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394687 tn?1290920840

Killer Good News and some bad mixed in...

You all  know how I've been thinking this Tx is kicking my butt...mega sx etc. Well guess what? Looks like it's the other way around - I'm kickin it's hinny.

Starting Alt - 134   two week PCR - 37
Staring VL - 2,280,000 - two week PCR - 203

I believe this may be about a 4 log drop - right? Headed for EVR maybe and that would be great because I may have to quit early. I think I have a new theory - let me know what you think.

When the tx finishes killing the nasty virus and it is all gone - then what does it do? Attack the good body parts?
Just mentioned this cuz mine just started doing that last night. MAJOR RA (Rhuematoid) flare can hardly move - 1st major RA pain since starting tx. Also extremely fatigue - probably have some good stuff falling - will see Tuesday at my 4 wk PCR.

But I'm very happy it's working...

Thanks for your thoughts,

Mikki


29 Responses
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394687 tn?1290920840
ROFLOL and caughing like crazy. I can't believe that yes I was doing laundry at 2am just after I posted this last night and i stopped looking in the mirror for fear of what you said!

You got me pegged gal!  Feel like I found a new best friend.

Hey congrates on the UND - hows the autoimmune problems doing now?

Also how far from Cocoa beach are you - I get there often - best friend (that sells the scarfs and had beat breast cancer) lives there. She does a lot of Biker scarfs as well check it out. The "Michelle" is named after me.

http://abonitascarf.com/

keep us laughin - hugs,

mikki

Helpful - 0
250084 tn?1303307435
LOL! Tx IS an acid trip gone bad! J/K pre-txers....does mess with the mind tho!!

YES, nights/ days were so backas*wards! Took awhile to get-sort of-switched around. (as it's 1:30 am now!) Many days I'd lay all day, than vaccuum at 4 am!! Just go with it. That's the advice I got here....if you want to do laundry at 3 am, do it!
BUT......if the mirror starts talking back,,,,,,well, time to talk to the DR. :)
Going to bed, hope you can soon :)
LL
Helpful - 0
250084 tn?1303307435
.......Just to remind everyone, I too had autoimmune problems that predated diagnosis and terrible flare-ups during tx.............

Which auto immune did/do you have? (if you don't mind me asking!) Curious as we're (me, Shands) giving the muscle issue's till 3 mths. post to 'check into it' further.


LL
Helpful - 0
394687 tn?1290920840
Thanks all - Is it just me or do any of you feel better at night? It's like I'm in bed and out of it all day and go see my kids round 4 - get home @ 6 or 7 - fall in a heep till about now and mysteriously wake up and come out of my funk just in time to have to try to take all those things to put me to sleep - some how I think my nights and days reversed - weird

Here's my version of the mikki song -

Mikki - Mikki you've lost your mind, you've lost mind and you must find - hey Mikki hey Mikki

OK - here's another thing - does anyone ever just look at yourself in the mirror - in your eyes and try to find yourself? Kind of like an acid trip gone wrong....

OK I'll stop scareing the newbees - sorry....
Helpful - 0
250084 tn?1303307435
Hi to all the 'girls' (you too jm, just haven't seen all these 'girls' yakking lately:)
Deb, Jd, Pigeonca, Meki, Mikki, Missy, Eureka,etc.....a bunch of you. Feel like I'm missing a lunch out here :)

Okay Mikki, Wassup you two live close?? That's so nice, mucking together,lol.
Fairy mucking....hmmmmm, now that is a new one,lol.

Seriously, I so feel for all of you all (Hi missy:) suffering thru RA pain, muscle pain. I had soooo much muscle pain on tx, could barely walk some days also and don't even have RA!  So you must all be really suffering in that. So sorry and hope you get it/keep it under control to get thru tx. I'd still do windows for Missy or muck for ya' Mikki :) I'm all better :)

Mikki.....whats the ol' hgb, etc? With the heavy fatigue. Thats GREAT on the VL !! Keep it up! My sis has often wondered about that in her cancer tx...where when it's gone, is that why she's sicker, etc. No way to ever really know I guess. But, jmjm..... as your right in the interferon rev's up the immune,,etc. isn't it also that our immune is attacking 'good 'stuff' as well? As it does activate/flare many autoimmune conditions, I kept asking all thru tx about that with my muscle issue's, he kept assuring me it would 'show' in the bloodwork?? Not so sure on that, as much as I trust his knowledge, credentials.
Tired, starting to babble :) Glad for you Mikki, hoping your sides/pain doesn't get worse.
Hang in there Mikki and Missy!

LL
Helpful - 0
Avatar universal
So glad to hear you are kicking the virus' butt.  Hang in there.  It's tough but well worth it.  

Kindest regards,

Kittyface
Helpful - 0

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