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Low white blood cell count and platelets......I'm scared
Just got a copy of my labs yesterday and things didn't look too good wbc and platelets are low. My dr has been away for a couple of weeks so i finally got a call from the clinic. I apparently can't go out were there are crowds and not be around anyone who is sick. I'm genotype 2 and take 800mg riba and pegasays. I took shot number 7 last night and i don't want to have to stop treatment.....Any suggestions??? Thanks
Hi Hopeful!
The date on this post had me curious, so I scrolled down and found you! There are so many things you can do to address the sides of txing, to make it tolerable...When do you start? Hey, before you answer that, would you mind starting a new thread with just you on it? I'm sure you'll get a lot more responses if you do...((((((((((HUGZ)))))))) ~Melinda
The date on this post had me curious, so I scrolled down and found you! There are so many things you can do to address the sides of txing, to make it tolerable...When do you start? Hey, before you answer that, would you mind starting a new thread with just you on it? I'm sure you'll get a lot more responses if you do...((((((((((HUGZ)))))))) ~Melinda
I'm Hopeful, and I'm happy to know that you are out there sharing info and encouraging one another. I was diagnosed with hep c 8 years ago. Current cbc shows low platelets, 91. Liver biopsy (my 4th) this week. So I've accepted that there has been some damage. Am geared up to start treatment. I have only one year of insurance left on my Cobra. I am Genotype 1b. I have a good amount of head knowledge from reading, but really need some good advice for better tolerating tx side effects. How often do you actually see your doctor? Thanks for your feedback and support. I will keep you all in my prayers.
Snow: I experienced the same thing during treatment. I don't really know if the rescue drugs made me feel any worse than I already did. I do know that I did get positive results from their use. Your doctor should be watching very closely now and probably on a weekly basis. If so they will be able to regulate the counts to a certain extent. I wish you well and praying for a happy journey with a rainbow at the end. Dale
Hi snowybyrd, first I have to say it was neat seeing that we have a conversation going on here between a snowybyrd and an orphanedhawk. You all have to stop meeting like this. :)
Anyhow, you're on a week 7, and your platelets are still looking pretty good. Your anc isn't terribly low but it's going down and might continue to go down, might not, it's a wait & see.
Neuopogen (the drug Wyn and OH and others have talked about has (according to my doc) also been shown to increase platelets in some patients. Your platelets are fine, though, and so that's just a tid-bit of info (from what my doc has said) just in case your ANC AND platelets keeping going down and you go on Neuopogen (it might have an added benefit.)
The Neumega is a drug used to increase platelets, but for whatever reason both of my docs say they don't use it; they use only the Neuopogen. I don't know why, but I've not seen many Hep C tx'rs on the Neumega.
Anyhow...if you go on Neupogen at some point, I've heard from some it can cause some rather intense bone pain, BUT they said it was bearable AND that they were able to get through Hep C treatment ON Neupogen.
Best of luck to you.
Anyhow, you're on a week 7, and your platelets are still looking pretty good. Your anc isn't terribly low but it's going down and might continue to go down, might not, it's a wait & see.
Neuopogen (the drug Wyn and OH and others have talked about has (according to my doc) also been shown to increase platelets in some patients. Your platelets are fine, though, and so that's just a tid-bit of info (from what my doc has said) just in case your ANC AND platelets keeping going down and you go on Neuopogen (it might have an added benefit.)
The Neumega is a drug used to increase platelets, but for whatever reason both of my docs say they don't use it; they use only the Neuopogen. I don't know why, but I've not seen many Hep C tx'rs on the Neumega.
Anyhow...if you go on Neupogen at some point, I've heard from some it can cause some rather intense bone pain, BUT they said it was bearable AND that they were able to get through Hep C treatment ON Neupogen.
Best of luck to you.
I was told that although a platelet count in the 90's is below average, it is not a problem. My doc will let my platelets go as low as 25 before he'd consider stopping tx.
I have been grabbling with low platelets and wbc for several weeks. First my interferon was lowered. Now I'm taking neupogen and doing weekly CBC's. The neupogen does give a boost in energy. I'm delighted that my platelets went from 32 to 62! You are fine, and believe me, you have lots of company here.
White blood cells protect us from virus's etc. This is why you were told to stay away from people. I'd just make sure your kids friends aren't sneezing on you. Neupogen will raise your wbc count.
I have been grabbling with low platelets and wbc for several weeks. First my interferon was lowered. Now I'm taking neupogen and doing weekly CBC's. The neupogen does give a boost in energy. I'm delighted that my platelets went from 32 to 62! You are fine, and believe me, you have lots of company here.
White blood cells protect us from virus's etc. This is why you were told to stay away from people. I'd just make sure your kids friends aren't sneezing on you. Neupogen will raise your wbc count.
The reason I asked about length of hep-c is because of your platelets. It seems to be fairly common for those who have had hcv for a long time to have persistently low platelets as well. But it's not a significant issue unless they plumment to the 30 range. The blood doc I see won't take any action until they hit 25, and they won't go that low (I've done this before). So, since they won't go that low and there's not much that can be done anyway, I invoke the Scarlett O'Hara attitude: 'Fiddle dee - dee, I'll worry about it tomorrow'
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