Interferon and paripheral neuropathy

[Cindi0663]

I was treated in 2000, still in remission, but have had so many strange things happen since. I gave up trying to find out what was causing all these problems about 8 yrs ago,after test after test.  
Then got to where feet wont work in last 6 mos. I'm back on the path to try to figure out what is going on? Again being tested for Lupis, Lyme disease, MS and they keep coming. Recently diagnosed with paripheral neuropathy and I will see a neurologist soon, hopeful for help. But I wandered if this could be a side effects of interferon/riboverin tx. From looking around on the web it looks like many people are suffering from the same sypmtoms. MY feet, legs and hands have been week ever since. I have swelling and sore to touch feet legs and hands, constant pain, muscle twitching, nerve jumping, welt like rash, pin rash when in sun and sensitive to sunlight, incontinence, insomnia, night sweats, stomach trouble, constipation, thryoid disesease, the fog and extreme exhaustion (plus so many more). I was very healthy before treatment and very active. I'm thinking theres got to be a connection between interferon and damage to the nervous system?

[medicmommy]

Just wondering...I know you have probably had nearly every test known to mankind at this point, but I was wondering if you've had your Parathyroid hormone (PTH) levels checked? If elevated, it can cause all kinds of weirdness like hyperparathyroidism with symptoms like high calcium, heartburn, headaches, muscle pain, joint pain, spasms and twitching, "brain fog" (inability to concentrate), chronic fatigue, depression, constipation, hormonal imbalances, low thyroid levels, low blood sugars, undefined gut pain, kidney and gall stones, and frequent urination. Do not confuse it with thyroid disease -they are entirely two different sets of glands.  I was diagnosed with hyperparathyroidism prior to the hep C and have always wondered if my body's fighting the Hep C didn't cause the tumor on one of the glands to grow (Not cancerous). Something to think about...Good luck on your search. ((((((((HUGZ)))))~MM

[nygirl7]

Unfortunately most of us are getting older and as things pop up we want to blame them on treatment (or something logical) but most likely they are just unrelated issues - especially as you treated so LONG ago it doesn't seem too likely that it has anything to do with that.

Probably a good neurologist is exactly what you need as it all seems to be somehow related to that.

[Lady Lauri]

Cindi.....I'm just popping in (as I do since tx) and the issues your having above do seem a bit different then the 'norm' for all of us stating post tx issues, problems.
I just wanted to say do some reading here on past threads for 'post tx problems/issues', as we have had many here!  It has extremely slowed down here, so maybe reading our past threads can help you a little.

Hopeful you'll get to the bottom of some things, LL

[Fmulder]

It's hard to say but I wouldn't rule it out?, Have you expressed your suspitions to your doctors?, Of course they probably know less about Hep C than you do!, I guess at this point you'll just have to deal with the issues one step at a time.