Aa
Liver inflamation from Hep C and Tylenol
Hi,
My name is Dianna..I am 55 years old. I was diagnosed with Hep C. in 2001. I am genotype 1A. I had tried the Tx 2 times, the second being the hardest since the rybo was added..I did not complete TX. due to severe adverse reactions both physically and mentally. I am a recovering addict whose chose of drugs were opiates, all but few loaded with acetaminophen Since my original diagnoses there has not been one day that goes by that I am not thinking about my Hep C.. As soon as I hear the word Liver I go right up in my head thinking that that is how I am going to die, and since I have had friends pass from Hep C. I know that it is a horrible way to die, with much agonand suffering. And at certain times the inflamation becomes so severe , I become nauseous and weak, especilly in the heat and feel as though I am going to pass out....My viral load is in the millions, sometimes my enzymes are elevated more than others., My Gastro agrees that I am not mentally strong enough to do the TX again, as I had become somewhat suicidal and heading towards homicidal..I have always struggled with severe depression since the age of 17. And being bi-polar added to the insanity.I had noticed that my liver would press harder against my ribs around the time of month when I use to have my Period There are times when I get myself so crazy over this that I truly believe that my liver is going to burst... In a nutshell......Im Scared...
I do not drink and the only one bad thing I do do is smoke, (which again, I know bad for the liver...
I hoping I can find someone here who will help me to cope and support me as I have no family...I am blessed to be in N.A.,because if not for that I would basically have no one in my life, as I am estranged my my children and am no longer in touch with any of my old close friends as they still use and drink...
I don't feel like I can handle all these thoughts of pain,death and fear obsessing on when I am going to die and How..
Any and All help would be greatly appreciated and hopefully we could help each other..
Thank You so much for being here..Please respond at your earliest convenience...N.A. has given me a new way to live,and the freedom from self that I have never had..
Again, Thank You for your time and concern.
Sincerely
Dianna Lynn
My name is Dianna..I am 55 years old. I was diagnosed with Hep C. in 2001. I am genotype 1A. I had tried the Tx 2 times, the second being the hardest since the rybo was added..I did not complete TX. due to severe adverse reactions both physically and mentally. I am a recovering addict whose chose of drugs were opiates, all but few loaded with acetaminophen Since my original diagnoses there has not been one day that goes by that I am not thinking about my Hep C.. As soon as I hear the word Liver I go right up in my head thinking that that is how I am going to die, and since I have had friends pass from Hep C. I know that it is a horrible way to die, with much agonand suffering. And at certain times the inflamation becomes so severe , I become nauseous and weak, especilly in the heat and feel as though I am going to pass out....My viral load is in the millions, sometimes my enzymes are elevated more than others., My Gastro agrees that I am not mentally strong enough to do the TX again, as I had become somewhat suicidal and heading towards homicidal..I have always struggled with severe depression since the age of 17. And being bi-polar added to the insanity.I had noticed that my liver would press harder against my ribs around the time of month when I use to have my Period There are times when I get myself so crazy over this that I truly believe that my liver is going to burst... In a nutshell......Im Scared...
I do not drink and the only one bad thing I do do is smoke, (which again, I know bad for the liver...
I hoping I can find someone here who will help me to cope and support me as I have no family...I am blessed to be in N.A.,because if not for that I would basically have no one in my life, as I am estranged my my children and am no longer in touch with any of my old close friends as they still use and drink...
I don't feel like I can handle all these thoughts of pain,death and fear obsessing on when I am going to die and How..
Any and All help would be greatly appreciated and hopefully we could help each other..
Thank You so much for being here..Please respond at your earliest convenience...N.A. has given me a new way to live,and the freedom from self that I have never had..
Again, Thank You for your time and concern.
Sincerely
Dianna Lynn
Hi Dianna. Your honesty about all of your issues will help you much, you admit and acknowledge what you have to work on and deal with. This WILL help you in all of this. I agree with Brent in starting ASAP to heal , work on your mental state to be ready to try tx again, if you decide to. You have beaten addiction, you can beat ANYTHING!
First, I see no mention of your stage of liver damage? You mention Tylenol and liver damage so assuming you mean all thats in pain pills. Have you had a bx (biopsy) at all? Much of what you are feeling, saying could be how our mind works in anxiety, fear. If you haven't had a bx, you seriously need to get one, as even knowing the worst can be better then guessing, especially in someone with your anxiety problems, fears.
Second...PLEASE stop, breath and repeat....HEP C IS NOT A DEATH SENTENCE!
