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12773 tn?1328913186

Just checking in to see who is around tonight

Just checking to see who all is around tonight.   I am so glad its Friday....  What a week.  but I made it thru again.  My doctor cancelled my appt yesterday, so no news on the colonscopy or bloodtests yet.   Tried to reschedule it for a week from now, but I managed to get in on Tuesday afternoon.   Of course I did not know they called to leave a message that they cancelled it yesterday, and needed a new appt.. and went to dr at scheduled time,  so wasted my time on that one.   Oh well.   I updated my picture so everyone can see what I look like now, during treatment, and after losing 97 lbs, and most of my hair.. LOL
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12773 tn?1328913186
Thank you.. . I feel so much better having some clothes that fit, and my hair a bit more in place than it has been for a while now.  I am hanging in there at work.. Got to.. cannot afford time off without pay, will be glad when I have no more copays for all the meds and appts with 3 doctors, sometimes 4 when I have to go to dermatologist with my rash that likes to move.  But it comes and goes.  Some times it drives me nuts, cannot not sleep for the scratching, wake up all raw and bleeding.   Then it goes away.. I guess the trick is to not stopping with the Eucerin, after the itchy goes away.. keep putting it on,   otherwise it comes back.   I am starting to eat a bit more some days, but so far I have not seen the scale move up.. Still going down.   I go to dr next week to discuss the polyps he found and sent off,  and all the blood tests he did last month.    I should only have 6 shots left.  Nearing the end soon.. unless he makes me do 52 weeks.. I am hoping not.. I could use the extra cash... It will be almost XMas again, and thats when I started 12/22.   I ususally have my shopping done by the end of Oct,   This year I have no money.  
How are you doing ?  How is Nick holding up ?   I know you dealing with this is very painful for you, and Nick.   My nephew is named Nick too, he is a couple years younger though, well he just found out he may be a Daddy.    He just turned 19 in July.     Kids, I swear... LOL   I hope Nick starts to fill a bit better, or they find a way to really get rid of this forever.    Hugs,   Dana
Helpful - 0
12773 tn?1328913186
has your doctor put you on Procrit or another resucue drug yet ?  If not you need to call him.  I just didn shot 42 / 48 last night and HGB has been about 10 since week 4, and was down to 8.3 at one point,   Glad the sides have not been too hard for you.  I will be glad to be done, ready to start getting back to normal, and getting on with daily tasks, that I have not been able to do, without feeling the fatigue all the time.
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Avatar universal
Hi all,
I'm inspired by all of you.  I'm a first time poster, but been monitoring on/off.
Started tx in June.  Full dose started in Aug.  I've taken 15 total shots/6 full dose.  Not feeling too bad too often. but hemoglobin is now 9.2 and of course blood counts are all low.  Hopefully that won't be an issue.
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Avatar universal
Hello to all...
Helpful - 0
12773 tn?1328913186
Well I am going to get ready to do my shot and hopefully tomorrow is a beautiful day.   Supposed to be driving over to Titusville tomorrow, to meet up with some of the gals from the forum here,  for lunch.   But its really storming and had been since getting home from work..  So we will see how the day starts and how I feel, being tonite is shot night.. Yah never know....  

So I am gonna go snuggle in bed with my sweetie and watch some TV, but I am sure once my head hits the pillow I will be out like a light.     I hope everyone has a wonderful night.   And I put my picture back to the New me....I will check in the morning.
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12773 tn?1328913186
Thyroid was fine, that was one of the tests he ran of 9.   I will find out more on Tuesday..

And Ice Cream , I just finished a big bowl of Edy's Hollywood Strawberry Cheesecake.  mmmmmm It was yummy, but now I am freezing.. LOL
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