Aa
Why does this have to be so hard?
As I wait for my meds today, I find out that the interferon was not shipped. My next shot is Sunday. Now I have to take a sick day to wait for the reorder. I had one last proclick as backup but am in the process of exchanging it due to its viability. And, I had made extra calls to make sure this order was all good. How many backup plans do I need? Can't help it, but I feel guilty calling in sick. Okay, so this time I really did shed a tear. And ups always delivers to me last on their route, so I have to be available 7 hrs. Grrrrrrr!!!
C
C
Hi peoples, I remember having to get a transfusion because my procrit didn't get to me in time though I had made all the arrangements - best laid plans of mice and men - how does that go? Anyway I was so p___ off because my insurance or the pharmacy or the doc didn't do something on time besides passing the buck on the responsibility of allowing us to stay on track. Of course at the time I was so weak, 6.5 hmg, couldn't walk or talk, thought I would die. What a nightmare. Instead of complaining I just prayed and kissed axxx. I am glad that part is over. Please don't let this happen to you. Who can I sue? just kidding. I just want for all of us to be SVR.
The fact is I fell through the cracks more than a few times because of the high volume of patients, changing employees, unreturned calls to the doc, the blame game, who knows? One must be their own screaming advocate not counting on anyone basically.
I hope the system will get it's act together cause the tsunami of heppers hasn't really hit yet. At least we complainers will make it better for those that follow. = : )
The fact is I fell through the cracks more than a few times because of the high volume of patients, changing employees, unreturned calls to the doc, the blame game, who knows? One must be their own screaming advocate not counting on anyone basically.
I hope the system will get it's act together cause the tsunami of heppers hasn't really hit yet. At least we complainers will make it better for those that follow. = : )
Thanx, it really is one day at a time. I never knew I would experience so much anxiety. In some ways doing tx is like a springboard. If I can get through this I can do anything.
Cheers,
C
Cheers,
C
The stress this week has been crazy. It turns out, this day off has been fruitful, and restful. Also, it helped relax this cough I have.
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I tried hard to reduce my workload and expectations during tx, but some days things just pile on and make life difficult. All you can do is do your best and not worry so much. Getting through each day was enough during tx. A day off to rest and relax and give your mind a break can be enough to give you new energy to push forward. And that cough......... yes, very annoying. My cough stopped almost immediately after eot. Hang in there. You're doing great.
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I tried hard to reduce my workload and expectations during tx, but some days things just pile on and make life difficult. All you can do is do your best and not worry so much. Getting through each day was enough during tx. A day off to rest and relax and give your mind a break can be enough to give you new energy to push forward. And that cough......... yes, very annoying. My cough stopped almost immediately after eot. Hang in there. You're doing great.
BTW, 57, that's me, ain't older, it's just getting started... I think I hear a beat!
I really admire you. From everything I read, being cirrhotic, can compound the sx. much more. From what I know, I am F0, but started tx with lots of inflammation and high VL. Still, this tx is rough! I'd call you a superhero.
@srw920, I wish I had signed up for intermittent FMLA and I may do it. That way I can't get dinged if I call in.
The stress this week has been crazy. It turns out, this day off has been fruitful, and restful. Also, it helped relax this cough I have.
Cheers all,
C
@srw920, I wish I had signed up for intermittent FMLA and I may do it. That way I can't get dinged if I call in.
The stress this week has been crazy. It turns out, this day off has been fruitful, and restful. Also, it helped relax this cough I have.
Cheers all,
C
Wow, you guys are worrying about taking a sick day here and there? I can't even imagine being able to work through this tx! Maybe it's because I'm older now and I'm cirrhotic, but this tx has just knocked me on my butt, much more so than my two previous attempts. Anyway, I think you all should be thinking of yourselves as superheroes just for showing up at work most days!
Yay! Pressure released. Hope you took a sick day. Two weeks go I was so sick and felt guilty, so I kept dragging myself in. When I saw my doc two weeks ago I had her fill out the medical cert for intermittent Medical leave. received the approval through Jan 6, 2013. Haven't used it but I will if I feel crappy. I am the priority. Be kind to yourself.
Wow, my UPS guy came early today. I think he saw how upset I was the other day. Of course, I told him that I loved him!
C
C
Thanx Bo, I think I reached a boiling point; the emotional, the physical the snafus. I have someone to talk to at the pool, and she really pushed me to get out of the rants and it opened up something in me. There will be upsets along the way, but bottom line it is all about me getting well and I deserve to succeed. I will do what I have to.
Salud,
C
Salud,
C
One of the most frustrating things for me, during this Tx, was worrying about my meds getting here properly and on time. Of course, UPS always got to my house last, at the very end of the day. I was always a nervous wreck, and had to take of, the entire day, as well.
The tears always brought relief for me, not furthur sadness, and I am glad your tears are making you feel better also, and that you are now able to let go of any guilt.
I made that same decision, when I went into Tx. I had put it off for so long, in order to take care of my 3 children, but once I realized my liver fibrosis was in the process of progressing, I made the decision that it was "me time".
