Aa
Hands and body a little shaky - ?
For the last few days, I've been shaky. My hands are shaky, I have lightheaded moments and my body feels kinda shaky as in I feel like a wobbly old lady sometimes, a little off balance. (Well, I'm off balance in other ways but I mean physically.) Going down stairs is a bit of a challenge and I take them carefully.
My hgb was 10.0 last week despite 4 weeks of procrit by then and I have my monthly at the moment. Does "blood" loss contribute at all to a decrease in hgb?
I see the doc tomorrow so I'll mention it .. just wondering if this is familiar to anyone and what it indicates? Just feeling very bizarre lately.
Trish
My hgb was 10.0 last week despite 4 weeks of procrit by then and I have my monthly at the moment. Does "blood" loss contribute at all to a decrease in hgb?
I see the doc tomorrow so I'll mention it .. just wondering if this is familiar to anyone and what it indicates? Just feeling very bizarre lately.
Trish
My thyroid measures at .05, jasper. Don't know where that sits on the scale but seems a bit much below the lower range. I sure hope the shakies go away soon...escalators down at work are out of the question now.
On the procrit, wondered about that myself but only got the word yesterday that my hgb is over the 12. I go for another blood test this Tuesday, results on Wednesday and they'll see I guess. They were talking about going to procrit every two weeks. (Maybe I should just say epo as it covers eprex and procrit :)
I think it's that once it's over 12.0, they need to back off, so they're checking to see how it goes and I'm uncertain at this time exactly where we're heading, just taking it week by week at the moment.
On the procrit, wondered about that myself but only got the word yesterday that my hgb is over the 12. I go for another blood test this Tuesday, results on Wednesday and they'll see I guess. They were talking about going to procrit every two weeks. (Maybe I should just say epo as it covers eprex and procrit :)
I think it's that once it's over 12.0, they need to back off, so they're checking to see how it goes and I'm uncertain at this time exactly where we're heading, just taking it week by week at the moment.
Aw yes, the thyroid it remembers me well, just like a pup seal, in a pool of sharks fighting desperately to find balance only to be gaffed by the gripping jaws of death of the great white and gasping for air while being submerged numerous times with its heart racing, disoriented, and dizzy from the adrenalin rush of panic. The body is at its highest state of alert and the organs are thrashing and quivering and working at an accelerate pace in the production of…. the true motivator of absolute fear to escape the wrenching grips of the THYROID, only to be released by the newly fowled waters of its capturer, cut, bruised and shaking by the plight of the endured attack, it rest calmly floating in the water as the tremors reverberates through the various wounds left by its attacker and finally finds sanctuary to rest as it eats among the kelp and not knowing when to stop, it sinks slowly to the bottom for the weight that now holds it down leaves it motionless, floating along the bottom of the vast ocean until it finds the nutrients it has been searching for. As the ingestion of these takes hold the pup slowly reaches the surface not in a big splash but calmly as it continues its journey to svr island.
The thyroid is a marvelous little organ that can raise havoc but for such a little one it can have an attitude at times, lol.
Glad to see it got picked up early, mine played hide and seek for months and drove me nuts before reveling itself, it went from 2.271 before TX to .018 to 51.839 and last checked it is resting at 4.525.
Trish, I do have a question tho, why are you going to play bouncy ball with the hgb? If the Procrit worked in getting your hgb back up after 5 weeks do you not think it will go back down in between shots? Just curious, thanks.
jasper
The thyroid is a marvelous little organ that can raise havoc but for such a little one it can have an attitude at times, lol.
Glad to see it got picked up early, mine played hide and seek for months and drove me nuts before reveling itself, it went from 2.271 before TX to .018 to 51.839 and last checked it is resting at 4.525.
Trish, I do have a question tho, why are you going to play bouncy ball with the hgb? If the Procrit worked in getting your hgb back up after 5 weeks do you not think it will go back down in between shots? Just curious, thanks.
jasper
Girl, I have to give you a HUGE cheer for working so much on that Hgb count! Let alone tx. I couldn't drag myself to the bathroom until my bladder was going to burst when it was 10 ! I never thought of it the way medicmommy said....when it dropped fast, so did I.
Past threads have swayed both ways on whether the thyroid goes back to normal. My NP had said it would stay if it went either way, but she said a few things this site proved wrong! :)
Your doing great thru this! Really!
LL
Past threads have swayed both ways on whether the thyroid goes back to normal. My NP had said it would stay if it went either way, but she said a few things this site proved wrong! :)
Your doing great thru this! Really!
LL
You are going to feel SO MUCH better as the beta blocker kicks in...and you'll have an easier time controlling the anemia...Just in case you weren't told, though, when your thyroiditis "flips" from hyper to hypothyroid,(it took mine about 2 1/2 months), you'll suddenly begin to feel achy, lethargic and worse brain fog...Don't just stop the beta blocker! It has to be tapered down over a couple of weeks to prevent bad things from happening...You are going to have a bit more energy shortly...I found it a welcome change! Hang in there...Oh, on the computer virus...it sounds like it caught Hep C...Probably geno 1a...LOL HANG IN THERE! (((((((((((HUGZ)))))))))) ~Melinda
You guys are all so great .... I haven't had time to respond as yet but made sure I read all the comments before I left early this morning for my 24 week appt and took the various bits of advice to heart.
FlGuy...the doc checked my ears and they're both still there and still facing the same direction. Thanks :)
Jim / Kristina - dead on - I told the doc how I was feeling and he just looked at me and said "thyroid". He ran the test and I'm hyperthyroid and he's starting me on beta blockers today to "slow me down" - that oughtta be a neat trick - and then getting me into an endocrinologist asap.
