up with 'How You doin'??????? BTW, Daughter-in law, Kelly and 6 week old Katie, are both thriving. And that, my friends, is the good news !!!!!!!
Thank you all so very much for your wds. of encouragement. Sending love and hugs back to you all. hope you are all well, (as much as is possible under the circumstances). Bv
I would say welcome to my world, but I won't.
Sometimes I wonder how the world functions, with such terrible work ethics, lab drama is ridiculous.
Seriously anything I can help with with infergen I will, I am becoming all pro at it.
Was good to see you here, you've been in my thoughts,
Deb
Sometimes I wonder how the world functions, with such terrible work ethics, lab drama is ridiculous.
Seriously anything I can help with with infergen I will, I am becoming all pro at it.
Was good to see you here, you've been in my thoughts,
Deb
Sorry to hear the news. That's some tuff luck. I'm sorry for you...but if you can beat this it will be worth the effort. Good Luck to you!
Damn those labs and loosing bloodwork!!! been there. All the waiting and then such a let down. I am sorry to hear the news, please keep us up to date on how you are doing.
Denise
Denise
Good to hear from you again was wondering where you were and if all was well.
Sorry to hear about the news........hang in and hopefully the infergen will do the trick.
No guaranttes with this stupid illlness for anyone of us.
My payers are with you-Good Luck with the new regimen!
Glad to hear Katie is good!
I wish I was a baby again.!
Wassup keep in touch and feel well!!!
Sorry to hear about the news........hang in and hopefully the infergen will do the trick.
No guaranttes with this stupid illlness for anyone of us.
My payers are with you-Good Luck with the new regimen!
Glad to hear Katie is good!
I wish I was a baby again.!
Wassup keep in touch and feel well!!!
Oh, I'm so sorry. It is really amazing how well you are taking it. I would be whining and crying by now, I think. I wish you all the strength to go through this. Lots of hugs, Marcia
You can do it, you can do it!!!
What a blessing with your grandchild!
You can do it, you can do it!!!
What a blessing with your grandchild!
I was wondering how the heck you were...hadn't heard from you in a while. So sorry you have to start Infergen and take so many more shots. I hope it goes well for you, and you can tolorate it to the end! You will be SVR just gonna take a little more butt kicking!
Glad to here Katie is doing well!
Big Bear Hugs
Darla
Glad to here Katie is doing well!
Big Bear Hugs
Darla
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