Aa
Ladybug...16 week short course
hey bug!
I saw in the hep forum that ya mentioned to Jim about the 16 week course. I am struggling with the thoughts of what to do also.
You're doc wants you to consider? I think thats what I read. too lazy to go back and look to see exactly what you said. I'm on my way out to do some errands, but just wondering what you feel about it.
anybody else that has opinions or has done the short course, I'd apprecaite your input.
thanks
I saw in the hep forum that ya mentioned to Jim about the 16 week course. I am struggling with the thoughts of what to do also.
You're doc wants you to consider? I think thats what I read. too lazy to go back and look to see exactly what you said. I'm on my way out to do some errands, but just wondering what you feel about it.
anybody else that has opinions or has done the short course, I'd apprecaite your input.
thanks
800 is weight based for me because I just converted lbs to kilo and came up with 57kg.
I weighed about 126 going in and weight about the same now. Who knows? My clothes still fit, clogged arteries from the food I eat but guess the smaller portions are keeping the weight the same.
Goof: My ins ran out the 31st of Jan. Can't refill any meds and am going coldturkey off my a/d's, so I'm acting and feeling paranoid. My poor husband!
Cindy: I don't know what to do. Based on this weekend I would love to quit at 12 and move on. I don't want to be a sissy. Maybe I'll wait and decide once I get on a/d's
Myown: Ok I am a wimp and take A/D's what's the healthy alternative?
I weighed about 126 going in and weight about the same now. Who knows? My clothes still fit, clogged arteries from the food I eat but guess the smaller portions are keeping the weight the same.
Goof: My ins ran out the 31st of Jan. Can't refill any meds and am going coldturkey off my a/d's, so I'm acting and feeling paranoid. My poor husband!
Cindy: I don't know what to do. Based on this weekend I would love to quit at 12 and move on. I don't want to be a sissy. Maybe I'll wait and decide once I get on a/d's
Myown: Ok I am a wimp and take A/D's what's the healthy alternative?
"My ins ran out the 31st of Jan. Can't refill any meds and am going coldturkey off my a/d's, so I'm acting and feeling paranoid."
Hi Bug.
Excuse my ignorance, but what is a/d's?
BTW, as I read through this thread my first reaction was; Yah! She'd doing great. She's UND already and has the option of even considering the short tx vs. the long tx.
that's a great position to be in.
(If it wasn't for having to make a decision about it! - sometime in the NEAR future, that is) :-)
Hope you're feeling better.
And, one more thing, if it's any consolation, we started tx almost the same time, I think. (I just did week 8). And I'm nowhere near UND as of last bloodwork)
My second reaction was, Damn! The stinking insurance issues. As if we don't have enough other problems to deal with. That makes it really tough.
I don't know what a/d's are yet but it sounds like something you should try NOT to go cold turkey with. (easy for me to say, right).
Hi Bug.
Excuse my ignorance, but what is a/d's?
BTW, as I read through this thread my first reaction was; Yah! She'd doing great. She's UND already and has the option of even considering the short tx vs. the long tx.
that's a great position to be in.
(If it wasn't for having to make a decision about it! - sometime in the NEAR future, that is) :-)
Hope you're feeling better.
And, one more thing, if it's any consolation, we started tx almost the same time, I think. (I just did week 8). And I'm nowhere near UND as of last bloodwork)
My second reaction was, Damn! The stinking insurance issues. As if we don't have enough other problems to deal with. That makes it really tough.
I don't know what a/d's are yet but it sounds like something you should try NOT to go cold turkey with. (easy for me to say, right).
A/d's =antidepressants. I'm really mad that I'm so miserable without them. My prescription is $48 without the ins, and I decided I need to refill more than I need the money. It just makes me mad because I paid out of pocket last month too and I had ins. then, just no card. Just hard trying to get switched over to my husbands since mine ran out Jan 31st. I was suppose to get the Celexa filled on Feb 3rd and I'm tired of trying to wait out the ins co. on getting me updated to my husbands plan.
Wyntre, I really shouldn't whine, you are so sweet. I am lucky, I get the shorter tx, have had less sides than you and luckily und at week 4. Thanks for the kind words, I needed a wake-up call to get off my pity party today!
Wyntre, I really shouldn't whine, you are so sweet. I am lucky, I get the shorter tx, have had less sides than you and luckily und at week 4. Thanks for the kind words, I needed a wake-up call to get off my pity party today!
You're right, I don't have to make a decision today. I may not be as lucky at my 12 week pcr or my dr may really want me to keep on since I'm able to work and play on tx. (Just a little play time, but at least it's not just couch to bed like some who are so sick)I need to count my blessings today. And once I get those a/d's filled, I will! I'm a wimp!
Bless me father for I have sinned and these are my sins, I'm sorry to have irked you Father Jim. lol
___________________________________________________
You said:
I think people who choose the short course are also doing "all they can" based on a reasonable weighing of the risks versus rewards. And like yourself, once finished with treatment, should never look back and ask "what if", because they simply came to a different conclusion after looking at the data and talkign with their doctors. And that advice also goes to those that treated longer (like myself) who sometimes look back and ask "what if" I only treated 24 weeks. Jim, grow up, what is done is done, 54 weeks was your number. Move on:)
--------------------------------------------------------
But here is the thing,"I will look back."
