Hep C and Fatigue

[hippygem]

Hi guys, thought I would post this on this side of the forum and see if any of you could respond that didnt on the other side.

I am doing research into Fatigue and Hepatitis C, I need your input:

1. Is fatigue your worst symptom.

2. What do you use or take to help with the fatigue.

3. What is your experience with fatigue before treatment.

4. As you know there arent many studies done that supply us with a remedy for fatigue, except the study done on Ondansatron by Piche et al in 2005.  Have any of you tried Ondansatron??

I appreciate all your help in this, thanks.  The findings will be written up in a report I am writing with a psychologist on the symptoms of hepatitis C.  A link will be provided once it is written and published.

I appreciate all your help in this, thanks.

Linda

[susan400]

1. Is fatigue your worst symptom.          My answer: Yes, but I do have other symptoms as well.

2. What do you use or take to help with the fatigue.     My answer:  Nothing other than morning coffee.

3. What is your experience with fatigue before treatment.      My answer:  Since I've never cleared and I've done treatment umpteen times, my experience with fatigue is the same as it's always been, no change there.  I do force myself, PUSH myself to exercise because I feel that the alternative of laying on the couch and giving in to the fatigue is worse.

4. As you know there arent many studies done that supply us with a remedy for fatigue, except the study done on Ondansatron by Piche et al in 2005.  Have any of you tried Ondansatron??    My answer:  No, I haven't tried it and I've never heard of it either.

I hope this helps your research.   Susan400

[curiouslady1]

I was a hepc carrier for 40 years.  I just started treatment two and a half weeks ago with remarkable new oral drugs.  I was always feeling like I was slogging through the day and was working two difficult jobs but couldn't do any more and it seemed like every day was a cloudy, tired day.  Sleep was not that good but adequate I suppose.  The new drugs caused a 4 log drop in the viral burden in 72 hours.  During tht time I have slept soundly and while I am fatigued from the drugs it feels different.  It is easily dissipated with a cup of coffee which creates a buzz!  The old hep c fatigue never responded to coffee although heavy green tea helped some.  

[hippygem]

Thanks for the comments, here is a link to the research:

http://www.hepcaustralia.com.au/hep-c-information-station/fatigue-in-hcv-infection-a-review-1989-2011

[Frank J. Perrotta]

Doubt we will get that link to the published report since this was originally started/ended in 2007...

For me it wasnt the HepC but the CureofC/Treatment that brought on my disabilities and one included: chronic low level anemia which brings on somekindafunfunfun fatigue... tried a few things suggested by various docs and my psych has been most helpful. Currently he has me on VYVANSE (currently 70mg). I think it is for kids with ADD or something like that but for adults without ADD it works as a stimulant. It seems to be effective once it gets me out of bed and into my first espresso...

Coming off it is another story and takes a boatload of pills to try to get my into sleep mode and it starts all over again.

Copay for me is like one or two dollars under medicaid - cool!

[Interfurgen]

i'ts so bad some days, that all i can do is set. I never had it before tx . I have also tied every thing. I fact i get  it most days. I am woundering if i should take a amnio acids. to pick me up.

[tywhy]

Hello i have hep c and fatigue is my worst sypmtom followed by night sweats and a body temperature that raises with just talking to someone or doing anything,another problem was skin infections which could go from mild to turning into abscess and needing hospital treatment [i v atibiotics because oral were not strong enough].Also affecting me with the fatigue was driving and falling asleep at work this had been going on for years and it it was only my DR hearing about the night sweats that she wanted blood test done and two blood test showed had and have got hep c,i have been to the hospital to see a specialist and had more blood test for which genology i have.,i am waiting for results and apointment back at the hospital and i guess treatment.I no now i have had hep c a long time because of the symptoms,also on my right handside below the ribcage feels lumpy i dont no if that is anything but its different to my left side.I hope this helps you.
By the way i am in Auckland New Zealand.