Aa
2 weeks post tx and i feel GREAT!
Just wanted to say that i'm 2 weeks finished and i am COMING BACK!!
i almost feel bad saying that because i know it's a slow road for some people
but i thought i owed it to people in the middle of it that there is hope.
I'm sleeping, really sleeping, not fake med-induced sleep, for the first time in a year. oh to yawn a real true yawn is a glorious thing! i'm getting color back in my face, not the death mask i wore for so many months. my skin is hydrating, my hair is too. my energy is coming back. i'm working in the yard! i'm riding my bike! my head isn't swimming in chemicals. i feel sooo much better.
just thought i'd share. hope this finds all of you well and hanging in there.
thanks again to everyone for everything. you're my idols.
tracy (amirtracy)
i almost feel bad saying that because i know it's a slow road for some people
but i thought i owed it to people in the middle of it that there is hope.
I'm sleeping, really sleeping, not fake med-induced sleep, for the first time in a year. oh to yawn a real true yawn is a glorious thing! i'm getting color back in my face, not the death mask i wore for so many months. my skin is hydrating, my hair is too. my energy is coming back. i'm working in the yard! i'm riding my bike! my head isn't swimming in chemicals. i feel sooo much better.
just thought i'd share. hope this finds all of you well and hanging in there.
thanks again to everyone for everything. you're my idols.
tracy (amirtracy)
Hi Tracy. Don't ever feel bad about feeling good. It is reason to celebrate and it's good news to those treating - to hear that you are recovering quickly. Most often we hear the opposite so your good news is welcome. I'm happy for you and wish you continued good health. Take care and stay well. Mike
Thank you - I am praying so HARD that I will feel some relief soon. Last shot was Friday and I'm still taking the riba (to make an exact 72 weeks) but it's getting HARD to take them now...I just want this junk GONE
Just reading THIS makes me giggle so hard with anticipation my office thinks I'm nuts. The fake induced non-Rem sleep really is just bs sleep ... I cannot WAIT not to be tired yayaya. Thank you Dy I really do appreciate your post!
I'm sleeping, really sleeping, not fake med-induced sleep,
I'm sleeping, really sleeping, not fake med-induced sleep,
Awesome news....looking forward to being able to say it myself one day. Can I ask how long you were on treatment? And, if you don't mind, I'm curious about what kind of sleep medication you were on. I'm getting worried about developing a dependency on sleep meds but whatever kind you were on, it doesn't seem to be a problem for you. I'm so glad to hear you're feeling this good. BTW, lucky you to be riding your bike and gardening right now.....I think it was supposed to go down to 7 where I live last night!
So glad you are recovering so quickly. It is only now (6 months post) that I am beginning to see body in my hair again!
ny girl -- your time is coming soon. I think cuteus ditched a few of her last remaining ribas. What do you have now - maybe 2400 mg to go??????
Kath
ny girl -- your time is coming soon. I think cuteus ditched a few of her last remaining ribas. What do you have now - maybe 2400 mg to go??????
Kath
I'm dying to ditch the last few. I thought about it all night last night. You know...slightly obsessive here. Today is Tuesday and I only have to take them thru Thursday.
I called the doc yesterday to find out what he expected ie: when to stop the Epo...stuff like that.
No call back yet. Of course I only talked to the NP. I will be so GLAD when this is all over and I don't have to wait all the time for DOCTORS! :)
I was shocked that my hemo went up to 11.4 - I think that is the highest its been in a year and a half. To FINALLY get out of the 10 range and it's my last week? Go figure right?
I'm so GLAD to be done!
If I take them all (and I probably will) only 2000mgs LEFT OF THE RIBAs WOO HOO!
Although now I'm back on the...hum maybe I'll stop them today mode hahaha.
I called the doc yesterday to find out what he expected ie: when to stop the Epo...stuff like that.
No call back yet. Of course I only talked to the NP. I will be so GLAD when this is all over and I don't have to wait all the time for DOCTORS! :)
I was shocked that my hemo went up to 11.4 - I think that is the highest its been in a year and a half. To FINALLY get out of the 10 range and it's my last week? Go figure right?
I'm so GLAD to be done!
If I take them all (and I probably will) only 2000mgs LEFT OF THE RIBAs WOO HOO!
Although now I'm back on the...hum maybe I'll stop them today mode hahaha.
