Aa
Peg/Riba Strength
Does anyone know anyone who treated and got SVR in a very short time?...for ex;...someone who had to stop tx because of sides into the first weeks of tx but still cleared the virus...just wondering .
Anecdotally, I've heard of one patient who became SVR after a single injection, maybe two, I forgot. Apparently he didn't like the side effects so dropped out of treatment. Then, to everyone's surprise he tested UND a year later. Why do you ask? I don't think the odds on this are very good :)
-- Jim
-- Jim
Why do i ask?...i have tons of intereting questions...problem is i think of them at work,when i get home.i forget them...ill have start jotting them down....hard to do at work tho...im so busy...very interesting answer you gave
Yes, quite a while ago I met someone here. She bailed on tx after about 12-13 weeks and ended up virus free. She was a 1 (don't remember whether a or b) and was having significant thyroid issues.
This disease is insidius.....it does whatever it wants ...for ex:...in my last tx back in 2006....i looked like something the cat dragged in after only a few months into tx...with this new round of triple tx.....i look more normal...and feel normal...and no weight loss like before...for some reason i feel like the virus has left my body
Rifleman (a long ago poster) did it in 12 weeks. Forget his geno but think it wasn't 1.
Is everything else the same? I mean, do you eat the same now as you did in 2006? And sleep as much? Is anything different besides the Boceprevir?
Curiouser and curiouser.
I have nothing to compare it to. I'm not quite at the looking like pure krap part yet, but I can see it coming.
Curiouser and curiouser.
I have nothing to compare it to. I'm not quite at the looking like pure krap part yet, but I can see it coming.
Well.to be honest...this time im eating an organic whey powder ffor my proten intake and a dfferent greens drink...before with my last tx i was living on soya protien...no anamial protien at all...this is what im thinking is making the difference...im not even getting any headaches...no need to take any tynenol...NO SIDES
no brain fog either...im actually think better on this rpund of tx...im not kiddn
~~~or some reason i feel like the virus has left my body ~~
I woke up one day and couldn't figure out what was wrong...it was because I felt good. That's the day I felt like the virus left my body, too. Of course I am double blinded and won't know for a while. But I just felt so much better.
I didn't lose any weight at all for the first 12 weeks while I was on triple. In the 12 weeks since I have been on SOC, I have lost 10 lbs.
I'm just curious, Rocker....I know you are in pretty good shape now. Were you also in shape when you treated last time?
I am glad to hear you are still doing good. Don't work too hard!!
Isobella
I woke up one day and couldn't figure out what was wrong...it was because I felt good. That's the day I felt like the virus left my body, too. Of course I am double blinded and won't know for a while. But I just felt so much better.
I didn't lose any weight at all for the first 12 weeks while I was on triple. In the 12 weeks since I have been on SOC, I have lost 10 lbs.
I'm just curious, Rocker....I know you are in pretty good shape now. Were you also in shape when you treated last time?
I am glad to hear you are still doing good. Don't work too hard!!
Isobella
Before i started the last round of tx back in 2006 i was bigger than i am now..in top shape,with.my last tx with SOC .i lost a lot of miuscle...im thinkn it was my low protien diet...but back to "the virus has left"...i just feel all a round happier and look pretty good ...nobody can tell im on tx....and im not even workn out at all...work hard?,....I WORK TO LIVE and LIIVE TO WORK
BTW...im only workn 91/4 kours a day and 4 on saturday...thats doable....but i will be honest here...at the end of the day...my legs are very rubbery...LOL...and my feey hurt like crazy...but im a tough mother
I also may as well add that the day after relapsed after my first tx...i began taking the stem enhance 'pond scum' every day right up till the day i started the BOC ..that was 2 years of stem enhanace....i do believe it has helped my BIG TIME....just telling it like it is
One person on my Vertex trial dropped out around week 10 and went on to SVR. She was getting telaprevir + SOC. She dropped out because of the dreaded rash.
She was age in her 20's and had a low vl to start with, around 78000 I think. I don't know any more about her stats except she must have been geno 1 to be on the trial.
dointime.
PS I ust have missed the details of that pond scum you mention. Would you please point me at the relevant thread or pm me on the one you feel helped you. Thanks.
She was age in her 20's and had a low vl to start with, around 78000 I think. I don't know any more about her stats except she must have been geno 1 to be on the trial.
dointime.