MANY live their whole life's with this, die of other causes. Many with liver damage that change bad life habits, eat well, takes care of their liver can live a long life, even with Hep C. No one can predict this or the rate of progression, but living healthy will surely help you. You treated the first time with just interferon, which was little odds, the 2nd you couldn't handle the Riba mix (as many of us have a hard time with) but that said....the newer treatments around the corner are much shorter time, less time to handle and affect your mental state, etc. To cut this short...there is a LOT of hope out there for you. You have to try to live with hope, not with doom and I know that's easier said then done, but try. When those dreadful scary thoughts pop into your head, push them out with...
remembering there is so much more out there soon, and that so many DO live long lives with Hep C. I suffered anxiety attacks yrs ago, I was a 'bad a*s' woman that refused to admit it was that, anxiety, for awhile. Once I did, I began a long process of retraining my mind, and it took some time, believe me! I used the thought of a light switch...as soon as I felt it coming on, I'd tell myself..."I KNOW what this is, I will NOT let it happen, I WILL get thru it" and I'd mentally flip that 'switch' OFF! I picked a phrase to use, mine was "I sought the Lord and he heard me and delivered me from ALL my fears"...and repeated it over and over. After mths, even a year , of this, it began to work, every time. I haven't had one in yrs now. I've had one start a few times, but flicked that switch OFF. Anxiety is horrible, very harmful to a person. Please try and eliminate that from your life, thoughts. We ALL want cured of hep C, but many never get there. Some do die from it, but from what I have seen, most don't. Their life's change, their health may be worse, but they learn to live with it, work around it, as we have to many things as we age, life changes. Green is for liver, healing. I have a green bulb in a light in my room, use one. Stare at it during anxiety and picture your liver healing, etc. Anything that helps. use it!
I hope one day you can heal your relationship with your children also, as you mentioned it. I'm sure that is a sad spot in your life. I have learned in the past few yrs, with so much loss, that most things that we carry, are hurt or scarred by.....are simply not worth it in the end.
I wish you better days ahead, please stick around here and PLEASE message one of us, or call someone ANY time you have suicidal or homicidal thoughts! I just buried my ex from suicide, the impact on us left here is just terrible. Knowing that IF he'd have called me, I KNOW I could have run over, stopped him, is also terrible. I also just watched my sister go thru pure h*ll with cancer fighting for ONE more day.....believe me, no matter what is going on with you TODAY.....you WILL have a happy day again later, you WILL get past a terrible time, day and smile or laugh or love again another day. PLEASE do not ever end your happy days in the future, because there WILL be some.
Huge healing HUGZZZ to you Dianna, life is precious, keep living yours and hoping for better days, Lauri
First, I see no mention of your stage of liver damage? You mention Tylenol and liver damage so assuming you mean all thats in pain pills. Have you had a bx (biopsy) at all? Much of what you are feeling, saying could be how our mind works in anxiety, fear. If you haven't had a bx, you seriously need to get one, as even knowing the worst can be better then guessing, especially in someone with your anxiety problems, fears.
Second...PLEASE stop, breath and repeat....HEP C IS NOT A DEATH SENTENCE!
MANY live their whole life's with this, die of other causes. Many with liver damage that change bad life habits, eat well, takes care of their liver can live a long life, even with Hep C. No one can predict this or the rate of progression, but living healthy will surely help you. You treated the first time with just interferon, which was little odds, the 2nd you couldn't handle the Riba mix (as many of us have a hard time with) but that said....the newer treatments around the corner are much shorter time, less time to handle and affect your mental state, etc. To cut this short...there is a LOT of hope out there for you. You have to try to live with hope, not with doom and I know that's easier said then done, but try. When those dreadful scary thoughts pop into your head, push them out with...
remembering there is so much more out there soon, and that so many DO live long lives with Hep C. I suffered anxiety attacks yrs ago, I was a 'bad a*s' woman that refused to admit it was that, anxiety, for awhile. Once I did, I began a long process of retraining my mind, and it took some time, believe me! I used the thought of a light switch...as soon as I felt it coming on, I'd tell myself..."I KNOW what this is, I will NOT let it happen, I WILL get thru it" and I'd mentally flip that 'switch' OFF! I picked a phrase to use, mine was "I sought the Lord and he heard me and delivered me from ALL my fears"...and repeated it over and over. After mths, even a year , of this, it began to work, every time. I haven't had one in yrs now. I've had one start a few times, but flicked that switch OFF. Anxiety is horrible, very harmful to a person. Please try and eliminate that from your life, thoughts. We ALL want cured of hep C, but many never get there. Some do die from it, but from what I have seen, most don't. Their life's change, their health may be worse, but they learn to live with it, work around it, as we have to many things as we age, life changes. Green is for liver, healing. I have a green bulb in a light in my room, use one. Stare at it during anxiety and picture your liver healing, etc. Anything that helps. use it!
