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276730 tn?1327962946

Mentally Burnt Out

Just came back from doctor for my checkup. Doing shot 45 tomorrow. My HGB is holding at 10.5 still.
He said if after 1 year of stopping meds if   Im clear then Im cured. Not before. If Im clear 3months after stopping tx
that is  hopeful. And 6 months PCR after stopping tx gives us more hope. However the  12th month  test is the one.
I know all this....however sometimes I feel like Im fighting for such a small percentage.....He was encouraging that I made it this far into tx, but felt he was being honest and just brought me down. I know this is true, was told this ny 3 hepatologists....the truth is hard to hear sometimes.............

He said my color isnt great and my skin exceptionally dry he called it some name......but I dont remember.
I showed him what my scalp looked like he told be to put a hat on and gave me a small hug!
Im just tired.........and worn.

Im going to do the 52 or 53 shots he said it couldnt hurt..........So we shall see.

Im just so fried mentally.
Thanks for listening to me crab........
Love,
Charm





25 Responses
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388154 tn?1306361691
I talked to my ex zazza today because I have been written in to some posts lately that as a geno 1 UND 12 week you have 80% SVR chance doing 48 weeks, she confirmed it and shes a g1 her self and quite good at figures and facts so I trust her on that one.

The 40-50 % SVR rate for geno 1 is if I understand everyone included non responders slow responders also the  RVRs of course.

You were UND week 8  and your stage 2  what is that pessimism coming from.

PCR at after 12months that is if you stage 4 your doc doesn´t seem uptodate on that one.( could be some other factor I´m not familiar with though)

Soon its all over i have also been offered 3 extra shots that zazza has left but I`m turning it down enough is enough i have 10 left  to do feels like nothing.( if it ends there)

Have a good good feeling for you

ca
Helpful - 0
Avatar universal
Goofy Ethel, we all suffer with this thing,  some get past it quickly, some don't. The thing to remember for me is no one is that more special than anyone else, all of us struggle. So if i had the stop smiley i would use it. Stop Embarrasing me.

This is about you, about almost finishing, about the brave journey you have taken, not me or anyone else. About YOU!  Right now you ETHEL are my hero!

I will have to make you a silly story in my journal, Ethel the  girl who ...

Deb

Helpful - 0
276730 tn?1327962946
Yes Ive been doing ok but the doctor just brought be down with statistics.I guess Im just
turning the corner now and wanted some encourgagement..........not what I heard even though it might be correct.

I just need a day or two to regroup and I will be fine!
Just a bad day.
Comegain, thanks for your statistics I like yours better!
And I know whatever will be will be.
THANK YOU
Charm
Helpful - 0
Avatar universal
You are SO amazing and you don't even know it.  I'm reading a post that starts out "Mentally burned out" and I read you're at Week .. FORTY -SIX!!!!  and.. after everything you've been through.. what do I read a little while after that??  You're going to WEEK FIFTY-TWO.  Mentally burned out my a$$.  You have no idea of your own courage and strength you're just so used to being that way.  I'm SO excited for you.. I can't wait til you drag your a$$ over the finish line and you're SO close!!!!   You and I headed into this treatment journey of discovery together and then you got started and then it was me getting started .. and here you are practically DONE!!!!   You have amazed me and you continue to be my hero, Charm.  You have had virtually no support other than the forum and your sense of humour and your spirit has been an inspiration to me.  

You'll finish the last weeks in plenty of Charm style .. start picking your cape for the finish line.. you're ALMOST THERE!!!!

Love and hugs,

Trish
Helpful - 0
394687 tn?1290920840
Dear Charm,

Trish is right...time to turn on the rocket boosters and fire up for seperation where you can be free of the weight and the pain and circle the earth until you glid gently back down to the ground with the wind beneath your wings like the proud bird you are and the inspiration you have been to all of us.

We love you and respect you and so identify with your ups and downs for we too are experiencing this hilatious journey - this ride that seems to never end, that takes us to far courners of the universe, places we had hoped to never see...but through it all we gently guide each other through the storms and celebrate our accomplishments. This is truly your moment to celebrate and don't let that be taken from you, we are there for you and with as you have been for us...that guiding light...Keep that Ethyl fuel burning bright your almost home.

Mega hugs,

Michelle
Helpful - 0
Avatar universal
The last bit is the slowest.  I guess it's the anticipation of finishing tx.
You're almost there!!  You are stronger than you think.

When I had days that I felt down and couldn't stand to look at myself in the mirror
to get ready for work I'd always refer to #7 of the
"Ten Commandments of HCV survival"...

7. Thou shalt never relinquish hope, no matter how thou may feelest at that moment, for thou knowest, in the deep recesses of thy heart that your discouragement is but fleeting and that a better day awaits thee.

A better day will await you as well...
enigma

Helpful - 0
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