The tears always brought relief for me, not furthur sadness, and I am glad your tears are making you feel better also, and that you are now able to let go of any guilt.
I made that same decision, when I went into Tx. I had put it off for so long, in order to take care of my 3 children, but once I realized my liver fibrosis was in the process of progressing, I made the decision that it was "me time".
I asked the pharmacy about the no signature deal. If someone scoops the package, they are not responsible for replacement. Hence, a signature guarantees the meds.
@mykids, I always have 1 injection left when I get my meds. Problem is, I was having it replaced due to uncertainty about its clarity. I think this exchange thru the pharmacy and Genentech some how held up shipment of pegasys altogether.
Ohmyohmyohmy, it'll all work out, and someday this will be a distant memory.thanx,
C
@mykids, I always have 1 injection left when I get my meds. Problem is, I was having it replaced due to uncertainty about its clarity. I think this exchange thru the pharmacy and Genentech some how held up shipment of pegasys altogether.
Ohmyohmyohmy, it'll all work out, and someday this will be a distant memory.thanx,
C
when I was treating I would schedule my meds to arrive a week before I would need them. I had them sent to my daughters and no signature required. Living in a condo I didnt want the neighbors (nosey neighbors) getting into my business. Still it is very stressful with deliverys especially with the hot weather.
Can't you tell the pharmacy to deliver your meds without a signature? They, UPS, just leaves the meds at my door so I don't have to be here when they are delivered.
I hope everything works out!
Jules
I hope everything works out!
Jules
To all,
I have had a huge breakthrough this evening. Up until now, I could not even squeeze the tears out, even with all the frustrations. What I need right now is to truly love myself and do whatever it takes to get well. I deserves this. I have to give up the guilty feelings. I will call in sick and feel good about it, because I am taking care of me. The tears are finally here!
Thank you all for your continuous support,
C
I have had a huge breakthrough this evening. Up until now, I could not even squeeze the tears out, even with all the frustrations. What I need right now is to truly love myself and do whatever it takes to get well. I deserves this. I have to give up the guilty feelings. I will call in sick and feel good about it, because I am taking care of me. The tears are finally here!
Thank you all for your continuous support,
C
Thinking about the situation it's the meds that make this whole journey
difficult. Every little problem seems monumental because the meds
do awful things to you both physically and mentally.
If you were not on these meds getting issues resolved wouldn't seem
like such a DIFFICULT thing to accomplish.This treatment as my doctor always says "is not a walk in the park." If you weren't on the meds it wouldn't be so hard to take a sick day without guilt.
That's why they try evaluate your mental stability before tx. Each time I go to the doctor they ask if I have any thoughts of killing myself. Really what they should ask us is if we have any thoughts of murdering other people (LOL). Just kidding but these meds make everything sooooooooooo very difficult.
I'm going on water tonight to wash the meds out as much as I can. Then
maybe I'll return to some peace.
How's your water intake?
Again, thanks for your support.
Reva
difficult. Every little problem seems monumental because the meds
do awful things to you both physically and mentally.
If you were not on these meds getting issues resolved wouldn't seem
like such a DIFFICULT thing to accomplish.This treatment as my doctor always says "is not a walk in the park." If you weren't on the meds it wouldn't be so hard to take a sick day without guilt.
That's why they try evaluate your mental stability before tx. Each time I go to the doctor they ask if I have any thoughts of killing myself. Really what they should ask us is if we have any thoughts of murdering other people (LOL). Just kidding but these meds make everything sooooooooooo very difficult.
I'm going on water tonight to wash the meds out as much as I can. Then
maybe I'll return to some peace.
How's your water intake?
Again, thanks for your support.
Reva
Does you doctor keep any medication around for emergency situations.
My my shots were running late they gave me one to take home just in case.
It was one of the automatic injections and I returned the next
week because I didn't need it. Is your doctor close?
However, if you have to use a sick day I wouldn't feel guilty for one moment. I had that attitude and hundreds of days in my bank when I was forced into retirement this past Feb.
Your health is far more important than a sick-day. I was saving
mine for treatment and I lost them and the money they were worth.
They were stolen by the emergency manager who was put in place.
I had nearly a year of sick days. Unless, you're really lucky and have the
last great employer in the universe I would not spend one second feeling
guilty.
Reva
My my shots were running late they gave me one to take home just in case.
It was one of the automatic injections and I returned the next
week because I didn't need it. Is your doctor close?
However, if you have to use a sick day I wouldn't feel guilty for one moment. I had that attitude and hundreds of days in my bank when I was forced into retirement this past Feb.
Your health is far more important than a sick-day. I was saving
mine for treatment and I lost them and the money they were worth.
They were stolen by the emergency manager who was put in place.
I had nearly a year of sick days. Unless, you're really lucky and have the
last great employer in the universe I would not spend one second feeling
guilty.
Reva
Do you know some place your meds can be delivered so you don't have
to take the day off.
to take the day off.
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