I hope one day you can heal your relationship with your children also, as you mentioned it. I'm sure that is a sad spot in your life. I have learned in the past few yrs, with so much loss, that most things that we carry, are hurt or scarred by.....are simply not worth it in the end.
I wish you better days ahead, please stick around here and PLEASE message one of us, or call someone ANY time you have suicidal or homicidal thoughts! I just buried my ex from suicide, the impact on us left here is just terrible. Knowing that IF he'd have called me, I KNOW I could have run over, stopped him, is also terrible. I also just watched my sister go thru pure h*ll with cancer fighting for ONE more day.....believe me, no matter what is going on with you TODAY.....you WILL have a happy day again later, you WILL get past a terrible time, day and smile or laugh or love again another day. PLEASE do not ever end your happy days in the future, because there WILL be some.
Huge healing HUGZZZ to you Dianna, life is precious, keep living yours and hoping for better days, Lauri
Dianna, your story is both tragic and touching. There is no need to feel alone. I hope you can find support on this forum. There are many with similar stories.
I am genotype 1 also and have treated once for 84 weeks but relapsed. There are new drugs (protease inhibiters and polymerase inhibiters) that should be on the market soon. The two most likely drugs are Bocepravir and Telaprevir and should be available around this time next year from what I have heard. They offer better hope than the current treatments on pegylated interferon and ribavirin. It also looks like they are more easily tolerated (especially in the case of Bocepravir) and have shorter TX periods.
TX is tough and definitely takes a toll on the body and mind. You say you are not strong enough for another treatment. I can't really tell you what to do, but if I were in your situation I think I would look into getting myself in a better condition as possible mentally and physically so as to be in the best position to take advantage of TX using one of the newer treatment drugs next year. Of course everyone's condition and path is different.
Whatever your choice, I hope you get help and support. We're all kind of in this together. Good luck to you and keep in touch.
Brent
I am genotype 1 also and have treated once for 84 weeks but relapsed. There are new drugs (protease inhibiters and polymerase inhibiters) that should be on the market soon. The two most likely drugs are Bocepravir and Telaprevir and should be available around this time next year from what I have heard. They offer better hope than the current treatments on pegylated interferon and ribavirin. It also looks like they are more easily tolerated (especially in the case of Bocepravir) and have shorter TX periods.
TX is tough and definitely takes a toll on the body and mind. You say you are not strong enough for another treatment. I can't really tell you what to do, but if I were in your situation I think I would look into getting myself in a better condition as possible mentally and physically so as to be in the best position to take advantage of TX using one of the newer treatment drugs next year. Of course everyone's condition and path is different.
Whatever your choice, I hope you get help and support. We're all kind of in this together. Good luck to you and keep in touch.
Brent
I understand how you feel and validate your thoughts. Although I've had HCV since 1965, I've never been treated due to the slow progression of the (my) disease. Diagnosed in late 2004 - biopsy indicated grade 2, stage 1 and all AST and ALT tests since then have been well within the normal range.
It's just been in the last two years that I've suffered from noticeable weakness and fatigue and in the last year aches and pressure due to liver inflammation. I'm 67. Also, I now have problems digesting even the healthiest of foods.
My grown children are accustomed to a very strong mother, both physically and emotionally, and even though they express caring and concern, they don't seem to realize the seriousness of my situation. They still seem to look at me as the "Iron Woman". I hate the thought of dying in pain and alone but that is probably what will happen because both children live in other cities.
I'm very glad we have this forum to obtain information and to receive and hopefully give friendly support to each other.
Take care and best wishes.
It's just been in the last two years that I've suffered from noticeable weakness and fatigue and in the last year aches and pressure due to liver inflammation. I'm 67. Also, I now have problems digesting even the healthiest of foods.
My grown children are accustomed to a very strong mother, both physically and emotionally, and even though they express caring and concern, they don't seem to realize the seriousness of my situation. They still seem to look at me as the "Iron Woman". I hate the thought of dying in pain and alone but that is probably what will happen because both children live in other cities.
I'm very glad we have this forum to obtain information and to receive and hopefully give friendly support to each other.
Take care and best wishes.
Sometime's It's good just to talk about it (Write about it), I know what you mean, I suffer anxiety about this also, Most day's I feel like ****, Tired ALL the time!, Im also border line Diabetic which make's the tired and nauseated feeling's even worse!, Top it off I have high blood pressure and possible prostate problems!, So as you can see, Your NOT the only in this boat!, Im only 48 going on 90!, As hard as it is my only advise is take it "one day at a time" (sounds like a sit com), My liver biopsy's are good (the only good news), Maybe they'll come out with something that cures us before it kill's us, Iv'e had it for over 30 years so it's a SLOW killer at best.... Good Luck.....
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