Jasper .. I live alone so everybody is safe. :) you're right about the procrit, just took a little while because.....my hgb is 12.* today!!!! Woohoo!! no eprex/procrit for me this week and if that holds then none next week either and this is VERY good for keeping me off of any more riba reductions.
Jim re: iron stores....I asked the doc about that today and said I wanted an iron stores test and he said I don't need one because obviously they're okay if the procrit is working. I told him the drug insert says that iron stores should be tested before starting procrit and during and that my test is from 2007. He agreed to get a current iron stores test done. Now I'll have a benchmark and that's what I want. Thanks for the advice....on this and everything.
Charm....always nice to hear from you and thank you for the encouragement. I'm so proud of you .. you're almost there and it's been so tough for you lately. Just hang in there, eyes on the prize and I am SO MUCH looking forward to celebrating with you when you are done tx. *Please* take very good care of yourself...please.
Izzy (how's it going!? Hope the sides are light!), fret (my dear friend), Bug (always good to hear from you), LL (so glad you're done tx!), MedicMommy (hurray for you being done too!), --- Thanks for the input, the encouragement and just for being there. I take all the bits and pieces from everyone and throw it into the pot and it all helps, especially the encouragement and support. Thanks so much.
Doesn't help that I've been pushing the envelope with much overtime and too many 14 hour work days the last two weeks dealing with a nasty computer virus infestation at work ... I am so tired of viruses in general, let me tell you!!
The reds are up, the whites are down, the thyroid is hyper and the girl is exhausted. No idea yet what all this thyroid stuff means, have only had a little bit of time to read so far and here's hoping it's temporary. I imagine I'll be posting to ask questions about that too.
What would I do without this place...what would we all do. Nobody else gets this like those going through it. Thanks for being there, everybody.
Trish
FlGuy...the doc checked my ears and they're both still there and still facing the same direction. Thanks :)
Jim / Kristina - dead on - I told the doc how I was feeling and he just looked at me and said "thyroid". He ran the test and I'm hyperthyroid and he's starting me on beta blockers today to "slow me down" - that oughtta be a neat trick - and then getting me into an endocrinologist asap.
Jasper .. I live alone so everybody is safe. :) you're right about the procrit, just took a little while because.....my hgb is 12.* today!!!! Woohoo!! no eprex/procrit for me this week and if that holds then none next week either and this is VERY good for keeping me off of any more riba reductions.
Jim re: iron stores....I asked the doc about that today and said I wanted an iron stores test and he said I don't need one because obviously they're okay if the procrit is working. I told him the drug insert says that iron stores should be tested before starting procrit and during and that my test is from 2007. He agreed to get a current iron stores test done. Now I'll have a benchmark and that's what I want. Thanks for the advice....on this and everything.
Charm....always nice to hear from you and thank you for the encouragement. I'm so proud of you .. you're almost there and it's been so tough for you lately. Just hang in there, eyes on the prize and I am SO MUCH looking forward to celebrating with you when you are done tx. *Please* take very good care of yourself...please.
Izzy (how's it going!? Hope the sides are light!), fret (my dear friend), Bug (always good to hear from you), LL (so glad you're done tx!), MedicMommy (hurray for you being done too!), --- Thanks for the input, the encouragement and just for being there. I take all the bits and pieces from everyone and throw it into the pot and it all helps, especially the encouragement and support. Thanks so much.
Doesn't help that I've been pushing the envelope with much overtime and too many 14 hour work days the last two weeks dealing with a nasty computer virus infestation at work ... I am so tired of viruses in general, let me tell you!!
The reds are up, the whites are down, the thyroid is hyper and the girl is exhausted. No idea yet what all this thyroid stuff means, have only had a little bit of time to read so far and here's hoping it's temporary. I imagine I'll be posting to ask questions about that too.
What would I do without this place...what would we all do. Nobody else gets this like those going through it. Thanks for being there, everybody.
Trish
There could be a bunch of things going on...My experience with the anemia...it isn't just how low the number, but also how fast it drops...if it drops over just a few weeks, your body doesn't have time to adjust...-and you feel BAD!
Your electrolytes, particularly potassium and magnesium may be depleted...if you have muscle spasms as well, this may be it...Are you eating? If your blood sugar gets low, this can cause shaking, fatigue and headaches...and then there's thyroid issues...At around week 8-10 I got thyroiditis from txing and was very hyperthyroid...it was at this point my cycles stopped, my anemia was worsening because of the stress the HPT was causing, and I was very shaky, hot, had a sensation of rapid heart pounding, and bowels were "hyperactive"...
As has been mentioned...When your HGB is in the 10's (or lower), it won't take much to exhaust yourself...( Eg. Raising your arms in the shower...a walk to the bathroom...changing the remote..LOL) Hang in there...((((((((((HUGZ))))))))~Melinda
Your electrolytes, particularly potassium and magnesium may be depleted...if you have muscle spasms as well, this may be it...Are you eating? If your blood sugar gets low, this can cause shaking, fatigue and headaches...and then there's thyroid issues...At around week 8-10 I got thyroiditis from txing and was very hyperthyroid...it was at this point my cycles stopped, my anemia was worsening because of the stress the HPT was causing, and I was very shaky, hot, had a sensation of rapid heart pounding, and bowels were "hyperactive"...
As has been mentioned...When your HGB is in the 10's (or lower), it won't take much to exhaust yourself...( Eg. Raising your arms in the shower...a walk to the bathroom...changing the remote..LOL) Hang in there...((((((((((HUGZ))))))))~Melinda
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