PS I ust have missed the details of that pond scum you mention. Would you please point me at the relevant thread or pm me on the one you feel helped you. Thanks.
Rocker, you've got me thiinking now........
I don't take any pond scum, stem enhance or whey, but I did reinvest in a juicer prior to tx and make a fresh green/veggie drink each day....nothing specific, just whatever I have on hand, romaine, celery, spinach, kale, cukes, carrots but always organic and with a slice of lemon and fresh ginger so it's more palatable for me.....and I feel great! I was starting to question whether the meds were working or not, and still have to wait two weeks for the first VL, but especially the last two days, I've felt better than before tx.
I know it's still plenty early in the game for me, but you may be on to someting here!
All I know is that I'm not gonna rock the boat at this point....Pam
I don't take any pond scum, stem enhance or whey, but I did reinvest in a juicer prior to tx and make a fresh green/veggie drink each day....nothing specific, just whatever I have on hand, romaine, celery, spinach, kale, cukes, carrots but always organic and with a slice of lemon and fresh ginger so it's more palatable for me.....and I feel great! I was starting to question whether the meds were working or not, and still have to wait two weeks for the first VL, but especially the last two days, I've felt better than before tx.
I know it's still plenty early in the game for me, but you may be on to someting here!
All I know is that I'm not gonna rock the boat at this point....Pam
I know someone who had to stop txing at 9 weeks (she was 1a) and still has SVR...It's been 2 years...When I was 3 weeks into txing, I was having sides, but I suddenly felt "better"...the only way I can describe this is that I felt like a weight had been lifted off of me...At week #4 I was tested and UND...and have been since...And today is the day...I go in for my 6 month post PCR...I may just commit Hari Kari if I've relapsed! I'm pretty sure all is well, but when you're 44 and post tx, there's always little niggling worries..(Like what's causing that tiny intermittent sore spot in the area of my liver?...and why am I getting intermittent joint pains again? Is it just because of winter and minor fallout from other stuff? Am I tired because of working lots and not exercising as much as I should? Etc. etc...) I guess I'll know by next week...I know the odds are in my favor...:) ~Melinda
I know of a woman who took 9 weeks of TX earlier this year and had to stop because her WBCs were very messed up and Neupogen didn't help her. She tested at 3 mos post TX and was still UNDIE at that time. She has not yet had her 6 month test but soon will.
Knew another geno 3e who had to stop at 16 weeks becase of drops in CBC that epo and neupo couldn't control and was still clear 6 months post and a geno 1 who stopped at 6 months because of bad psych sides and was still clear years later. Not many.
Just to clear up terminology confusion:\
SVR (sustained viral response) is a term applied to someone who 6 months after treatment ends exhibits undetectable levels of virus. You do NOT do SVR after xsome umber of weeks of treatment. You go Undetectable - but not SVR.
Going undetectable does not guarantee SVR. If you stop treatment early, even though you are undetectable, you stand a relatively high risk of relapsing and never going SVR.
Becoming undetectable early on (4 weeks) is called RVR (rapid viral response) and it is a good indication that you can eventually achieve SVR. But stopping treatment after going undetectable after 4 weeks pretty much guarantees the virus will come back (ie. you will not achieve SVR after 6 months).
SVR means that 6 months after you stop treatment your virus levels remain undetectable. Stopping treatment early, regardless of whether you are undetectable or not, means that you are likely to never achieve SVR.
SVR (sustained viral response) is a term applied to someone who 6 months after treatment ends exhibits undetectable levels of virus. You do NOT do SVR after xsome umber of weeks of treatment. You go Undetectable - but not SVR.
Going undetectable does not guarantee SVR. If you stop treatment early, even though you are undetectable, you stand a relatively high risk of relapsing and never going SVR.
Becoming undetectable early on (4 weeks) is called RVR (rapid viral response) and it is a good indication that you can eventually achieve SVR. But stopping treatment after going undetectable after 4 weeks pretty much guarantees the virus will come back (ie. you will not achieve SVR after 6 months).
SVR means that 6 months after you stop treatment your virus levels remain undetectable. Stopping treatment early, regardless of whether you are undetectable or not, means that you are likely to never achieve SVR.
I have no intentions of stopping tx early....i was just a question that popped into my mind.....the only way ill stop early is when they pry my cold dead hands from the PEG redi-pen in my right and the RIBA bottle in my left
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