Aa
Mentally Burnt Out
Just came back from doctor for my checkup. Doing shot 45 tomorrow. My HGB is holding at 10.5 still.
He said if after 1 year of stopping meds if Im clear then Im cured. Not before. If Im clear 3months after stopping tx
that is hopeful. And 6 months PCR after stopping tx gives us more hope. However the 12th month test is the one.
I know all this....however sometimes I feel like Im fighting for such a small percentage.....He was encouraging that I made it this far into tx, but felt he was being honest and just brought me down. I know this is true, was told this ny 3 hepatologists....the truth is hard to hear sometimes.............
He said my color isnt great and my skin exceptionally dry he called it some name......but I dont remember.
I showed him what my scalp looked like he told be to put a hat on and gave me a small hug!
Im just tired.........and worn.
Im going to do the 52 or 53 shots he said it couldnt hurt..........So we shall see.
Im just so fried mentally.
Thanks for listening to me crab........
Love,
Charm
He said if after 1 year of stopping meds if Im clear then Im cured. Not before. If Im clear 3months after stopping tx
that is hopeful. And 6 months PCR after stopping tx gives us more hope. However the 12th month test is the one.
I know all this....however sometimes I feel like Im fighting for such a small percentage.....He was encouraging that I made it this far into tx, but felt he was being honest and just brought me down. I know this is true, was told this ny 3 hepatologists....the truth is hard to hear sometimes.............
He said my color isnt great and my skin exceptionally dry he called it some name......but I dont remember.
I showed him what my scalp looked like he told be to put a hat on and gave me a small hug!
Im just tired.........and worn.
Im going to do the 52 or 53 shots he said it couldnt hurt..........So we shall see.
Im just so fried mentally.
Thanks for listening to me crab........
Love,
Charm
hang tough...you've come a long way. Keep up the work, keep poppin' those pills and taking those shots. Damn the torpedos, full speed ahead.
Charmer, why are you doing 52 weeks?
Why am I doing 52? Cause I have them in fridge-no other reason.
God I love this kind of talk, you are my hero charm! Hedging your bets by going the 4 extra weeks to insure that you don’t have to go through this again. If you’re that set in doing so you might want to re-read HR’s reasons for tapering down going into the last 4 weeks, just a thought. But to the task at hand, keep moving forward the pebbles are getting smaller and you’ll be “walking like an Egyptian soon enough”.
jasper
Why am I doing 52? Cause I have them in fridge-no other reason.
God I love this kind of talk, you are my hero charm! Hedging your bets by going the 4 extra weeks to insure that you don’t have to go through this again. If you’re that set in doing so you might want to re-read HR’s reasons for tapering down going into the last 4 weeks, just a thought. But to the task at hand, keep moving forward the pebbles are getting smaller and you’ll be “walking like an Egyptian soon enough”.
jasper
You are in the homestretch and we are cheering you on. Hold on to hope. You've come so far. Wishing you the best.
jd
jd
I haven't 'spoken' to you, as such, Charm, but I have to say, having only been here 3 months, that your posts have touched me and inspired me, and while I have't participated in your journey, if silent prayers have the same power, I have often sent them your way.
I started with a 50/50 chance and, while the odds initially weren't great, I could only hope that the voyage was enlightening and that I had the strength to do my best. In my humility that strength has come from the likes of you, and in my heart of hearts, I am hoping for the best possible outcome for you. I know my outcome, ultimately, is between God and me and luckily I have have been shown a few inklings as to why this voyage was important amongst the pain and brain fog.... A lady I've met locally has only 3 shots to go of 48 and is very similar to you, but seems to still have her good days... I really hope you're feeling a little better soon - not toooo long to go.
I started with a 50/50 chance and, while the odds initially weren't great, I could only hope that the voyage was enlightening and that I had the strength to do my best. In my humility that strength has come from the likes of you, and in my heart of hearts, I am hoping for the best possible outcome for you. I know my outcome, ultimately, is between God and me and luckily I have have been shown a few inklings as to why this voyage was important amongst the pain and brain fog.... A lady I've met locally has only 3 shots to go of 48 and is very similar to you, but seems to still have her good days... I really hope you're feeling a little better soon - not toooo long to go.
I am sad to read you are burnt out.I understand that and just wanted to try and Cheer You.
FAITH
We've been blessed with a savvy and spirit that isn't given to everybody.
And let me say that this refusal of total or full acceptance of one's disability, (HCV) all hooks up with one thing--- faith, an almost divine faith.
Down in the reception room of the Institute of Physical Medicine and Rehabilitation, over on the East River at 400 East 34th Street in New York City, there's a bronze plaque that's rivited to the wall.During the months of coming back to the Institute for treatment --- two or three times a week --- I rolled through that reception room many times, coming and going.But I never quite made the time to pull over to one side and read the words on that plaque that were written, it's said, by an unknown Confederate soldier.Then one afternoon, I did.I read it and then I read it again.When I finished it for the second time, I was near to bursting--- not in despair, but with an inner glow that had me straining to grip the arms of my wheelchair.I'd like to share it with you.
A Creed For Those Who Have Suffered
I asked God for strength, that I might achieve.
I was made weak, that I might humbly to obey...
I asked for health, that I might do great things.
I was given infirmity, that I might do better things...
I asked for riches, that I might be happy.
I was given poverty, that I might be wise...
I asked for power, that I might have the praise of men.
I was given weakness, that I might feel the need of God...
I asked for all things, that I might enjoy life.
I was given life, that I might enjoy all things...
I got nothing I asked for--- but everything I had hoped for.
Almost despite myself, my unspoken prayers were answered.
I am, among men, most richly blessed !
Roy Campanella
Charm your unspoken prayers will be answered.Hope you start feeling better. God Bless
FAITH
We've been blessed with a savvy and spirit that isn't given to everybody.
And let me say that this refusal of total or full acceptance of one's disability, (HCV) all hooks up with one thing--- faith, an almost divine faith.
Down in the reception room of the Institute of Physical Medicine and Rehabilitation, over on the East River at 400 East 34th Street in New York City, there's a bronze plaque that's rivited to the wall.During the months of coming back to the Institute for treatment --- two or three times a week --- I rolled through that reception room many times, coming and going.But I never quite made the time to pull over to one side and read the words on that plaque that were written, it's said, by an unknown Confederate soldier.Then one afternoon, I did.I read it and then I read it again.When I finished it for the second time, I was near to bursting--- not in despair, but with an inner glow that had me straining to grip the arms of my wheelchair.I'd like to share it with you.
A Creed For Those Who Have Suffered
I asked God for strength, that I might achieve.
I was made weak, that I might humbly to obey...
I asked for health, that I might do great things.
I was given infirmity, that I might do better things...
I asked for riches, that I might be happy.
I was given poverty, that I might be wise...
I asked for power, that I might have the praise of men.
I was given weakness, that I might feel the need of God...
I asked for all things, that I might enjoy life.
I was given life, that I might enjoy all things...
I got nothing I asked for--- but everything I had hoped for.
Almost despite myself, my unspoken prayers were answered.
I am, among men, most richly blessed !
Roy Campanella
Charm your unspoken prayers will be answered.Hope you start feeling better. God Bless
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