I didn't know this was Tracy I was posting to as Dylmar!!! So glad you are feeling good and getting back to life as we used to know it. Thanks for sharing that, cuz' sometimes it feels like life will never be the same again!
hiya mike!
haven't talked to you in a long time, but i've been keeping up with you.
glad to hear you're doing good as well. i always appreciated your posts.
i like your take on things and can't say that about many people.
continued good wishes your way from my way and thanks for your reply to my post!
tracy
haven't talked to you in a long time, but i've been keeping up with you.
glad to hear you're doing good as well. i always appreciated your posts.
i like your take on things and can't say that about many people.
continued good wishes your way from my way and thanks for your reply to my post!
tracy
deb,
you're there girl. 2 days of ribadibadoos...that last week was hard for me to swallow them too and i threatened to flush them but my hubby had a good point when he said out of respect for the last year just take them... so i did.
if svr doesn't take, well i gave it my best shot! you're a trooper.
pds,
hi there. i tx'd for 48 weeks and took ambien the first half of tx and then sonata? is that even right? lol. Nothing really worked more than a few hours at a stretch but i couldn't sleep at all without it. stay up ALL night. i was NEVER tired on tx. it was awful. so the day i took my last riba i quit everything.
i was procrit too and doc wanted to check my hmg before i stopped cold turkey but i couldn't wait. i was soooo sick of all the medicine. but to answer your question, the first few days off sleeping aids i didn't sleep that well but the past week and half or so i've been fine. i wake up but go right back to sleep.
it's glorious. keep us posted on how you're doing and hang in there. it does eventually end.. :)
tracy
you're there girl. 2 days of ribadibadoos...that last week was hard for me to swallow them too and i threatened to flush them but my hubby had a good point when he said out of respect for the last year just take them... so i did.
if svr doesn't take, well i gave it my best shot! you're a trooper.
pds,
hi there. i tx'd for 48 weeks and took ambien the first half of tx and then sonata? is that even right? lol. Nothing really worked more than a few hours at a stretch but i couldn't sleep at all without it. stay up ALL night. i was NEVER tired on tx. it was awful. so the day i took my last riba i quit everything.
i was procrit too and doc wanted to check my hmg before i stopped cold turkey but i couldn't wait. i was soooo sick of all the medicine. but to answer your question, the first few days off sleeping aids i didn't sleep that well but the past week and half or so i've been fine. i wake up but go right back to sleep.
it's glorious. keep us posted on how you're doing and hang in there. it does eventually end.. :)
tracy
hi there! long time no talk to!
it'll end. it seems like it never will but all things pass.
i'm rebounding and thankful for that. felt so bad for so long.
the clouds beginning to lift as well. i felt like linus with a ball of dust following me everywhere. just never happy. felt too bad to be happy. but
i can really smile and mean it now. it's awesome!
i'm soooo sorry about your fire but you're all alright and that's all that matters. i'm the one who was jealous of your hotel room. sounds nice w/ the pool and jacuzzi! you take care and we'll talk soon.
tracy
it'll end. it seems like it never will but all things pass.
i'm rebounding and thankful for that. felt so bad for so long.
the clouds beginning to lift as well. i felt like linus with a ball of dust following me everywhere. just never happy. felt too bad to be happy. but
i can really smile and mean it now. it's awesome!
i'm soooo sorry about your fire but you're all alright and that's all that matters. i'm the one who was jealous of your hotel room. sounds nice w/ the pool and jacuzzi! you take care and we'll talk soon.
tracy
hi there! long time no talk to!
it'll end. it seems like it never will but all things pass.
i'm rebounding and thankful for that. felt so bad for so long.
the clouds beginning to lift as well. i felt like linus with a ball of dust following me everywhere. just never happy. felt too bad to be happy. but
i can really smile and mean it now. it's awesome!
i'm soooo sorry about your fire but you're all alright and that's all that matters. i'm the one who was jealous of your hotel room. sounds nice w/ the pool and jacuzzi! you take care and we'll talk soon.
tracy
it'll end. it seems like it never will but all things pass.
i'm rebounding and thankful for that. felt so bad for so long.
the clouds beginning to lift as well. i felt like linus with a ball of dust following me everywhere. just never happy. felt too bad to be happy. but
i can really smile and mean it now. it's awesome!
i'm soooo sorry about your fire but you're all alright and that's all that matters. i'm the one who was jealous of your hotel room. sounds nice w/ the pool and jacuzzi! you take care and we'll talk soon.
tracy
Geez, I was talking to you and didn't even know it! The hotel is REALLY getting old. If it wasn't the middle of winter the pool and jaccuzi would be nice. The grandkids don't seem to mind spending hours in it though. I can't afford to keep my pool heated all winter, but they do here! I really want to go home. I was there yesterday and after less than an hour my throat was raw and eyes running. I don't know how those cleaning people do it! John is there in his office, he keeps all the windows opened. It was really nice to be there, can't wait to get back. You can have the hotel room!
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