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723065 tn?1231078973

My hair is falling out big time?

Anyone else on the Interferon, Riba, Boceprevir trial noticing more hair loss than anticipated?

Just curious.

And anyone else got Camel eyelashes?

At least this stuff is working, I am Genome 1A  naive, and went from 22 million VL to ND in 3 months. now at 6 months and 5 more to go.

To be honest, the treatment has not been as bad as i had been told it would be. Am just very tired, and have to take procrit 40 units a week now. RBC is low usually ranging from 10.1 to 10.9.

just trying to hang in until November...

Esnead


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Avatar universal
eif
only on tx for 2 wk but I am on the co-pegysus. havent lost any hair to speak of yet cant really afford to my hair is very thin and fine. Mostly my legs are numb and a little blurred vision any one know about the numb legs?
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723065 tn?1231078973
Well, i have been off the boceprevir for two months but still on interferon shot and riba (vl still undetectable) and the hair loss has finally stopped. and i can see little sprigs of new growth already. about 1/4 of an inch or more.

can't wait for it to get a bit thicker but i have to say, the wigs these days are quite good ( i got a real hair blonde one)  and so  very convenient. no one even notices its a wig and all i get are compliments on how great my hair looks (?) i plan to travel with one to Europe to save hair styling time next year!
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723065 tn?1231078973
thanks guys!

they switched me off the boceprovir to the placebo at week 29. i can tell because my rbc is up and i no longer need the procrit and the hair loss has slowed down. i also don't get the metallic taste anymore. i feel almost human!

now the only concern is that the virus might come back. not sure what happens if that happens.. any one know?
Helpful - 0
264121 tn?1313029456
I wasn't on boca - just interferon/riba.
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264121 tn?1313029456
Oh yeah.  It all came back.  Even, unfortunately, the hair on my legs.
Helpful - 0
264121 tn?1313029456
nygirl got pretty eyelashes during tx.  

I lost a lot of my hair, maybe even 2/3 - but I had a bunch to begin with, ALL of my eyelashes and a lot of my eyebrows, and most of the hair on my legs (that last part was pretty cool actually)

It started after the fifth month and I only treated six months but the loss continued for a few weeks after I stopped tx.  Hair was all over everything.  I gave the cats a run for their money.
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