If God forbid I got cancer, there is no real way of saying 'where it came from,' so that I wouldn't necessarily blame on the meds, but I know that I will be so ticked off if I relapse and think it was something that I CAUSED myself.
Lets face it how many studies did they do for the short course for geno 2's? How many people were in these studies? I think I remember reading the study once and the odds of clearing were lowered by the shorter course.
I still feel like I am getting a placebo because I literally have NO sx, thank God. IF that changed next week,and I started pueking and needed procrit cause my hemo dropped and if I developed a rash head to toe, this lady will be the FIRST and ONLY participant in the 'Do it at home clinical trial of the 6 Week Itty Bitty course.
Believe me I do tip my hat to all you guys who pueked your way thru and continue to puek their way thru. I'd probably quit.
I don't see myself being able to get thru that. I then would just pull myself off, believe me, no way am I pueking everyday and feeling like **** when I'm a stage 0 and can wait, ya know? Its great to feel good on tx, but the down side is it makes me want to stay on meds longer to help increase my odds.
Believe me I know the risks of the meds, these are dangerous meds and I hate putting them in my body.But at this time and even years down the road, it will still be chemicals, so i wouldn't have been happy waiting to 'still use drugs',,plus my liver would have more wear and tear, which then would lower my svr rate. So many things to weigh. Yeah okay, maybe the course would be shorter, but maybe the meds would be even worse for my body.
There needs to be more of integrated medicine involved. Problem is that most 'conventional doctors,' think holistic doctors are 'quacks.'
The first liver guy I went to when looking over my blood work saw that I had a 'hair analysis' done at a holistic doc. He then says,'excuse me a minute,'leaves the room, he then comes back and hands me a paper with a website on it 'wack watch or something like that.
He told me I was wasting my money getting these tests done. Well guess what? IF he would have read my hair A, he would have seem that it said excess calcium was in my hair and 'this is seen in people with hepititus and cirrohsis (amongst other things).'(And the H.A. was done BEFORE I even knew I had hep.)
This is just one example of how closed minded some doctors are.
(BTW since many folks with Hep have bone pain, some have osteoporois, maybe its caus the hep causes us to lose the calcium as seen in my HA)
Where am i going with this? I don't know. I'm rambling on.
see ya Pastor Jim.
Thanks for you opinion. Even it I don't 100% agree, I'll still come to your church .lol
___________________________________________________
You said:
I think people who choose the short course are also doing "all they can" based on a reasonable weighing of the risks versus rewards. And like yourself, once finished with treatment, should never look back and ask "what if", because they simply came to a different conclusion after looking at the data and talkign with their doctors. And that advice also goes to those that treated longer (like myself) who sometimes look back and ask "what if" I only treated 24 weeks. Jim, grow up, what is done is done, 54 weeks was your number. Move on:)
--------------------------------------------------------
But here is the thing,"I will look back."
If God forbid I got cancer, there is no real way of saying 'where it came from,' so that I wouldn't necessarily blame on the meds, but I know that I will be so ticked off if I relapse and think it was something that I CAUSED myself.
Lets face it how many studies did they do for the short course for geno 2's? How many people were in these studies? I think I remember reading the study once and the odds of clearing were lowered by the shorter course.
I still feel like I am getting a placebo because I literally have NO sx, thank God. IF that changed next week,and I started pueking and needed procrit cause my hemo dropped and if I developed a rash head to toe, this lady will be the FIRST and ONLY participant in the 'Do it at home clinical trial of the 6 Week Itty Bitty course.
Believe me I do tip my hat to all you guys who pueked your way thru and continue to puek their way thru. I'd probably quit.
I don't see myself being able to get thru that. I then would just pull myself off, believe me, no way am I pueking everyday and feeling like **** when I'm a stage 0 and can wait, ya know? Its great to feel good on tx, but the down side is it makes me want to stay on meds longer to help increase my odds.
Believe me I know the risks of the meds, these are dangerous meds and I hate putting them in my body.But at this time and even years down the road, it will still be chemicals, so i wouldn't have been happy waiting to 'still use drugs',,plus my liver would have more wear and tear, which then would lower my svr rate. So many things to weigh. Yeah okay, maybe the course would be shorter, but maybe the meds would be even worse for my body.
There needs to be more of integrated medicine involved. Problem is that most 'conventional doctors,' think holistic doctors are 'quacks.'
The first liver guy I went to when looking over my blood work saw that I had a 'hair analysis' done at a holistic doc. He then says,'excuse me a minute,'leaves the room, he then comes back and hands me a paper with a website on it 'wack watch or something like that.
He told me I was wasting my money getting these tests done. Well guess what? IF he would have read my hair A, he would have seem that it said excess calcium was in my hair and 'this is seen in people with hepititus and cirrohsis (amongst other things).'(And the H.A. was done BEFORE I even knew I had hep.)
This is just one example of how closed minded some doctors are.
(BTW since many folks with Hep have bone pain, some have osteoporois, maybe its caus the hep causes us to lose the calcium as seen in my HA)
Where am i going with this? I don't know. I'm rambling on.
see ya Pastor Jim.
Thanks for you opinion. Even it I don't 100% agree, I'll still come to your church .lol
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